Anyone Tried Deep Brain Stimulation?

Hi, I am new to this site. My daughter has refractory focal temporal partial seizures. She has tried every medication out there and also has a VNS. The doctors at Mayo are recommending deep brain stimulation. Has anyone tried this? Can you tell me how it worked for you? Any information would be helpful and appreciated. Thank you, Jodi

Need Advice Please!

My name is Missy I'm a proud mother a five girls. My youngest who is 6 years old is Madelyn. They have her on Oxteller pill form. 3 twice daily. She has spoke with seizures and was having grand mal seizures so far we have been seizure free since April when they adjusted her medicine. Her previous medicine was trileptal. This is my problem it doesn't matter what I do or which medicine she's on. She is extremely sleepy and it is affecting her in school, when she sleeps she doesn't learn I need… read more

Pregancy

i am wanting some advice about pregancy. i have been told that i am able to have a baby by my doctor, however i have been told by others that i could not because i was taking dilantin. the doctors said it was unsafe as the baby will have birth defects i am unsure would be great if a woman can answer this!

Does Anyone Experience Drastic Mood Changes Prior To Seizures And After?

If so- can you please provide any insight to me ? Is there any warning signs for you ? What are some ways your loved ones can help with these changes ?

Tremors In Arm After An Aura

I only have the petit mal, but have been having several auras lately. The last couple of times I had an aura, I got the shakes in just one arm. Have never had grand mal either! Does anyone have this situation after an aura?

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Has Your Memory Or At Least Memory Recall The Longer You Have Had Epilepsy?

I would appreciate from those of you on long-term seizure free state or great operations such that you do not take the medication. Likewise, I would like to hear from those who have reached a long-term seizure free state on alternative treatment, and what your memory (memory recall, short-term memory or long-term memory) whatever has been hampered gotten any better or worse.

Finally, the same questions for those of medication too.

And have any of you noticed any time changes to other basic… read more

Uncontrolled Seizures And Job

Does anyone with uncontrolled seizures work at a job ? And if so doing what ? I have held 4 jobs in my life running heavy equipment , welding , a prison guard and my last one when epilipsey hit I was a Rig Manger for Nabors. I'm on disablity now but man do they give me a hard time I have looked but getting back and forth and my job experience I can no longer do any of that. I'm 41 Thanks

What Is Hx Gtc Seizures Somebody Tell Me Please

What is hx gtc seizures

Had Anyone Found A Connection With Scoliosis And Epilepsy?

Recently diagnosed with mild scoliosis and having epilepsy for 11 years with no known cause, I'm wondering if the two can be interlinked.