While on medication I feel like my finger still twitches and in random places it twitches but not as bad when I first got diagnosed. Anyone with JME ever get off there meds?? Does anyone else feel this way also?
I'm on 4 meds of different strengths Has anyone noticed if your seizures ( of whatever type) have become more frequent when they've added in another medication It says this in one of the PILs in a couple f boxes as a possible side effect
I know that i do knowing that i am not "normal" and i cant work or have any real leaps in life because of my epilepsy brings me to some bad places the "might as well kill myself." places i just wanted to ask if anyone else feels like a low value person and a waste of space with no direction and or purpose.
I will be going for an assessment for surgery in 2 weeks. All I know about the surgery my neurologist is suggesting is the awake surgery. What type has other's had and the results. I doubt I would agree to VNS ?.
I am new to this website.
Does anyone have recommendations for OBGYN in NYC?
I am hoping to start trying for a baby in the next few years and want to find an OBGYN that is knowledgable in area of epilepsy and pregnancy. Also if anyone has suggestions for neurologists who focus on women, pregnancy and epilepsy that would be amazing.
For the past four days, I’ve been dealing with myoclonic seizures but in bursts. So, 1 minute to 2 minutes and 30 seconds of seizing. A short break, maybe 30 seconds to a minute and then back to seizing. Usually, when I start having myos, I go into a grand mal. But it’s been four days of myos on and off. I’m not sure if it’s something different, something anyone else experiences or just my regular seizures?
Does anyone else feel drastic changes as they go through the day? Like in mood or in physical changes? I know some can be directly connected to medication, but just in general. Does anyone feel as though epilepsy brings about drastic physical, emotional, or mental changes? And how do you cope or manage them?