Epilepsy

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repeat sentences

Does anyone find the repeat the same sentence more than once or/and fine themselves talking to themselves.

tags: #talking

posted about 9 hours ago by A MyEpilepsyTeam User
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Thanks. My daughter does the repeating quite often. I have wondered if this was caused by her seizures.

posted about 9 hours ago

Do you have unexplainable pins and needles in your hands and feet?

Ive been having that pins and needles feeling in my hands and feet, mostly my left hand, and i dont know why.

posted 1 day ago by A MyEpilepsyTeam User
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I find this happens to me one or two days before rain. Diagnosed with arthritis unfortunately one there is no medication for, live on Deepheat and pain… read more

posted about 9 hours ago

Brain damage

I was under the impression you could not realistically quantify brain damage in a tangible way, especially with epilepsy ?
anyone neurologist explain seizure brain damage ?
I have percieved notions of seizures causing brain damage : urinary incontinence , drooling sometimes , asperating my own spittle ,vomiting at wired times and bloody noses rare but super bad bad
idk if that is from seizures or brain damage from uncontrolled seizures

I was wondering in regards for myself , as I have uncontrolled… read more

edited, originally posted 1 day ago by A MyEpilepsyTeam User
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More than one epileptologist has stated to me that scar tissue builds up on the brain after you’ve had seizures. There is the possibility of seizures… read more

posted about 5 hours ago

epileptogenic dysfunction, kindling effect

Is this epileptogenic dysfunction only something that happens to uncontrolled (intractable ) and/ or ( pseudointractable ) seizure disorders, epilepsies . if it is truly epileptic in nature ?

tags: hippocampal atropy

posted 1 day ago by A MyEpilepsyTeam User

Is a high fat, protein, carb, dairy and sugar diet bad for epileptics?

I have a high metabolism and intense seizures. Downside I live off basically fat, proteins, carbs, sugars and dairy this is due to the caloric intake seems to be what my body needs. I haven't gained weight since high school. I don't seem to gain anything even though what I eat is basically I eat all the stuff people shouldn't and never gain. I also have a high metabolism that probably is needed to ensure this but am I eating what my body truly… read more

posted 1 day ago by A MyEpilepsyTeam User
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i have the keto diet. a high fat low carb diet. no potatoes of any kind, little to no sugar, no gluten, and little to no process foods. i mostly eat… read more

posted about 9 hours ago

Do you miss the person you were before epilepsy?

tags: I was aroun 8 when I had my first seizure. I don't remember much before than. It seems like epilepsy took over my life.

posted 1 day ago by A MyEpilepsyTeam User
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I had my first seizure at 6 or 7. I didn't suffer anymore episodes until the age of 12 or 13. I'm sure I missed not being frightened and worried about… read more

posted about 4 hours ago

Can low blood pressure be a trigger for epilepsy not just ‘nonepileptic seizures’???

My nan and myself both have nocturnal epilepsy. I got diagnoised at 11 and nan at around 80. Im starting to believe my cousin now has it too. Shes 19, she collapsed and her hands were shaking also got a friction burn on her face. She went through a phase of collapsing a few years back and drs said just low blood pressure. However she used to sleep walk like i did but after i would have a seizure (from what were aware of she didnt)… read more

posted 3 days ago by A MyEpilepsyTeam User
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Well my neurologist has always told me that stress is a big trigger for seizures so I have always tried to keep my stress low which in turn keeps my… read more

posted 2 days ago

How long on average to get balanced out on medication

Been on a roller coaster ride diagnosed with epilepsy nov2 this year medication overload trying to balance out. Just want to know how many different meds did you all try and how quick before the correct one and dosage. The second part is how much dose stress and anxiety effect the meds

posted 3 days ago by A MyEpilepsyTeam User
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I've tried everything but one medication & only reason I'm not is because what I'm on is working & I'm allergic to everything but 4 of the… read more

posted 2 days ago

Return of senses

My sense of smell returned about the same time as I got Epilepsy ( I hadn't had a sense of smell for 20 years). Just curious if anyone else has had a similar experience?
(And I wish people would go easy on perfume/cologne haha)

posted 3 days ago by A MyEpilepsyTeam User
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I have an almost non-exsistant sense of smell. Not sure if it’s related to my epilepsy. I’d like to know what others think.

posted about 8 hours ago

Has anyone else with Epilepsy been having a hard time with Depression ?

tags: epilepsy and depression

posted 4 days ago by A MyEpilepsyTeam User
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@A MyEpilepsyTeam User - your B6, and B12 levels in your blood. No one told me when I started my meds that they essentially block the natural intake of… read more

posted 2 days ago
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