Epilepsy

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0 medium

hi I take lamictal and epilem my question I have just registered with a new gp who has taken me of my pain meds

She said they stop my epilepsy meds working but I have been taking them for a long time with no problems has anyone else come across this?

posted about 10 hours ago
5 medium

Food Diet?

Did anyone have to change thier food diet when they had seizure like maybe the stressful kind of srpeizure if yes how did u find out out what kind of foid to eat and to advoid eating?

posted 1 day ago
A MyEpilepsyTeam Member said:

well i have seizures cause by food. its called celiac disease. if i have wheat rye or barley, it will attack the weakest link. thats the brain for me. i… read more

posted about 23 hours ago
1 medium

aura?

Would deja vu count as an aura? i remember i use to get that alot, before i was diagnosed and started medication. I was thinking that could be my aura my like warning to myself that i am going to have a seizure. Does anyone else get that before a seizure?

posted 1 day ago
A MyEpilepsyTeam Member said:

I usually feel deja vu right before i get a seizure, it lets me know i'm going to have a seizure! When im feeling that aura i usually stare off in a… read more

posted about 11 hours ago
5 medium

Anxiety when driving

Is anxiety something thst comes with seizures?

posted 2 days ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member
How many meds do you take? I take three different ones and unfortunately they can all cause depression or anxiety. I was not… read more

posted about 2 hours ago
2 medium

anxiety

This may not be an epilepsy-related question but I thought I would ask. I don't have a firm grasp on my anxiety and sometimes it controls me. What are some strategies that some of you use?

posted 2 days ago
A MyEpilepsyTeam Member said:

Although I've had the surgery, my mind still can gather the stress I had for the 45 years of seizures. My thing for the last 2.5 years has been hiking… read more

posted about 12 hours ago
4 medium

Is the RNS available in England??

Im not having much luck with meds and have looked into the RNS but cannot tell if it is available in England?!

posted 3 days ago
A MyEpilepsyTeam Member said:

I am going to see if I can get the vns also x

posted 1 day ago
9 medium

Thyroid and hormones and seizures

Has anyone been diagnosed with seizure disorder that also has a thyroid issue and is a female and also has a major hormonal issue that affects her with having seizures?

posted 4 days ago
A MyEpilepsyTeam Member said:

Certainly we need doctors to oversee our medical conditions. Keep in mind though that doctors prescribe medications and refer some patients to surgeons.… read more

posted 3 days ago
6 medium

Just really do need to know what is going on!!

I myself have a question I have 2 different types of seizures one is the grandmal seizures which luckily I have not have had in quite a while now but in the past few years after being diagnosed with the petit absent seizure the blackouts I have seems to just continue to get worse about 2 weeks ago I had a little over 45 within a week and 25 of them were just in one day so and since benig taken off the medication I was on my nurologist put me on something else and… read more

posted 4 days ago
A MyEpilepsyTeam Member said:

Marlene I agree with you on I would see another neurology DeAnne it’s your life there dealing with

posted about 13 hours ago
1 medium

Do seizures ever bring on something positive for anyone?

I know we all want to be seizure free, and I know seizures are hard in one way or another for everybody. But, does anybody feel something positive after the aftermath of their seizure period. I suffer from the Epilepsy/Depression situation. Where if I treat seizures, I provoke depression, and if I treat depression I provoke seizures. Therefore even if it costs me injuries, 2 days recovery time after seizures, I often feel like during that seizure period,… read more

posted 4 days ago
A MyEpilepsyTeam Member said:

I totally agree that seizures teach us how to deal with them. We then know
what to expect and how we'll feel after one.We have a different outlook on
read more

posted 1 day ago