Epilepsy

Questions + Answers

Don't see your question? ask question
View:

JME with Syncope

JME with Syncope

My daughter Riley is 15 she has poorly controlled JME (takes Keppra, Onfi currently) in August she had a VNS implanted. Since then we have been dealing with medically unexplained syncope. We have looked at everything! No heart issues (no bradycardia with events). They happen whether the device is off or on. This is a daily occurrence and she can be out for anywhere from 10 minutes to 5 hours.
Doc is leaning towards some type of conversion co-morbidity. Anyone else have any similar experiences? I… read more

Zonegran

Zonegran

Ok here goes,a year ago I was put on a drug called zonegran 100mg day and it was helping.
I’m also on 300 lamotrogen 2xday,1500 keppra 2xday 60 clobazam 2xday,,
Anyway last appointment I had with neurologist I got into an valid argument with her so asked have another neurologist.
Been waiting ages,I’ve always been junk food junky,always a size 8 my whole life.
I’m now a size 0 and my doctor says rapid weight loss is a side effect,no idea what she done time I got home neurologist department left a… read more

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member every med has side effects. but the good thing is you dont have to take the med. ask your dr about switching the meds or… read more

posted about 11 hours ago

Has anyone had success with prescription CBD oil?

Has anyone had success with prescription CBD oil?

A MyEpilepsyTeam Member said:

yes an no. yes i have cbd oil and yes i told my drs about it but no i didnt rx it. but in my state, you can buy cbd (with no thc in it) at local shops… read more

posted about 10 hours ago

Partners Coping

Partners Coping

How does your wife/husband/partner cope with you having epilepsy and seizures? My wife still has flashbacks to me taking ill and when she hears a bang in the house she thinks I have collapsed having a seizure. She says she is living her life on edge. Is anyone else's partner experiencing the same thing?

A MyEpilepsyTeam Member said:

My husband of 40 years is very anxious about me which I understand because he has helped through some major seizures when I have had serious injuries as… read more

posted about 1 hour ago

Needle probe invasive EEG

Needle probe invasive EEG

Has anyone gone through this procedure that can tell me a little bit of info on how much pain and sickness you had after the procedure while waiting for the seizure? And afterwards when you are discharged and go home? Can people stay in the room with you like I could at the EMU? Hard to find info from a patients point of view. Thanks!

A MyEpilepsyTeam Member said:

Thanks that’s good to know. He has to wait 6 weeks for his brain to heal between surgeries which is a bummer, especially when it comes to missed work.… read more

posted 3 days ago

Gelastic epilepsy and work?

Gelastic epilepsy and work?

I work at a Harley Davidson and I had my first major seizure at work. I remember eating lunch and then next thing I know is that I'm being loaded into the ambulance.
Apparently, I bust out into maniacal laughter then went into a normal seizure.. I hate being home so much. I love my job! And ive been out for a full week.. is there any way to expedite myself going back to work? This medication is NOT helping me at all.. I still have seizures but now I'm in a hell of a lotta pain, dizzy,… read more

A MyEpilepsyTeam Member said:

welcome to the group

posted 3 days ago

Getting bad nausea from meds.

Getting bad nausea from meds.

I was wondering if anyone suffers from bad nausea from their meds. I get nauseated when the temperature is around 30C.

A MyEpilepsyTeam Member said:

I get pretty sick on Vimpat for the first half an hour after it kicks in. Eating something small before I take it helps a lot. Especially in the… read more

posted 1 day ago

Rare epilepform spike?

Rare epilepform spike?

What does a "rare epilepform spike mean?

I am sorry I am having difficulty spelling today.

A MyEpilepsyTeam Member said:

'Epileptiform transients such as spikes and sharp waves are the interictal marker of a patient with epilepsy and are the EEG signature of a seizure… read more

posted 4 days ago
Continue with Facebook
Sign up with your email
Already a Member? Log in