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Epilepsy

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Can Changes In Elevation Be A Seizure Trigger?

Can Changes In Elevation Be A Seizure Trigger?

When we travel out west with our son, we try to select routes with the least change in elevation. We generally try to stay below 5,000 feet elevation because we have heard that changes in elevation and specifically higher elevations can be a seizure trigger. However, everyone seems to have a different opinion about this. What is your experience? Does anyone have evidence that higher elevations can cause seizures?

Are There Any Rescue AED's That Are Not Related To Diazepam?

Are There Any Rescue AED's That Are Not Related To Diazepam?

I break out in Rash with diazepam. Are there any other options? I noticed that most or all are based in Diazepam.

A MyEpilepsyTeam Member said:

There is Ativan and Lorazepam. I use oral Lorazepam, for recovery meds.

posted about 17 hours ago

Hazy With A Total Lack Of Concentration

Hazy With A Total Lack Of Concentration

So today is turning into one of those hazy brain days where I can't seem to concentrate on anything. I have no way to focus on anything and I really don't even want to work in my yard, what a day when you don't even want to goof off huh. So I guess I'm wondering if others have this too? My last partial was last week some time and I've had a few good days in there since then. But right now my brain won't stop skipping all over the place and my emotions are running like a freight train. Heck… read more

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member - Yes, Yes, and YES!!! Add to all of that the pressure that I've put on myself all my life to be successful and my long term ability to get off my ass to do things, which I… read more

posted about 22 hours ago

Does Anyone Experience Hallucinations Or Delusions Before Or After Seziures?

Does Anyone Experience Hallucinations Or Delusions Before Or After Seziures?

I am experiencing hallucinations and delusions before and after generalized tonic clonic seziures. They are terrifying. I'm afraid to tell my Dr. I mean, am I crazy now? What could he do to help? Does this happen to anyone else?

A MyEpilepsyTeam Member said:

Yes, I think it may be some kind of aura. It's so terrifying. Is there anything that could help I wonder? I'm almost as afraid of the meds as I am the seziures.

posted about 13 hours ago

I Couldn’t Breast Feed My Daughter. She Got Baby Formula. How Many New Mothers Can’t Get The Baby Formula?

I Couldn’t Breast Feed My Daughter. She Got Baby Formula. How Many New Mothers Can’t Get The Baby Formula?

And what state are You in. That was back when She was a baby. I didn’t have a problem. She’s all grown up now

A MyEpilepsyTeam Member said:

Another thought , I heard that some people cant use any of formulas and found an alternative through the Pharmacy.

So you may want to check them

posted about 17 hours ago

Memory After A Seizure

Memory After A Seizure

So normally i have an ok short term memory. Its not amazing, or thr best short termbut its something still to be had. It works. Last friday i had a seizure, and out of the whole weekend, from friday till sunday i remember about 3 hours worth of the whole weekend. I dont remember the rest. Does anyone else have this where for acouple days after a seizure memory either is a lot worse and more limited than normal or non existant?

A MyEpilepsyTeam Member said:

I used to have the best memory. It’s hard..the memory issues. Since my 2021 diagnosis. It’s gotten pretty bad too. The memories will sometimes come back. It’s especially helpful when I can talk it… read more

posted about 22 hours ago

Keppra Questions

Keppra Questions

I was wondering if anyone seen their loved one with epilepsy have hallucinations? My daughter took her Keppra then a.hour later. I saw punching the air. She was definitely in her own zone. I asked her what was wrong and she stared at me with a blank face.

A MyEpilepsyTeam Member said:

Did your daughter
Ever get an EEG MRI EKG blood count you ask your
Dr questions about what you wanna find out you Ask your Dr about what's and Ask many mg your Dr on the Keppra how many mg are they is… read more

posted about 16 hours ago

Tongue Biting Advice

Tongue Biting Advice

Sorry if this questions been asked before, im sure its been asked many times. But I need to know what you guys do about this tongue biting issue, im new to the world of seizures and i have to say the tongue biting part ruins me everytime. It always takes about a week until i can eat and drink normally again. From what ive learned by googling, they say to not put anything in your mouth at all for the risk of choking but i know someone else who suffers from seizures that suggests putting a pillow… read more

A MyEpilepsyTeam Member said:

i am glad if it works. The Mouth Guard would help with the tongue.
Leslie

posted about 2 hours ago

Seizure Today

Seizure Today

I am asking questions. Because I had a seizure again today. I had one two weeks ago. I have short-term memory. So I don’t really ever know what’s going on. I’m on Keppra currently. I’ve been doing good emotionally. So I’m kind of confused. Things I noticed this time. I woke up at 2 AM I felt extreme fear, and I felt massive headache, and severe abdominal tightening and pain
My eyes felt off almost like they were in two directions. Some fluttering at times. I managed through sleeping on and off… read more

A MyEpilepsyTeam Member said:

Sorry to hear that. Definitely call your doctor. Have you been genetically tested? Just for what medication your body does and doesn’t need not accept. Sending prayers

posted 4 days ago
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