My daughter Riley is 15 she has poorly controlled JME (takes Keppra, Onfi currently) in August she had a VNS implanted. Since then we have been dealing with medically unexplained syncope. We have looked at everything! No heart issues (no bradycardia with events). They happen whether the device is off or on. This is a daily occurrence and she can be out for anywhere from 10 minutes to 5 hours.
Doc is leaning towards some type of conversion co-morbidity. Anyone else have any similar experiences? I… read more
Ok here goes,a year ago I was put on a drug called zonegran 100mg day and it was helping.
I’m also on 300 lamotrogen 2xday,1500 keppra 2xday 60 clobazam 2xday,,
Anyway last appointment I had with neurologist I got into an valid argument with her so asked have another neurologist.
Been waiting ages,I’ve always been junk food junky,always a size 8 my whole life.
I’m now a size 0 and my doctor says rapid weight loss is a side effect,no idea what she done time I got home neurologist department left a… read more
How does your wife/husband/partner cope with you having epilepsy and seizures? My wife still has flashbacks to me taking ill and when she hears a bang in the house she thinks I have collapsed having a seizure. She says she is living her life on edge. Is anyone else's partner experiencing the same thing?
Has anyone gone through this procedure that can tell me a little bit of info on how much pain and sickness you had after the procedure while waiting for the seizure? And afterwards when you are discharged and go home? Can people stay in the room with you like I could at the EMU? Hard to find info from a patients point of view. Thanks!
I work at a Harley Davidson and I had my first major seizure at work. I remember eating lunch and then next thing I know is that I'm being loaded into the ambulance.
Apparently, I bust out into maniacal laughter then went into a normal seizure.. I hate being home so much. I love my job! And ive been out for a full week.. is there any way to expedite myself going back to work? This medication is NOT helping me at all.. I still have seizures but now I'm in a hell of a lotta pain, dizzy,… read more
I was wondering if anyone suffers from bad nausea from their meds. I get nauseated when the temperature is around 30C.
What does a "rare epilepform spike mean?
I am sorry I am having difficulty spelling today.