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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Sudden Hives- Vimpat
A MyEpilepsyTeam Member asked a question 💭

My son has been in Vimpat for 3 months now. Today out of nowhere he developed itchy bumps all over his hands and feet shortly after his first pill in the morning. The rash went away as the day went on and then came back later tonight after his second dose of Vimpat. I’m concerned because the Vimpat seems to be helping him (no seizures since he’s been on it) but now I’m worried we might have to change meds again. Anyone react to medication like this months after starting it?

posted 7 hours ago
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A MyEpilepsyTeam Member

When i used to take Vimpat, a rash was just one of the many side effects from this drug. This is another one of the those take it or leave it meds. If the med is helping to control his seizures, then… read more

posted 6 hours ago
Have You Ever Gone A While Without Having Seizures And While It’s A Good Thing It Just Feels Weird And Uncomfortable?
A MyEpilepsyTeam Member asked a question 💭
posted 7 hours ago
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A MyEpilepsyTeam Member

Totally normal to feel uncomfortable. When I used to go to court my deepest fears would be that I would have a seizure when I was making an argument before the court. Fortunately that never happened.

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posted 5 hours ago
Fear And Focal Aware Seizures
A MyEpilepsyTeam Member asked a question 💭

During seizures I usually have stroke like symptoms, and every time I get a seizure i feel like im having a stroke. I know that it is a seizure but I can’t stop the fear of having a stroke from coming even though I logically know I’m not having one. Has anyone experienced something like this? I can’t stop the thoughts of stroke from happening

posted 10 hours ago
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A MyEpilepsyTeam Member

Hannabanana Before I knew bout my epilepsy I thought the same. First was I psychic crazy or on the verge of a stroke. That overwhelming feeling we get at first feels like this. I was relieved to know… read more

posted 31 minutes ago
Missed Dosages
A MyEpilepsyTeam Member asked a question 💭

I'm worried I missed 2 days dosage of vimpat (200mg twice a day) because dtr did not call in prescription approval - I know I shouldn't wait last minute to call in refill but I called in on Wed. My last dose of vimpat Fri. nite. I am also on 100mg lamotrogine and 200mg Briviact twice a day and I haven't missed those. The pharmacy finally called today for pickup. I normally take my meds 10 am/pm daily. Should I take a pill tonite to get on regular schedule again or take right away. So far so… read more

posted 11 hours ago
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A MyEpilepsyTeam Member

Take your next scheduled dose if that is what your Dr wants it should say on your prescription.

posted 8 hours ago
Seizures And Weather Conditions
A MyEpilepsyTeam Member asked a question 💭

Hello, my question to you is: Do solar flares, moon phases (full moon, new moon) affect you? They influence me a lot. please be specific and against

posted 18 hours ago
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A MyEpilepsyTeam Member

They do nothing for me. I remain my normal self.

posted 12 hours ago
Guilt
A MyEpilepsyTeam Member asked a question 💭

Has anyone felt a sense of guilt because their child developed seizures?
I remember feeling terribly responsible when my daughter developed seizures. I thought it was my fault somehow.

posted 1 day ago (edited)
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A MyEpilepsyTeam Member

I would say my prayers didn't feel guilty but more so a feeling of knowing they are helpless to do anything other than the norm (MD's, Meds, etc). I would never blame them as it is my life to live.

posted 16 hours ago
Does Anyone Else Notice That Our System Health Care Isn't Much Different Than Foreign. At Least In The Past 10 Yrs?
A MyEpilepsyTeam Member asked a question 💭
posted 1 day ago
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A MyEpilepsyTeam Member

Yep in three days on a plane for another Dr few hundred miles from home.

posted 12 hours ago
MRI With A VNS Implant?
A MyEpilepsyTeam Member asked a question 💭

5 years ago a hospital would not do an MRI because of my VNS (they said it was like a pacemaker… immediate’NO’!) But I am having one done this week, and the form I had to fill out didn’t put ‘neurological devices’ in without the ‘NO’. Has technology gotten better, or am I getting a driver up at 6:30 am only to be turned away at the door? 🤷‍♀️

posted 1 day ago
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
Yep, the RNS is a step up from the VNS. I posted the story on your main page.

posted 1 day ago
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I've Been Experiencing Symptoms OfTodd's Paralysis It's In A Few Case's Of Epilepsy. Has Anyone Heard Or Have This And Could Give Advice
A MyEpilepsyTeam Member asked a question 💭
posted 2 days ago
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A MyEpilepsyTeam Member

When I first had seizures, I had Todd’s paralysis. I would get it on my whole right arm. It would last a day or two.

posted 20 hours ago
Did Epilepsy (for Those Of You Who Were Diagnosed Young) Hamper Your Chances To Graduate High School? Or To Go On To College?
A MyEpilepsyTeam Member asked a question 💭

In high school (1980 - 1984), I had some issues, but I was still very intelligent (though did not know until 2021 that I was suffering from brain damage from the return of my Epilepsy in 1980 to when I was finally diagnosed in treated in 1997 --- this only being possible because research was published in 1995 that proved that Epileptic Partial Seizures existed. Thus some of the things that so many more older epileptics than me were being judged for before 1995 -- such as daydreaming, bad… read more

posted 2 days ago
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A MyEpilepsyTeam Member

IT certainly did. Had many issues even once I got things straightened out enough to be mainstreamed back into the local school. Needed tutors for most of my classes, got held back 2 times. I did… read more

posted 16 hours ago
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