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A MyEpilepsyTeam Member asked a question 💭

My son is now having an overnight EEG and in the moment he was receiving his injection the computer showed Persyst Seizure on pink letters. The spikes could be related to any movement? Like crying for example is he is crying a lot it will show up as a persyst seizure ? Or has he have to sleep and have the spikes to be considered as an epileptic form. Neurologist said that he was assymetric infantile spasms , but he was taking ACTH and he was worst is it possible that medicine could make him have… read more

posted 5 hours ago
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A MyEpilepsyTeam Member

I'm assuming you're talking about the spikes on the EEG screen? a live EEG will spike whenever the patient does anything so that basically includes opening or closing your mouth, eating, talking… read more

posted 2 hours ago
Persyst Seizure
A MyEpilepsyTeam Member asked a question 💭

My son is now having an overnight EEG and in the moment he was receiving his injection the computer showed Persyst Seizure on pink letters. The spikes could be related to any movement? Like crying for example is he is crying a lot it will show up as a persyst seizure ? Or has he have to sleep and have the spikes to be considered as an epileptic form

posted 5 hours ago (edited)
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Mental Health Therapy
A MyEpilepsyTeam Member asked a question 💭

Has anyone in Ontario, Canada been able to find a therapist who specializes in mental health for people who have epilepsy? I am wanting to go to a therapist but i think it would be really helpful if they understood epilepsy without me having to teach them about seizures, medication and safety and all that.

posted 8 hours ago
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Keppra - Feelings/experiences?
A MyEpilepsyTeam Member asked a question 💭

I’m on 750mg of Keppra twice a day and its been keeping me seizure free, i sometimes have an aura here and there. But i feel like i have no appetite, im often not very hungry or if i am i feel very picky about what i eat which is not like me. I also feel like i get frustrated quicker than i used to and i dont like that. But im not sure if im just stressed out so i was curious if anyone else has experienced these side affects? Or how they feel taking keppra

posted 8 hours ago
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A MyEpilepsyTeam Member

https://www.webmd.com/drugs/2/drug-18053/keppra...

posted 2 hours ago
Pros And Cons Of VNS?
A MyEpilepsyTeam Member asked a question 💭

I have maxed out on all my medications, and they do not help my seizures. My seizures have been getting worse and more intense. My neurologist said my last option is the VNS, but I want to learn more about it before I go through with it

posted 12 hours ago
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
It only changed my voice while it was going off. It added a little vibration but I think I eventually got used to it and it didn’t effect my voice as much.

posted 3 hours ago
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Focal & Generalised Epilepsy
A MyEpilepsyTeam Member asked a question 💭

Hey everyone,

Does anyone know what the condition is called when you get both Focal and Generalised Seizures?

Just a FYI I'm really only trying to see if there is any official name for this.

Thank you.

posted 17 hours ago
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Thanks for this.

posted 2 hours ago
Has Anyone Gotten A 420 License Since That Became Legal?
A MyEpilepsyTeam Member asked a question 💭
posted 17 hours ago
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A MyEpilepsyTeam Member

In my state, recreational weed is legal and has been since 2016. As I am now 21, I can walk into a dispensary and get what I need. Since it’s legal, I never really advocated for a medical card for… read more

posted 12 hours ago
I Have Just Ruined My Relationship With My Boyfriend! I Keep Being Angry With Him And I Won't Stop And I Can't Sleep!
A MyEpilepsyTeam Member asked a question 💭

I'm constantly doing something! Singing, humming, talking, he says can you please just stop for a little while? And I get angry and won't stop! I'm not like that to anyone! I am just horrible! And I'm getting headaches almost all the time now! I think I'm having some type of seizure than I normally have! I'm going to see a new neurologist so I have to wait to find out anything.

posted 21 hours ago
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
Some side effects of medications is angry, frustration etc, You can always come here to talk about what you are feeling
I too hope your boyfriend can understand what you are… read more

posted 19 hours ago
How Many People Do We Have Registered Here That Have Been Trying Clinical Trials?
A MyEpilepsyTeam Member asked a question 💭
posted 22 hours ago
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A MyEpilepsyTeam Member

Cool thanks for the update! I appreciate it!🤗

posted 20 hours ago
Reset Day
A MyEpilepsyTeam Member asked a question 💭

What day is day 1 seizure free? The next day after the seizure or the day after that?

posted 1 day ago
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A MyEpilepsyTeam Member

I went to the epileptic group and my doctor did a test that said I was seizure free. Then I started to get them again

posted 9 hours ago
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