Questions & Answers

My son is now having an overnight EEG and in the moment he was receiving his injection the computer showed Persyst Seizure on pink letters. The spikes could be related to any movement? Like crying for example is he is crying a lot it will show up as a persyst seizure ? Or has he have to sleep and have the spikes to be considered as an epileptic form. Neurologist said that he was assymetric infantile spasms , but he was taking ACTH and he was worst is it possible that medicine could make him have… read more

My son is now having an overnight EEG and in the moment he was receiving his injection the computer showed Persyst Seizure on pink letters. The spikes could be related to any movement? Like crying for example is he is crying a lot it will show up as a persyst seizure ? Or has he have to sleep and have the spikes to be considered as an epileptic form

Has anyone in Ontario, Canada been able to find a therapist who specializes in mental health for people who have epilepsy? I am wanting to go to a therapist but i think it would be really helpful if they understood epilepsy without me having to teach them about seizures, medication and safety and all that.

I’m on 750mg of Keppra twice a day and its been keeping me seizure free, i sometimes have an aura here and there. But i feel like i have no appetite, im often not very hungry or if i am i feel very picky about what i eat which is not like me. I also feel like i get frustrated quicker than i used to and i dont like that. But im not sure if im just stressed out so i was curious if anyone else has experienced these side affects? Or how they feel taking keppra

I have maxed out on all my medications, and they do not help my seizures. My seizures have been getting worse and more intense. My neurologist said my last option is the VNS, but I want to learn more about it before I go through with it

Hey everyone,

Does anyone know what the condition is called when you get both Focal and Generalised Seizures?

Just a FYI I'm really only trying to see if there is any official name for this.

Thank you.

I'm constantly doing something! Singing, humming, talking, he says can you please just stop for a little while? And I get angry and won't stop! I'm not like that to anyone! I am just horrible! And I'm getting headaches almost all the time now! I think I'm having some type of seizure than I normally have! I'm going to see a new neurologist so I have to wait to find out anything.

What day is day 1 seizure free? The next day after the seizure or the day after that?