Epilepsy
Questions + Answers
Whose had a VNS implanted and then upgraded to the new heartrate monitored VNS? What are the pros and cons of that upgrade?
Whose had a VNS implanted and then upgraded to the new heartrate monitored VNS? What are the pros and cons of that upgrade?
I got a VNS implanted. It's now 19 years old. I've been tested and the results say, I qualify for the newer VNS that's triggered by ones heartrate. Therefore I need people's advice and opinions to see if this is worth doing, by knowing some of other people's experiences.
Im looking for recommendations on medication that doesn’t cause weight gain and isn’t expensive.
Im looking for recommendations on medication that doesn’t cause weight gain and isn’t expensive.
My current medication is $800 per month. I’m covered up to 80% thankfully but even $150 is expensive for a single mom.
Do any of you feel that you have been taken advantage of?
Do any of you feel that you have been taken advantage of?
Lots of us have to stay under controll of others while some dont out of fear or need. Some of us refuse and go about on our own. Either way we all struggle either financially or body function or how we feel. How do all of you feel about your needs and has anyone ever known and taken advantage of you? If not have you ever fealt sheltered and how do you stay free even on your worst days.
Does epilepsy and mental disorders such as bipolar, scizophania, depression, anxiety, etc. have a connection?
Does epilepsy and mental disorders such as bipolar, scizophania, depression, anxiety, etc. have a connection?
I have 3 different types of seizures, schizoaffective disorder depressive type, depression, social anxiety, and more. I was wondering if there was anyone else out there in a similar situation as me or am I just a unique falling apart person.
EEG and Results?
EEG and Results?
I recently had a 24 hour ambulatory EEG and my doctor said everything looked great. Then the actual report was released to me online. Does anyone know what this means: EEG Classification-Abnormal III
It doesnt sound ‘great’. I’ve never heard of this before so if anyone has insight it would be much appreciated!
Pregabalin
Pregabalin
Has anyone been on pregabalin? I have a bad feeling about it. As I’ve already tired gabapentin before and it didn’t work. What’s your experience with it
Alcohol and Epilepsy?
Alcohol and Epilepsy?
I am 22 years old, I just graduated from college. I am young and I like to go out with my friends and family and drink with them. I know that a lot, probably the majority, of the people on this will respond telling me not to drink any alcohol because it is dangerous. However, at my age and my social life, it just doesn't seem reasonable that I can not get drunk and have fun with my friends and have fun in my 20's like everyone else can.
Anyway, the day after drinking though is when I have… read more
Side effects
Side effects
They have my 19 yo son on 5 different medications & he is still not completely seizure free. My son recently had Onfi added to his med regime, which elicited the most serious side effects thus far with personality changes, he has become very angry and is experiencing depression. This is not my son. I am very confused, worried, and frustrated. I am seeking to know if others will similar presentations of their epilepsy have had similar experiences? That you for letting me join this group. I am… read more
Hi @A MyEpilepsyTeam Member . It is much harder dealing with Epilepsy at a later age, compared to being born or being diagnosed at a early age.
When… read more
Blackouts
Blackouts
I noticed lately lots of people on the forum are having lots of blackouts as well as seizures. Is there a common link here or medication?
That is correct. An epileptic seizure causes increased prolactin levels in the blood and a misfire of electrical activity in the brain. That’s why you… read more
