Epilepsy

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Has anyone used marijuana for either seizure control or sleep?

My mother has purchased some, that is being sent to her for me to try. She did this even thou i said i was not interested in it & is pushing me to try it. She told me to do research and find out more about it.

posted about 3 hours ago by A MyEpilepsyTeam User
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I currently use the marijuana on-top of my AEDs. I noticed the "intensity" has reduced. I still have seizures but not grand-mal. occasional jerking is… read more

posted 23 minutes ago

Does this sound like a seizure? Teeth chattering while sleeping

I think I may have just had a seizure while sleeping. I've been known to have nocturnals before but unfortunately my boyfriend was not here to witness it. In my dream, my teeth were chattering, and clenching down really hard. I couldn't wake myself up. And when I did wake up my mouth was extremely sore- teeth and jaw. I'm not sure I'll be able to eat/chew anything for a while. I also have a sore on my lip. I feel very tired, all my brain wants to do… read more

posted about 5 hours ago by A MyEpilepsyTeam User
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Thank you, I know this may sound silly but is there a med specifically for noturnal seizures? Im currently on lamotrigine and it seems to control the… read more

posted about 2 hours ago

Epliepsy funding and research

How much money and research do you think is being put into finding a cure for epilepsy? and which countries are providing the best solutions? Are health services from different countries working together to find a solution or is it being put on a back burner so to speak because the pharmaceutical companies are making a lot of money out of the medication?

posted about 6 hours ago by A MyEpilepsyTeam User
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London uni are doing some as I have my brain, tissues and spinal cord donated to them for epilepsy. I did that a few years ago now but font think many… read more

posted about 6 hours ago

Valporic Acid

What is you personal experience with Valporic Acid? I am interested in what you have actually experienced and not what MedMD or pharamcist says. The neuro wants to add this med to my cocktail and I am super Leary. Wondering if all the cautions and side effects listed are actually experienced or just the drug company covering their behinds.

posted about 8 hours ago by A MyEpilepsyTeam User

I took it over 25 years ago, but it made me vomit if I'd eat pizza or drink juices.

posted about 3 hours ago

Continuous seizures

I've read through many of the questions and answers here but I haven't seen any that have experienced any bouts of status epilepticus. I have now had 3 episodes of continuous seizures. The first two were triggered by having to put my dog down. The first one was 5 days of continuous seizures. I was extremely paranoid and delusional. I would do some very strange things. I called my sister, who lived 200 miles from me, and scream to her "the nurses are trying to kill me". I kept calling my niece… read more

posted about 10 hours ago by A MyEpilepsyTeam User
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I've Status Epilepticus a few times now. Back in 2009 I seizure grandma l seizures for 13 hours then on and off for 4 days straight. As a result I… read more

posted about 2 hours ago

Do you ever drink?

I ask this question because even though I know alcohol lowers your seizure threshold I refuse to allow epilepsy change my life totally. Now it's not like I drink every day or even every week or every month. But I will have an occasional drink.

When I first got sick I thought if I even had one sip of alcohol it would send me into a seizure. I was wrong. I will have one drink say for my birthday, Christmas, New Year's, etc. Notice the word "one".

I was just wondering if any others of you do… read more

posted about 12 hours ago by A MyEpilepsyTeam User
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Drugs & Alcohol do not mix when it comes to a celebration it may be slightly okay. I would have a week scotch & coke to begin with nothing else… read more

posted about 10 hours ago

Zoning out

I was on the computer the other day and I felt very disconnected. I had a hard time focusing and getting my thoughts together. After a while I was ok once I got off of the computer. I wonder if this is a small seizure or not.

posted about 23 hours ago by A MyEpilepsyTeam User
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How long where you on the computer? If I am doing something such as a jigsaw puzzle playing a game on my phone focusing or concentrating too long causes… read more

posted about 22 hours ago

Sometimes do you find yourself sinking into depression after you have a seizure? If so why is it hard to crawl out of It?

posted 3 days ago by A MyEpilepsyTeam User
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I don't always get upset after a seizure, No its not hard to get out of it. I think its part of the seizure once I'm over all the side effects of the… read more

posted about 20 hours ago

Schizo affective and epilepsy

Does anyone have both? Or see any other connection between the two as a cause or side effect of meds

posted 3 days ago by A MyEpilepsyTeam User

I have been wondering if they was a connection. . Because I have these spells where I am not myself. I don't want to be around anyone and can be violent… read more

posted 2 days ago
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