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So I'm currently on some different medications. Two of which, the Zonisamide and Depakote, I've been on for a couple years but the effectiveness of the medication has worn off and I've started having seizures again every week to every month. Just recently my neurologist has wanted to switch me to Xcopri and has talked about RNS while taking this medication but this medication isn't covered by my insurance at all. I've been trying to fill the prescription and Everytime I try, I get an error… read more
No, I had no association between seizures and the COVID vaccine. But that all depends upon an individual’s immune system response.
Just started the epilepsy journey this March, I’m 53. My Neuro wants me to do the inpatient 3-5 day EEG, which is fine. I’m on 1500 mg keppra 2xday, and 600mg gabapentin 3xday. I have what I’d call focal aware seizures that I get stuck in a state of staring and then my left shoulder and abdominal muscles shake / contract and release rapidly, lasting 1-3 minutes. Sometimes on bad days it can last up to 10 min. That’s rare. I have days when I have clusters of them, some days with none. I’ve only… read more
Sounds very frustrating and scary. Personally I've had muscle contractions during a tonic clonic, but in tonic clonic you are never conscious so I've never seen it myself which I guess is the only… read more
When I was diagnosed last year, my employer was 100% onsite no matter what - it was a small building so at least if I had a seizure someone might see me. At my new job that I started yesterday, it's hybrid, which I love, but I learned during my first day of onboarding that I will only see people in-person once a week since everyone gets to make their own schedule. My boss is 100% remote and lives in another state. The office is downtown in a skyscraper, but I was really surprised how few… read more
And once I knew what had happened, I explained about the seizure to the other co-worker (she was the one who went to our boss to report me for harassment), she explained that I had told her (who was… read more
Does anyone get sick from their medications? I take 450mg trokendi pm, 300mg xcopri pm, and 300mg vimpat pm. I also take 200mg vimpat am, i used to take 300mg, but i ran out for two weeks and got sick everytime i tried to go back upso i remained at 200mg. Along with 100mg zoloft and a birth control pill. I got sock several times while trying to go back up on the vimpat, and afterwards. We know that was the cause, but now it hits me randomly, almost once or even twice every month, that may be a… read more
I have had certain medications in the past that caused me to be sick to my stomach. And if I ever forget to eat something before taking my Metformin (for diabetes), then I always remember how it felt… read more
I haven't had it. But I'm only on a low dosage. I did get it when I was on a higher dosage of Tegretol.
Mine are very different it last 1 hour and it hurt my body my back hurt there are not same surzuies am get older each day get scare but am try be positive right am hurt I fall yesterday body… read more
anyone finds it difficult to have a relationship or marriage due to triggers or even being too emotional to the point where you just give up …
I was married in my early stages of epilepsy and I do believe that it played a major factor in my divorce. I never reached out and tried to start another relationship but I would recommend to not… read more
Anyone else avoids anything to do with Grapefruit or other kinds of food or drink …
i know some avoid Alcohol , energy drinks and maybe caffeine …. but am curious what foods or drinks triggers your seizures
I seem to have different types of epilepsy? Is that possible or am I not remembering them accurately?
It's possible I have 2 types of epilepsy
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