Epilepsy

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Jock Itch

Jock Itch

A bit of an embarrassing question this but my epilepsy developed because of an autoimmune disorder and the steroids I'm on give me jock itch (foot fungus) from time to time. Has anyone else experienced this?

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A MyEpilepsyTeam Member said:

Christian is most likely correct. ;)

posted about 1 hour ago
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Do you let your boss/supervisor know you have epilepsy?

Do you let your boss/supervisor know you have epilepsy?

Sometimes when I'm at work I have concentration problems/dizziness. I slow down, but I don't want my boss to think that I'm lazy or don't want to do the job. The job is very demanding, & I have to go at a fast pace. I'm thinking of letting my supervisor know, but I'm afraid of getting fired.

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A MyEpilepsyTeam Member said:

I really didn't have a choice since my first witnessed seizure was on the job. I believe I had had probably at least 2 prior to that but put it off to… read more

posted about 11 hours ago
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Has anyone been to the Mayo Clinic?

Has anyone been to the Mayo Clinic?

What was your experience? Was it worth it?

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A MyEpilepsyTeam Member said:

My sister has MS and she’s gone to the Mayo Clinic several times. Her experiences were all excellent.

posted 4 minutes ago
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Toprimate dection limit

Toprimate dection limit

Do you understand toprimate levels my level is 8.5 but it says dection is 1.

What does that mean? I am on toprimate XR 300mg daily.

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I'm not sure what just happened to me.

I'm not sure what just happened to me.

I was leaving the rest room and started feeling nauseous. I started loosing my balance to the point that I ran into a wall. When i finally made it to the bed my ears rang for a few seconds then stopped. I don't know if it was a seizure or something else. It only last about a minute.

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A MyEpilepsyTeam Member said:

Ashley it happens to me refularly. I fall, lose balance etc. One night i went into the bathroom and all the sudden i had no idea where i was or how to… read more

posted 1 day ago
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What do you do when you have a cold?

What do you do when you have a cold?

Hey guys. So we all know we can't take anti-histamines because it can trigger seizures. I am now on day 4 of quite possibly the worst cold of my life and it's driving me nuts. My face won't stop leaking!!! How does the body produce so much goo so quickly?! Best my doc says I can take is Pseudoephedrine and an anti-inflammatory - which only (very slightly) helps, but wears off so quickly. I'm so miserable, I've hardly slept, my nose is raw and my head is in agony from the… read more

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A MyEpilepsyTeam Member said:

Thanks guys! Yup, Vicks has definitely been invited to the party and I've been living on warm honey and lemon juice tea to help the throat (my… read more

posted about 9 hours ago
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Breaking Teeth During Nocturnal Seizure

Breaking Teeth During Nocturnal Seizure

Still have 12 days to meet back with the neurologist that saw me in the ER where I was told about the focal onset I was experiencing. Have not had an EEG yet, but did receive ct scan, mri and cta. I was released last Tuesday after a 24 stay. Rx for kolonopin and told to make friends with tylenol and motrin.

3 days later( Friday), I was asleep and experienced what I believe to be a nocturnal one, but may have just been a dream. I knew I was seizing in my sleep, in started… read more

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A MyEpilepsyTeam Member said:

Heather, Sending Thoughts, Hugs & Prayers that you get to feeling better. Maybe you could touch base with your doctor or his nurse & let them… read more

posted 3 days ago
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Do others experience the amount of seizures increases closer to their menstral cycles?

Do others experience the amount of seizures increases closer to their menstral cycles?

It seems as though I am getting more seizures and disconnection from my body to brain during week three approaching my period. Does anybody experience this also and is there a way to monitor/track hormone levels?

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A MyEpilepsyTeam Member said:

Yes, i been making seizure logs and this month seizure activity actually parallel to last month. Mostly around my period. But also its the same after… read more

posted 1 day ago
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Looking for helpful advice for looking after a new born baby when having Epilepsy

Looking for helpful advice for looking after a new born baby when having Epilepsy

Hello ladies,
With my epilepsy I get a blackout every 5-6 weeks
I'm now pregnant and I'm expecting a baby nxt November.
I'm wondering what did any of ye other ladies do in 1st few years of raising a small child?
Any safety precaution I can take??
Any advice you could give me would be appreciated.
Kind regards,
Carmel

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A MyEpilepsyTeam Member said:

Just rest when you can don’t over do the house work save your energy to taking care of yourself and the baby, keep hydrated anytime you are at rest… read more

posted 2 days ago
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Back Pain

Back Pain

Does anyone suffer with back pain since starting with epilepsy?

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A MyEpilepsyTeam Member said:

Aldults can be so mean and very wrong.but don’t let that stop you ,make it drive you to make a goal for your life and work hard toward it. Don’t let… read more

posted about 1 hour ago
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