Connect with others who understand.

sign up log in
About MyEpilepsyTeam

Epilepsy

Questions + Answers

Don't see your question? ask question
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

What Does It Feel Like To Fall Unconscious Or Pass Out?

What Does It Feel Like To Fall Unconscious Or Pass Out?

Is it like falling asleep or how you feel when you go under anesthesia or does it feel different?

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member Nicely explained. I was going to asked you about "lost time", but I cannot find a source that describes this effect during a seizure. I might have a false memory of… read more

posted less than a minute ago

Restless Leg Syndrome

Restless Leg Syndrome

Ive been experiencing rls for around a week now around 5 minutes after i go to bed for the night. Nothing i can think of has changed in my routine, diet, or meds. Anyone else experience this?

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member I have experienced it. And many years ago my neurologist put me on a medication (duel role medication that was an anticonvulsant and also in stopping the sleep interruptions… read more

posted about 23 hours ago

Who Is Experienced With The Various Free Online Meetings?

Who Is Experienced With The Various Free Online Meetings?

I am experienced with ZOOM, and I have experience with Skype (though a lot of the details are deep in memory with only some coming back when in the intro meeting with Bryan Martin)
I have signed up on Webex, but it does not provide all of the details of the features available in a free meeting. Is anyone experienced with the free meeting version there? I am seeking to find out if the language translator feature that is definitely available in the Standard and Pro versions of meetings is… read more

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member While I am glad that you at least press your livelife alarm, I am sorry to hear about the beating that the seizures give you.

posted about 6 hours ago

Taking Medicine

Taking Medicine

Im not sure if i asked this before. This is hard to explain but if you take lamictal does it make your hand and body feel like its shaking on the inside?

A MyEpilepsyTeam Member said:

Leslie, yes I answered yesterday. Lamictal doesn't make my body shake however, I have accidently taken an extra pill at the same time which made my legs give out and I couldn't walk correctly until… read more

posted about 12 hours ago

Epilepsy And Midozalam

Epilepsy And Midozalam

I get Keppra 500 mg from my neurologist and midozolam 7,5 mg.
Does anyone else have experience using these medications?
Is midozolam dangerous?

A MyEpilepsyTeam Member said:

I am also on keppra I take 500 mg 2 x a day, I also am on gabapentin 300 mg 3x a day

posted 1 day ago

Can Anyone Share Your Experience After A Grand Mal Seizure And If You Have Injured Yourself?

Can Anyone Share Your Experience After A Grand Mal Seizure And If You Have Injured Yourself?

For those of you that have seizures once a year or longer, what meds and dosage are you on and how much do you take daily? I have grand mal seizures which my seizures occur about every 3 years. However, when I have one I really hurt myself. I've thrown my shoulders out of socket which needed surgery, bite my tough, etc. I've been on lamictal 100 mg/morning and 100 mg at night for years and seems to be the best med for me. Any feedback would be appreciated.

A MyEpilepsyTeam Member said:

WHY … agree to b on here & share!!

posted about 2 hours ago
Sponsored Content
Learn more about available surgeries to treat epilepsy Read more >

What Subjects Would You Like To Discuss Related To Epilepsy And All That Comes With It In Virtual Meetings?

What Subjects Would You Like To Discuss Related To Epilepsy And All That Comes With It In Virtual Meetings?

Some of us have been discussing (and even had a few) having ZOOM, Skype, WebEx, Microsoft Team, etc. meetings with friends and potential news friends on this site to discuss a specific subject at each meeting. And we will post the recording of the meeting in a Q + A or something similar (still waiting for response from the creators of this site for how best to do this) so that anyone who cannot make it to the particular virtual meeting can at least see/hear the virtual discussion and then (if… read more

A MyEpilepsyTeam Member said:

Sure, we can try sometime next week. However, first I have to find out how we do after Winter Storm Kenan is done with us. The key is whether the bomb cyclone does indeed come amidst this Nor'easter… read more

posted about 1 hour ago

Has Anyone Been Diagnosed With ADHD/ADD As An Adult After Your Diagnosis Of Epilepsy?

Has Anyone Been Diagnosed With ADHD/ADD As An Adult After Your Diagnosis Of Epilepsy?

Ever since my first seizures, its been so much harder to focus on and/or complete any tasks. I've read a little about the two and according to epilepsy.com, it is a lot more common for adults with epilepsy to also have ADD/ADHD. Has anyone had indicators of either of these and approached your provider(s)?

Site:
https://www.epilepsy.com/learn/challenges-epile...

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member The key is if your epilepsy diagnosis has been presented with confirmation from your epileptologist/neurologist. SSI is more often approved than SSDI (depending on what… read more

posted 2 days ago

I Take The 200mg And 600mg And Even With Medicare And Aetna It Will Cost $100.00 For Each One A Month I Can Not Afford Them I Will

I Take The 200mg And 600mg And Even With Medicare And Aetna It Will Cost $100.00 For Each One A Month I Can Not Afford Them I Will

have to miss dose please help.

A MyEpilepsyTeam Member said:

Do you know if your insurance is Medicaid or Medicare. The Minnesota state medical assistance ( MA ) is run under Medicaid. The big insurance companies run under Medicare. You may want to check with… read more

posted 4 days ago

Zoom Call-New Topic Suggestions;First Call Went Great!

Zoom Call-New Topic Suggestions;First Call Went Great!

Thank you to John, Patrick and Sam (Sam send me a message so I have your @name) who participated in the Zoom call with me, Marsha, on Saturday the 22nd. It was beneficial and insightful to bounce ideas around on topics to discuss and we would like to hear from others on this site as well as have more join us.

We are in the process of deciding on 1) when to have the calls, especially due to time zones) and it may be as we grow that we split groups into time zones and countries) as it is needed… read more

A MyEpilepsyTeam Member said:

Sounds great John.

posted 4 days ago
Already a Member? Log in