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Epilepsy

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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Anyone Tried Deep Brain Stimulation?

Anyone Tried Deep Brain Stimulation?

Hi, I am new to this site. My daughter has refractory focal temporal partial seizures. She has tried every medication out there and also has a VNS. The doctors at Mayo are recommending deep brain stimulation. Has anyone tried this? Can you tell me how it worked for you? Any information would be helpful and appreciated. Thank you, Jodi

A MyEpilepsyTeam Member said:

I’m in the process of having the DBS. I just finished the first main surgery. That’s the inserting of the Leads ( wires ) deep in side the Brain. I have a second surgery coming in a 5 days . They… read more

edited, originally posted about 3 hours ago
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Need Advice Please!

Need Advice Please!

My name is Missy I'm a proud mother a five girls. My youngest who is 6 years old is Madelyn. They have her on Oxteller pill form. 3 twice daily. She has spoke with seizures and was having grand mal seizures so far we have been seizure free since April when they adjusted her medicine. Her previous medicine was trileptal. This is my problem it doesn't matter what I do or which medicine she's on. She is extremely sleepy and it is affecting her in school, when she sleeps she doesn't learn I need… read more

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member, Oxteller and Trileptal are both the same. I am taking the same drug Trileptal and the reason she is extremely sleepy is because that is one of the side effects of the drug… read more

edited, originally posted 1 day ago

Pregancy

Pregancy

i am wanting some advice about pregancy. i have been told that i am able to have a baby by my doctor, however i have been told by others that i could not because i was taking dilantin. the doctors said it was unsafe as the baby will have birth defects i am unsure would be great if a woman can answer this!

A MyEpilepsyTeam Member said:

Please go by what Dr told you- of course you can have children. All you need is a change in meds. Kids are so much fun! Much more open minded bout seizures. I sat for many who saw me have many but… read more

posted about 17 hours ago

Does Anyone Experience Drastic Mood Changes Prior To Seizures And After?

Does Anyone Experience Drastic Mood Changes Prior To Seizures And After?

If so- can you please provide any insight to me ? Is there any warning signs for you ? What are some ways your loved ones can help with these changes ?

A MyEpilepsyTeam Member said:

My bf tells me i become a psycho. Mean, impatient, depress, sensitive and many other bad mental things. 😅

posted about 6 hours ago

Tremors In Arm After An Aura

Tremors In Arm After An Aura

I only have the petit mal, but have been having several auras lately. The last couple of times I had an aura, I got the shakes in just one arm. Have never had grand mal either! Does anyone have this situation after an aura?

A MyEpilepsyTeam Member said:

My seizures were basically under control but then covid
So my small seizures petition Mal have turned into myoclonic¿spelling. I have a rescue med I have used once so that I do not have grand Mal.… read more

posted about 4 hours ago

Delete My Account

Delete My Account

A MyEpilepsyTeam Member said:

I have a different account that i use and i just want to delete this one

posted 2 days ago

Has Your Memory Or At Least Memory Recall The Longer You Have Had Epilepsy?

Has Your Memory Or At Least Memory Recall The Longer You Have Had Epilepsy?

I would appreciate from those of you on long-term seizure free state or great operations such that you do not take the medication. Likewise, I would like to hear from those who have reached a long-term seizure free state on alternative treatment, and what your memory (memory recall, short-term memory or long-term memory) whatever has been hampered gotten any better or worse.

Finally, the same questions for those of medication too.

And have any of you noticed any time changes to other basic… read more

A MyEpilepsyTeam Member said:

I been on RX Tegretol and RX Lamictol and that sz free me

posted about 2 hours ago
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Uncontrolled Seizures And Job

Uncontrolled Seizures And Job

Does anyone with uncontrolled seizures work at a job ? And if so doing what ? I have held 4 jobs in my life running heavy equipment , welding , a prison guard and my last one when epilipsey hit I was a Rig Manger for Nabors. I'm on disablity now but man do they give me a hard time I have looked but getting back and forth and my job experience I can no longer do any of that. I'm 41 Thanks

A MyEpilepsyTeam Member said:

I'm curious too about all of this. I've been working away and managing to deal with it for years, putting off the inevitable. But now my memory/cognition have just gotten hit too hard and I've had to… read more

posted 3 days ago

Had Anyone Found A Connection With Scoliosis And Epilepsy?

Had Anyone Found A Connection With Scoliosis And Epilepsy?

Recently diagnosed with mild scoliosis and having epilepsy for 11 years with no known cause, I'm wondering if the two can be interlinked.

A MyEpilepsyTeam Member said:

Thank you, that has helped clarify a few points. I have known that the car accident could have had something to do with it, or they wouldn't have paid so much attention to an incident that occured so… read more

edited, originally posted 2 days ago
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