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Epilepsy
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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice.
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Seizures
Seizures
Do You Guys Feel A Grand Mal Seizure Coming On ?? What Is It Like When You Have One ??...I Sleep For Hrs Afterwards & Sometimes Wake Up With A Headache & My Body Feel Like A Hard Core Work Out (Sore) . I Was Brused Once On My Forearm . Im Back To My Normal State After I Sleep . I Feel Mine Coming Bc I Space Out Alot Multiple Times Seconds Or Minutes Apart . I Do A Hard Jerk/Twitch & I Drop Whatever Is In My Hand At That Time Cause Of Course I Can't Control The Jerk/Twitch . Plus I Cant Focus… read more
How Do You Guys Find Other People React To Your Seizures
How Do You Guys Find Other People React To Your Seizures
Are they mostly supportive? Do they get freaked out? Lately I've had a bit of a hard time because the people around me while they care for me, and they help me they don't keep it a secret that it sometimes too much for them. It hurts me to know I'm hurting others around me.does anyone else feel this way?
Brain Surgery
Brain Surgery
If You've Received Brain Surgery, How Did It Effect You Both In A Negative & Positive....I Want To Know The Pro & Cons.
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How Do You Feel About Yourself Now That You've Been Diagnosed With Epilepsy ??
How Do You Feel About Yourself Now That You've Been Diagnosed With Epilepsy ??
A MyEpilepsyTeam Member said:
My epilepsy diagnosis was a relief. You know those weird out of body
feelings -once thought I was psychic or crazy..At 17 had my first biggy
-1972-… read more
posted about 18 hours ago
Cheese
Cheese
Has anyone had a seizure or seizure symptoms by eating cheese?
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Working With Epilepsy
Working With Epilepsy
How many of you have managed to maintain your full-time jobs with epilepsy? I feel like I was raised to always work hard and ignore every problem, but it is getting hard to manage. I do not have near the issues some people have and I know it's a struggle. After almost 20 years of this, it's finally starting to take it's toll on me. Any advice in this area?
Any Advice On How To Deal With Being Sick And The Increase On The Intensity Of Seizures And Symptoms As A Trigger?
What Are Symptoms Of Epilepsy Besides Seizures?
What Are Symptoms Of Epilepsy Besides Seizures?
My daughter has recently been diagnosed. Im struggling to find any info on other symptoms, especially that aren't caused by medications. Are seizures the only symptom?
A MyEpilepsyTeam Member said:
Starring, blinking alot, spontaneous things, muscle jerks, many other things
posted 4 days ago
What Should You Do When It’s Not Possible To Take Medication ‘on Time’?
What Should You Do When It’s Not Possible To Take Medication ‘on Time’?
I know you’re meant to take meds at the same time every day.
I take my morning medication at ~10.30am, but I work casual in retail - sometimes I’ll have morning shifts and be in the store in front of customers then.
I usually take my meds before the shift (today, that was ~8am). Is it better taking them then, 2.5hrs early, or afterwards, ~1hr late.
PS. There’s not always a chance for me to duck out to my locker and take them on time, and there’s… read more
What Is The Best Medication To Take While Pregnant?
What Is The Best Medication To Take While Pregnant?
I am trying different medications right now that are safe to take while pregnant, but they haven’t worked well for me and I keep having seizures. Just wondering if any women can tell me medications that worked for them while pregnant?
