Quick Links
Resources
About MyEpilepsyTeam
Powered By
Are Any Of You Afraid To Sleep In The Dark, Especially After Having A Seizure?
It's embarrassing to say since I'll be 19 in October but I have to have some type of night light on and some type of music playing or a tv show playing when I try to fall asleep I've always been afraid of the dark since I was a little kid. And After having seizures, it just made it worse. Cause my anxiety raises especially after i have seizures.
It's dif per person, I don't have a prob with sleep In the dark and quietness, I don't mind sleeping with some light on and sounds tv or radio etc, but don't prefer it, my opinion
Can You Get Headaches From Having Seizures? It’s A Silly Question I Know. And There Is An Obvious Answer To The Question.
Yes. It's pretty common. I never got them for some reason when I was younger but the last ten years I have had them.
What Did You Guys Ask Your First Adult Neurologist
October 22nd. I'll be seeing my first adult neurologist I already have questions i plan to ask but I was wondering if yall have any questions that would be good for me to ask them.
@A MyEpilepsyTeam Member This is pretty much the same as in Aus I didn't see a Standard Neurologist until I was 18.
Question About Triggers
This may have been asked before but I couldn’t find it.
If something is a trigger, does that mean that every time you’re exposed to it you will have a seizure or does it greatly enhance your chances at the time of the exposure.
Of course people who knnow us can tell if seizure tiime. Asked my adult kids how knew said just did from seeing so many. No need for 911 if just a partial either.
What To Do When Someone Implies & Says You Want Special Attention Due To Your Seizure Disorder?
I believe it is prevalent that nurses, doctors, family, and outsiders say I drug seek or I want special attention when idgaf. I don't want to be having cluster seizures or go into status, what are others thoughts because I never bite back or tell people off when or if I can
Tell 'em you'll trade. You have the seizures instead of me and I'll give you all the attention you need.
I Had Bad Reactions To Covid Vaccines. I Had 3 Then Stopped. I Refuse To Have Any More. Bad Seizures Within 24 Hours!
Tonic clonic seizures. 1st on bathroom floor. 2nd kitchen with kettle of boiling water on my arm and 3 hours out of it before I came to and 3rd on living room for 3 hours. When I did wake up on my living room floor I’d kicked over my coffee table. My seizures had been quite well controlled for over a year. My epilepsy consultant said it wasn’t Covid vaccination that caused it. Later I was told he was telling people that so they had the vaccinations. It took over 2 years to get stabilised!
This is why my mom told me not to get one when this WHOLE thing started, though she still got one. My mom recomended for me not to get one. She had researched it and thought I shouldn't, bc she… read more
Looking Into Training My Puppy To Be A Service Dog When He Gets Older And Where Is The Best Place For That?
Heart conditions on top of the epilepsy. I also use a wheelchair
You would have to hire a professional service dog trainer or search for a service dog training camp that does training. Also I'm not sure how it works with a service dog training camp or a… read more
Where Do Most People Get There Meds From?
I just have them delivered from the hospital pharmacy since they offered free mailing since I don't have a drivers license. I am watching some couponing videos from Walgreens and CVS. It made me wonder, are the meds available from Walgreens or CVS and if yes, is the monthly cost the same and is it going to your account where you are earning points to purchase other items in the store for free? Is that a thing.....
I got mine from Walgreens at a good "after insurance" price. They also put what I paid on my Walgreens card.
Feeling Smothered
I am glad to have a husband who is concerned about me, but last night I am out for my walk and part way through my husband comes out to check on me. I know this is part rant and part question, sorry. I just get tired of the constant hovering. Does anyone else feel this way?
😉
Is One Of Your Triggers A Food Or Drink You Used To Love?
I miss Flamin Hot Cheetos and grapefruit.
It's dif per person, but I have not noticed any that do, my opinion
Sign up for free today!
Continue with Facebook
Sign up with your email
Your privacy is our priority. By continuing, you accept our
Terms of Use, and our
Health Data and
Privacy policies.
