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Epilepsy

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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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My Son Has Acquired Brain Injury. His Seizures Are Brief But For The Rest Of The Day His Heart Rate Is Elevated. How To Help.

My Son Has Acquired Brain Injury. His Seizures Are Brief But For The Rest Of The Day His Heart Rate Is Elevated. How To Help.

Joseph is 25. Paralysed. Tracheostomy. Ventilated. Non verbal.

A MyEpilepsyTeam Member said:

Thanks for the hug lovely people. Apologies in advance if I don’t always respond. Joseph ( and his disabled brother Will) keep me busy! X

posted about 1 hour ago

Fear Your Next Seizure

Fear Your Next Seizure

If you have seizures on a regular basis do you fear the next one. I make notes on my calender when I have bad seizures and they are regular or after so many days. So when I look at the calender I can almost predict when I am due/going to have the next seizure. It frightens me and my wife.

A MyEpilepsyTeam Member said:

Mine do not have a "pattern" but moreso triggers that set them off in a sense. People need to still tell me I have seizures when they are visible. And… read more

posted about 7 hours ago

Does Anyone Know Where I Can Get A Free Medical Bracelet?

Does Anyone Know Where I Can Get A Free Medical Bracelet?

I have epilepsy and sometimes I try to walk my dog by myself and people truly don't know what I have meaning epilepsy and then they call 911 when I go into a seizure and then don't know what's happening so that's why I wonder if anyone knows where to get a bracelet for free cause I don't have the funds to buy one. Also I already asked my doctor and he said purchase one online, like I told them I don't have the funds to buy one and I'm living off my fiancee… read more

A MyEpilepsyTeam Member said:

It use to be easy to find cheap medical bracelets or necklaces at the pharmacy.

posted 2 days ago

Lamictal Appetite

Lamictal Appetite

Hi,
My Dr. has been gradually increasing my dose of Lamictal. I am currently on 250mg in the morning and 250 at night so 500mg total a day. Has anyone experience a loss of appetite while being on this dose or close to this dose?

A MyEpilepsyTeam Member said:

Unfortunately I've done the opposite & between it ,Keppra , clobazam && lockdown I've put weight on . Interestingly the only med I've lost… read more

posted 3 days ago

Why Do I Beat People Up That Are Trying To Help Me When I'm Having Granmal Seizures, I'm Not Even A Violent Person??

Why Do I Beat People Up That Are Trying To Help Me When I'm Having Granmal Seizures, I'm Not Even A Violent Person??

Ive peed my pants , ive taken my clothes off,and done a whole bunch of really weird and strange stuff while having seizures. I got my ass whooped by some emts that thought i was faking until i stopped breathing. Ive been on a ventilator for 11 days before because of my epilepsy situation and it's sketchy cause they just started like 7 years ago, and its been like 6 months on 3000 mg of levetiracetamread more

A MyEpilepsyTeam Member said:

Our seizures can make us do many odd and weird things. It’s where the seizures are active, in the brain . Someone may be aggressive during the seizure.… read more

posted 2 days ago

Myths And False Info About Epilepsy/seizures

Myths And False Info About Epilepsy/seizures

i have a youtube channel and i wanna know the myths, false info, and outright lies about epilepsy and seizures. example i always here is... can you move your seizures to after work/brake time? false my seizures are at random.

A MyEpilepsyTeam Member said:

Keri it’s hard for them and it’s sad my mum thought I was having a nervous breakdown before I was diagnosed I didn’t know what was wrong I knew… read more

posted 1 day ago

Dilantin

Dilantin

Why does Dilantin cause periodontitis?

A MyEpilepsyTeam Member said:

Unfortunately that’s just a side affect of it, even though you don’t hear that. My gums were always red and sensitive. Also, it made my pimples red.

posted 1 day ago

Seizures Well Sleeping. What Do You Usually Do After?

Seizures Well Sleeping. What Do You Usually Do After?

I had my first seizure last night in over a year. Mine always happen well sleeping so im usually scared when they do happen. My question is, how common are seizures during sleep and what do you usually do after? Sleep the next day? Talk to your doctor? Visit the hospital?

A MyEpilepsyTeam Member said:

It’s very common to have seizures in your sleep. When I was little, I would wet my bed after having one, but they never woke me up. There have been… read more

posted 1 day ago
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Frequency Of Urination

Frequency Of Urination

Does anyone take diazepam to control their seizures but find they have bladder problems and feel they need to go for a pee frequently?

A MyEpilepsyTeam Member said:

I take epilim for my seizures

posted 4 days ago

Once You Get The COVID-19 Vaccine, Have You Seen A Increase In Auras The Next Day Or Too?

Once You Get The COVID-19 Vaccine, Have You Seen A Increase In Auras The Next Day Or Too?

Hey guys,

I just got the COVID-19 vaccine Saturday and found Sunday and today I have been having auras. I was wondering for the people who have gotten the COVID-19 vaccine, do you see an up tick in auras/seizure the next couple of days?

A MyEpilepsyTeam Member said:

I got my second dose of the vaccine on April 1st and have not had any up ticks in auras or sezuires yet

posted 4 days ago
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