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Epilepsy

Questions + Answers

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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Can One Have A Seizure And It Not Be Noticed By Either The One Having It Or One Looking On?

Can One Have A Seizure And It Not Be Noticed By Either The One Having It Or One Looking On?

I worry that my partner is having a seizure and I can't tell if he is. After a seizure that you can't tell is a seizure is it likely that the one having it will come out of it in an angry way?

posted about 3 hours ago
A MyEpilepsyTeam Member said:

I believe a whole range of emotions and behavior can occur. The anger could be part of the seizure or a post-ictal state (after a seizure), or even a side effect of one of the meds he takes (I can… read more

posted about 1 hour ago

If You Had Resection Surgery Can You Answer These Please?

If You Had Resection Surgery Can You Answer These Please?

I got the majority of the "important" questions answered that i asked my docs. I just forgot to ask, how long it takes for the chunk of skull to heal that they cut? Do they use screws to hold it together? Can you feel the fact your skull has been cut or that there are screws(if there is screws)? If anyone has has a resection, do you know a rough estimate what the answers would be? I know i can always ask the day of surgery for more exact answers, i just kinda want to go into knowing ahead of… read more

edited, originally posted about 11 hours ago
A MyEpilepsyTeam Member said:

My resection was ten years ago so they probably do things a little different now but I had no screws. I thought recovery was better than I had worried it would be. Mine was right temporal lobe so I… read more

posted about 10 hours ago
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This content has been marked as possibly breaking our community guidelines. MyEpilepsyTeam will review this as soon as possible.

A MyEpilepsyTeam Member said:

Hi Lucy, That must be scary like that. I like opening the Bible to the he Book of Mark when I get scared with health issues. It's short, quick moving NG and powerfully positive.

posted about 20 hours ago

How To Get Family And Friends To Understand What Your Going Through And You Don’t Have To Be Rushed To The Hospital Every Time?

How To Get Family And Friends To Understand What Your Going Through And You Don’t Have To Be Rushed To The Hospital Every Time?

Not rushing around and I’m very sensitive I’m still trying to understand myself about seizures just started having them in 2019 and I’m not on any medication for it try to get into a doctor for it and not having any luck

posted 1 day ago
A MyEpilepsyTeam Member said:

First tell them, that if you seizure for 5min. Or longer, that’s when they need to start worrying. Also if you fell hard or injure yourself bad , They con worry. If you were to get overdosed for what… read more

posted about 21 hours ago

Can I Breastfeed On Zonisamide And Lamotrigine

Can I Breastfeed On Zonisamide And Lamotrigine

I am on 800 mg zonisamide 800mg lamotrigine and 200 mg briviact can i breastfeed j took all lf thest pills my whole pregnacy and he was born the 28th healthy as can be but all the docters tell me somthing different.

posted 2 days ago
A MyEpilepsyTeam Member said:

Listen to Margery

posted about 21 hours ago

Medication Containing Psysudafaden And Or Phenylephrine (decongestants)?

Medication Containing Psysudafaden And Or Phenylephrine (decongestants)?

How dangerous is it to take medicine containing Psysudafaden and or Phenylephrine (decongestants)? I took 1 Mucinex D to relieve sinus pressure from covid. Feeling confident one dose isn't going to lower my seizure threshold dangerously but am curious what experience others have with this.

posted 3 days ago
A MyEpilepsyTeam Member said:

I always have to check with my doctor and my neurologist before I can take any over-the-counter medication‘s and even if it doesn’t make me feel right sometimes is how long it take it as well and then… read more

posted 1 day ago

Suicidal Only Right After A Seizure

Suicidal Only Right After A Seizure

Normally i dont deal with severe depression or clinical depression. I have my times here and there, but its usually after major events, and it usually goes away fairly soon. But i have been told by other people that theres been a couple of times where right after a fairly big seizure i become suicidal. Not after every seizure, just couple here and there. Those suicidal thoughts/tendancies go away like after a day maybe two or three days at maximum ( depending on severity of seizure) than im… read more

posted 3 days ago
A MyEpilepsyTeam Member said:

Very early on after I was diagnosed with epilepsy, I had suicide urges, but they were more from the wrong antidepressant for me. Years ago (around 2006) I made a promise to God and my mom that I… read more

edited, originally posted 2 days ago

Awkward Social Interactions Due To Seizures Or Postictal State?

Awkward Social Interactions Due To Seizures Or Postictal State?

Has anyone else here ever experienced issues with social integration due to their seizures? Such as: awkwardness because you had a seizure in a social setting (perhaps a petit mal . . . and maybe the person you're with doesn't recognize it as being a seizure?); or maybe the damage to your memory leads you to not be able to remember names of new acquaintances; or maybe you cannot recall the would-be nostalgic memories of experiences you've shared with closer friends; or maybe while in your… read more

posted 4 days ago
A MyEpilepsyTeam Member said:

No I have not but you Shoud check with your Dr first and get a soupçons opion always. Just remember life is always worth living.

posted 3 days ago

Medication Question

Medication Question

How is Xcopri? What are side effects?

I don't want to come off of phenobarbital

posted 4 days ago
A MyEpilepsyTeam Member said:

I'll miss him. We know each other personal to. Spoke but he knows me medically.

This guy I trust but as he said at the first appointment, " Alyssa I know you personally but I don't know anything… read more

posted 1 day ago

Feel Myself Jerking

Feel Myself Jerking

I take my meds daily and I still feel myself jerking before I take my a.m. Pills or evening pills. Why is that?

posted 4 days ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member yes I inherited mine. My grandma actually died from one ..i never met him and I just took another mri and the results say my brain shows nothing of what causes them. I go take… read more

posted 4 days ago
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