My son is switching from trileptal to zonegran currently. He just started having issues sleeping at night the last week or so - he is now taking 150mg of zonegran at bedtime and is weaning off trileptal (now at 600mg AM and PM). Will be checking blood levels of both the end of this week before our next decrease of trileptal.

Has anyone had insomnia on zonegran? If so, did moving it to AM help at all?

Thanks!

I believe the insomnia started with the addition of Zonisamide. It was manageable at the time.
For unknown reasons Post Surgery I’m not able to get any decent sleep.
We’re starting with trying melatonin. Then a sleep pill (trazadone). If neither work we’ll try lowering the zonisamide.

No insomnia. I’m sleeping 8-9 hours daily yay! It helps to have all media -including my iPhone - in another room.

Levetiracetam is my current medication/treatment for seizures but I can’t stand the side effects, such as insomnia, loss of appetite, irritability, and worsening depression.

I often go on a 2 week spree without bearly any sleep. Half an hour here, maybe an hour there, and then after 2 weeks I totally collapse. Besides these 2 week sprees, I sleep very little. I am always tired and without any energy.

Almost every night, I struggle to get my off to sleep. I am always up half the night feeling over tired but cannot sleep or get into a comfortable place. I have tried, counting, music, medicating, do actives til nodding off etc. Nothing seems to work, I just want to use sleeping pills now, I am struggling to get myself through the day without feeling so tired.

am I the only one? do you think it is linked to our epilepsy?
I do suffer with anxiety and depression badly that doesn't help.