Epilepsy

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Have steriods helped your epilepsy?

Have steriods helped your epilepsy?

My doctor wants me to try steroids and I dont like them but my seizures have been out of control the last 6 weeks so wondering if I should try steroids. Have they ever helped you?

Does anyone have any personal experience with transient epileptic amnesia after brain surgery?

Does anyone have any personal experience with transient epileptic amnesia after brain surgery?

A MyEpilepsyTeam Member said:

Well my 2 surgeries were 14 yes ago so I don't remember much, get it amnesia(lol).
But yeah I have it from time to time.

posted about 6 hours ago

Has anyone with a seizure history had a colonoscopy? Please need some advice

Has anyone with a seizure history had a colonoscopy? Please need some advice

Hi everyone would really appreciate any advice on my situation,

My mother had a brain tumor removal 7 years ago and one year after that she had her first seizure. She’s had them on off after that for a while, but they stopped for about the past two years (knock on wood).
Her seizures would be triggered by fatigue or lack of food/glucose.
Has anyone had this similar experience and had a colonoscopy done?
I’m pretty worried about the prep… read more

A MyEpilepsyTeam Member said:

Great, thank you! That’s encouraging to hear.

posted about 12 hours ago

Has anyone used ACIDOPHILUS

Has anyone used ACIDOPHILUS

I recently Learned ACIDOPHILUS is a Good Source used to Help Fight seizures, has anyone ever Used this Vitamin??

A MyEpilepsyTeam Member said:

Hi @A MyEpilepsyTeam Member,

This is an interesting question. This probiotic bacteria is used for a few different applications including digestion &… read more

posted about 23 hours ago

Can a facial tic be a form of epilepsy?

Can a facial tic be a form of epilepsy?

I've have generalized seizures with JAS (I think that's what the doctor called it) since I was 13- I'm 44 now with 3 kids. My youngest son has hand tics but the doctor said that's normal but my oldest has a facial tic that I'm quite concern about. He is 27 now and I can only suggest the doctor. Should I be nagging for a neurologist?

A MyEpilepsyTeam Member said:

The doctor can tell the difference best of all A simple EEG or other test. Epilepsy shows a change in brain waves a non epileptic incident doesn't.

posted 1 day ago

Mixing up words

Mixing up words

I'm a retired speech & language therapist ( I worked for several years with patients who had neurological conditions) I'm on 4 different meds & last October they introduced modified release Epilim When I have my clusters of partials I always have communication problems but I'm now finding some phrases are altered ev ' switch on my tablet " becomes twitch on my sablet " : " can you make dinner" becomes' Dan you make kinner' The sounds are correct but placed on the wrong words I'm aware… read more

A MyEpilepsyTeam Member said:

I have always done that. When I get nervous l don't make sense when I talk

posted about 20 hours ago

Cognitive problems before and/or after brain surgery for epilepsy

Cognitive problems before and/or after brain surgery for epilepsy

I am possibly considering brain surgery for my seizures. I've seen people on here that mention they have cognitive issues, I've also noticed that many of these same people have also had brain surgery. For those of you that have had brain surgery, did your cognitive issues happen before or after surgery? As in did you go into surgery and come out the same person? Did you go into surgery and come out with some cognitive losses? Did you have… read more

A MyEpilepsyTeam Member said:

If it is the right temporal lobe then you might have short term memory loss, but it should not be to bad on things that you have grown up with. The only… read more

edited, originally posted about 4 hours ago

Has anyone been diagnosed with being heterozygous for the C677T polymorphism in the MTHFR gene?

Has anyone been diagnosed with being heterozygous for the C677T polymorphism in the MTHFR gene?

A MyEpilepsyTeam Member said:

no but i researched it and found the meanings. heterozygous means having two different alleles of a particular gene or genes. polymorphism means the… read more

posted 1 day ago

Does anyone have trouble with their ears popping

Does anyone have trouble with their ears popping

My ears will just popp when I'm watching TV an it feels like I have a serious problem with them but at the doctor they say nothing is wrong

A MyEpilepsyTeam Member said:

The only time my ears pop, is during takeoff in a jumbo jet and when I go down into a declining road deep into the valley in a car.

posted 2 days ago
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