hi guys ,
a strange question here . just started noticing when I bend forward a lot very quickly my head spins and my vision and focus goes very fuzzy. Finding it happening most when I'm cleaning the house , especially hovering as I'm bending down quickly a lot. can anyone relate or have any subjection of ways to cope with it ? its putting up off do physical activity
I live in fl, i really need to know if anyone else out there wakes up gasping for air like they're drowning in a pool of their own sweat in a 60 degree room. I can never be temperature comfortable, either hot or cold no in between, and when i sleep i feel like i wake up drowning in my own sweat, not from any seizure activity but temperature body regulation alone. I NEED to know if this happens to anyone else out there with pur problems
Anyone get pregnancy and take multiple meds. I am so happy to be finally pregnant (11 weeks tomorrow). I'm on keppra and clobazam and can't find a ton of history on these meds. Would love to hear ppls stories!
I am in consant fear of when i will have a seizure. I dont know when it could happen. Its affecting my everyday life always trying not to think about it too. Always playing on my mind.
I’ve ready both Smartwatches “ Apple Watch series 6 inspyre and embrace 2 both detect seizures when having one, has anyone had any experience using either one of these wearable devices and if so what kind of progress has it been for you when using these devices for your seizures?
There are books like A Mind Unraveled that give perspective from someone with Epilepsy from when he first was having spells, when he was told it was seizures, etc.
What we need is the best sources (which he did not have then) that can explain in Plain English the realities of Epilepsy (compared to all of the myths that the media have been telling them for at least the last 60 years). We need a Epilepsy 101… read more
I have a 23 year old daughter who was diagnosed with JME in her middle school year. She has an engineering degree and working full time. Since March 2020, she has been working from home and I am feeling more and more helpless to see her not motivated to wake up, take care of herself, complete her days work, even her 12 year long journey of classical dance is suffering because of her lack of motivation. Her seizures have been in control. But wanted suggestions on how… read more
I believe that I have two types of epilepsy. One is definitely Myoclonic but I am having a lot of trouble trying to determine exactly what my second type is called.
With the second type, they happen late at nice when I'm awake & on the internet on my laptop. I will be sitting on my bed with one leg over the side. I blackout and apparently fall across my bed (because that's where I find myself later) and I do not regain consciousness for 3 to 4 hours.
Sometimes when I wake in… read more