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Epilepsy

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How Many Of You Have Reached Out To The Epilepsy Foundation (or The Like) And Ask Them To Spread The Word About This Site?

How Many Of You Have Reached Out To The Epilepsy Foundation (or The Like) And Ask Them To Spread The Word About This Site?

Please tell me that I am not the only one urging them to tell everyone with Epilepsy/Seizure Disorder about this amazing site.

It has changed my life to come here and make friends who know exactly what it is like to have a seizure. Don't you want everyone to also receive this gift?

A MyEpilepsyTeam Member said:

For me covid-19 led me to this site. I was in lockdown after all. So no going out. A couple of my best friends are long distance friends I met on the… read more

posted 43 minutes ago

Memory Loss: Do You Experience The Following:...

Memory Loss: Do You Experience The Following:...

1. Does the memory loss disrupt daily living: driving, balancing a checkbook, etc

2. How often do memory lapses occur: Regularly forget your assigned parking spot, miss appointments over and over.

3.What’s being forgotten: Forgetting whole or some details of conversations, getting the name of a close friend or relative, frequently repeating yourself or asking the same questions in the same conversation.

4. Confusion: Get lost in a familiar place or put… read more

A MyEpilepsyTeam Member said:

Actually some in EVERYTHING affects me daily and its embarrassing

posted 2 minutes ago

I Cant Work At My Job Anymore Because Of My Seizures. However I Need To Work. Any Ideas?

I Cant Work At My Job Anymore Because Of My Seizures. However I Need To Work. Any Ideas?

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member you can still be a school photographer, its just you need a guy (i call people, guys) to keep an eye on you. or go be a wedding… read more

posted about 13 hours ago

Live Donation What Epileptics Can Do. What They Are Limited To

Live Donation What Epileptics Can Do. What They Are Limited To

I was planning on becoming a live organ donor. That is until I was told that those who have epilepsy can't. My question is-if you have partial epilepsy, is that still the case?

A MyEpilepsyTeam Member said:

I suppose that is a valid point. Though I was speaking strictly of blood donation.

posted 2 days ago

What Type Of Cbd To Try?

What Type Of Cbd To Try?

Please inform me
People with epilepsy need mainly cbd or the aswell?

I’m thinking cbd isolate is better because I feel I might have anxiety induced seizures too

Where do I buy good quality cbd
And what’s been successful for you??

A MyEpilepsyTeam Member said:

I dont take CBD either

posted about 17 hours ago

I Have Questions About About If Anyone Has Had Eltrodrodes Put In The Inside Of Brain To See Where Seizures Come From?

I Have Questions About About If Anyone Has Had Eltrodrodes Put In The Inside Of Brain To See Where Seizures Come From?

I heard back from the mayo clinic doctor who said that they want to put electrodes in my brain to see if the seizures are coming from the right frontal lobe but said they must cut my head open to do that. The thing that I'm confused about is that I was told I'm having seizures from the left and right side of my brain has anyone else had this happen or is it possible for this to be from that side… read more

A MyEpilepsyTeam Member said:

Multiple Dr.s will be visiting You when You are having this test-the interns at the hospital will be there also-This is a huge advantage/possibility for… read more

posted about 10 hours ago

Why Is It That I Have An Episode Even Though I'm Faithfully Taking My Medication

Why Is It That I Have An Episode Even Though I'm Faithfully Taking My Medication

I have partial epilepsy. I've been taking Keppra twice a day for over a year. Lately I've been having these episodes. I may become completely disoriented for a long time, I can randomly have my whole side go numb or limp, or my whole side can randomly twitch. I'm wondering why this may be.

A MyEpilepsyTeam Member said:

Don’t feel bad Kitty . I also will have seizures out of the blue , without a reason.
I can’t even explain why I have them.

Now , if I’m having seizures… read more

posted 4 days ago

I Had Two Seizures And Not Knowing What Had Happened To Me And It Scares Me Knowing That It Might Kill Me

I Had Two Seizures And Not Knowing What Had Happened To Me And It Scares Me Knowing That It Might Kill Me

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member remember there is a lot of categorys of seizures. only a few can kill you (mostly grand mals). and if you (or someone that you… read more

posted 4 days ago

Ive Been Having Episodes Where I Have Trouble Breathing

Ive Been Having Episodes Where I Have Trouble Breathing

For a while now, not very often, it feel like my throat almost completely closes and my dad has to give me a form of cpr. My parents are thinking that i am having extreme allergic reactions from my summer allergies, aka pollen, or that i may even have asthma. I was just curious if any of guys have had something like this and it could be part of my epilepsy, i just dont want to worry about anything new.

A MyEpilepsyTeam Member said:

It sounds like your having a seizure and during the seizure you stop breathing, for what ever the reason is.

posted 4 days ago

Does Anyone Know Why Depakote Levels Would Be Low If Taking Double The Normal Dose?

Does Anyone Know Why Depakote Levels Would Be Low If Taking Double The Normal Dose?

My son is taking double the normal dose of depakote since Feb. 29 and normal dose of lamactal. His lab came back in the 40s! I was expecting it to be at the toxic level! He is having severe shakiness, moodiness, fatigue, and sleeping alot. But how could it possibly drop low again taking double? Ive been physically giving it to him to make sure there are no missed doses. This happen to anyone else and did u find out what caused it… read more

A MyEpilepsyTeam Member said:

If he’s taking another medication with his Depakote, it is possible that the Lamictal reducing the effects of the Depakote. That can happen. That’s also… read more

posted 5 days ago
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