Epilepsy
Questions + Answers
does anyone have seizures with bad sinus problems?
What does everyone mean by what triggers you?
What does everyone mean by what " triggers" you this may be a dumb question but can Episodes/ fits be triggered by things other then like getting scared or stuff like that ?
I feel like when people are talking to me about random things I sometimes get this feeling like a random word almost sets something off?
Chester, I can rember my dreams like they happend just seconds ago. As far as my sezuires if I am watching tv what the person on the tv says I hear It… read more
Epilepsy college
Anybody go to a epilepsy college? I might be starting to go to one. Seems like it will be a lot of help.
First, do You get any "Epilepsy" credits?
Second, do You have to do homework?
Third, is there Professors?
Fourth, is there a diploma at the end?
Has anyone ever tried the Keto Diet
Has anyone ever tried the Keto Diet and did it help reduce the number of your seizures?
Yes. Its a pain to get into keep yourself there, ketosis. Didn't help because I had to give up food that I loved. cookies, chocolate, cookies, etc.
Klonopin
I have been taking Klonopin two times one during the day and one at night for the last month. I take Lamotrigine 300 in the morning and 60mg of cymbalta for years for depression. I have a birthmark surrounding my left eyelid and left front forhead. Lately my left eyelid swells up everyday. I have Sturge Weber Syndrome also which causes seisures also.Thank you
What do you do to thwart toxicity from your meds?
As a person with controlled epilepsy, a big problem I have is losing mornings to toxicity from my after-breakfast meds. I've found ways that work for me:
* Eat a bulky breakfast (oatmeal with none of the sweet stuff works for me).
* Don't do anything that makes my blood rush to my head (over-caffeinating myself, sugary breakfasts, leaning over and putting my head down, generally running around during the hour after taking my meds).
* Stay seated for an hour.… read more
I have had many, many years of trying different thoughts and ideas. Some worked and some did not. I am a tea person instead of coffee and I do not care… read more
Asking for when I'm older
Does anyone know or have any details on the long term effects of epilepsy, VNS therapy, & medication? I'm just wondering if the seizures are capable of causing any brain damage or things like that. I'm also having a debate with a friend and the internet is being very vague. Hope everyone's day is going well.
Medication will vary will length of time ans strength. I have been taking dilantin for over 30 years and it has thinned out my bones so when I fell I… read more
Stem cell therapy
Why hasn't anyone in this community tried or looked into this form of treatment?
This type of surgery is not an option for many. Like regular laser surgery a central point
in the brain where seizures originate needs to be found. Then… read more
Phenobarbital
As a child, I took Phenobarbital at night, and Tridione in the daytime. Anyone else heard of this? My new Dr.'s give me funny looks, but I know what I was taking. I was 17 when I stopped taking it.
You should have been taken off Tridione earlier. I has a high risk of fetal malformations.
After my brain surgery I was left on Phenobarb and by the… read more
Disability
I have had nocturnal seizures for years now and I'm not getting any younger. So my question is this "is there anyone who has nocturnal seizures that gets disability?" If so is this a long process?
Thank you,
Tina
Tina, if you have worked much of your life , you should have a great chance of getting on RSDI / SSDI. The Social Security Administration told me, that… read more