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Epilepsy

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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Anyone Tried ECT?

Has Anyone Tried ECT?

A MyEpilepsyTeam Member said:

No, I hadn't never even heard of it till about an hour ago. I went to google and learned a little bit about it.

posted about 17 hours ago

Does Anyone With Epilepsy Ride A Bicycle? E.g. On Cycle Paths In A Small City?

Does Anyone With Epilepsy Ride A Bicycle? E.g. On Cycle Paths In A Small City?

A MyEpilepsyTeam Member said:

I do sometimes, but only when its cool enough outside so I can moderate my body temperature just in case anything happens to me. Its a thrilling rush of… read more

posted about 4 hours ago

JME

JME

While on medication I feel like my finger still twitches and in random places it twitches but not as bad when I first got diagnosed. Anyone with JME ever get off there meds?? Does anyone else feel this way also?

A MyEpilepsyTeam Member said:

What does JME stand for? I have twitching in my foot at times .

posted about 2 hours ago

Increase In Fits

Increase In Fits

I'm on 4 meds of different strengths Has anyone noticed if your seizures ( of whatever type) have become more frequent when they've added in another medication It says this in one of the PILs in a couple f boxes as a possible side effect

A MyEpilepsyTeam Member said:

I had wisdom teeth, ,2 c section, historectomy, spinal fusion surgery, 3 vns I’m taking depakote and zonisamide now and before I have been on just about… read more

posted about 19 hours ago

Does Anyone Else Struggle With Purpose?

Does Anyone Else Struggle With Purpose?

I know that i do knowing that i am not "normal" and i cant work or have any real leaps in life because of my epilepsy brings me to some bad places the "might as well kill myself." places i just wanted to ask if anyone else feels like a low value person and a waste of space with no direction and or purpose.

A MyEpilepsyTeam Member said:

I've felt like that too (like a couple of days ago), and I'm sure others with epilepsy have too. I felt I'd lost a lot - my parents chose 5 yrs ago to… read more

posted 1 day ago

Surgery

Surgery

I will be going for an assessment for surgery in 2 weeks. All I know about the surgery my neurologist is suggesting is the awake surgery. What type has other's had and the results. I doubt I would agree to VNS ?.

A MyEpilepsyTeam Member said:

I’m not too sure about the vns either if your not sure about anything don’t do it until you are that’s my opinion anyway x x

posted about 19 hours ago

NYC OBGYN Recommendation

NYC OBGYN Recommendation

Hi all,

I am new to this website.

Does anyone have recommendations for OBGYN in NYC?

I am hoping to start trying for a baby in the next few years and want to find an OBGYN that is knowledgable in area of epilepsy and pregnancy. Also if anyone has suggestions for neurologists who focus on women, pregnancy and epilepsy that would be amazing.

Thank you!

Understanding Episodes

Understanding Episodes

For the past four days, I’ve been dealing with myoclonic seizures but in bursts. So, 1 minute to 2 minutes and 30 seconds of seizing. A short break, maybe 30 seconds to a minute and then back to seizing. Usually, when I start having myos, I go into a grand mal. But it’s been four days of myos on and off. I’m not sure if it’s something different, something anyone else experiences or just my regular seizures?

A MyEpilepsyTeam Member said:

I’m not sure , but it sort of sounds like your having Myoclonic cluster seizures.

posted 1 day ago

Changes During The Day

Changes During The Day

Does anyone else feel drastic changes as they go through the day? Like in mood or in physical changes? I know some can be directly connected to medication, but just in general. Does anyone feel as though epilepsy brings about drastic physical, emotional, or mental changes? And how do you cope or manage them?

A MyEpilepsyTeam Member said:

That helps a lot! Thank you. I often wonder if it is the medication, or just the day, but it becomes an everyday thing. I don't struggle with mental… read more

posted 5 days ago
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