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Epilepsy

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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Bending Forward And Seizure Activity?

Bending Forward And Seizure Activity?

hi guys ,
a strange question here . just started noticing when I bend forward a lot very quickly my head spins and my vision and focus goes very fuzzy. Finding it happening most when I'm cleaning the house , especially hovering as I'm bending down quickly a lot. can anyone relate or have any subjection of ways to cope with it ? its putting up off do physical activity

A MyEpilepsyTeam Member said:

I call it a HEAD RUSH . When you bend down or even if your just laying , all the blood flows to that part of the brain . When you raise or sit up too… read more

posted about 4 hours ago

Any One Else Wake Up Feeling Like They're Drowning In A Pool Of Sweat?

Any One Else Wake Up Feeling Like They're Drowning In A Pool Of Sweat?

I live in fl, i really need to know if anyone else out there wakes up gasping for air like they're drowning in a pool of their own sweat in a 60 degree room. I can never be temperature comfortable, either hot or cold no in between, and when i sleep i feel like i wake up drowning in my own sweat, not from any seizure activity but temperature body regulation alone. I NEED to know if this happens to anyone else out there with pur problems

A MyEpilepsyTeam Member said:

Everybody’s systems are different some will lose control of there bladder some will grind there teeth so badly that they willl have trendiness of the… read more

posted about 14 hours ago

Pregnancy And Meds

Pregnancy And Meds

Anyone get pregnancy and take multiple meds. I am so happy to be finally pregnant (11 weeks tomorrow). I'm on keppra and clobazam and can't find a ton of history on these meds. Would love to hear ppls stories!

Thank you

Michelle

A MyEpilepsyTeam Member said:

Congratulations ! Have a chat with your Specialist ( or Epilepsy nurse - ours run a clinic for pregnant women for example) I worked with a girl many… read more

posted about 14 hours ago

Who Lives Their Life In Fear Because Of Their Epilespy?

Who Lives Their Life In Fear Because Of Their Epilespy?

I am in consant fear of when i will have a seizure. I dont know when it could happen. Its affecting my everyday life always trying not to think about it too. Always playing on my mind.

A MyEpilepsyTeam Member said:

It's always in the back of my head Lucy as is epilepsy of you know what I mean at the end of the day I look at life day by day don't live in fear ok… read more

posted about 23 hours ago

Anyone Here Who Has Used Smartwatches Inspyre Or Embrace 2 For Seizures. How Well Has It Worked For You?

Anyone Here Who Has Used Smartwatches Inspyre Or Embrace 2 For Seizures. How Well Has It Worked For You?

I’ve ready both Smartwatches “ Apple Watch series 6 inspyre and embrace 2 both detect seizures when having one, has anyone had any experience using either one of these wearable devices and if so what kind of progress has it been for you when using these devices for your seizures?

A MyEpilepsyTeam Member said:

I had an Embrace2 a few years ago. It kept sending false alerts to my family, sometimes even when I was just sitting right next to them. You actually… read more

posted 2 days ago

Do You Know Of Good Books, Articles, YouTube Videos, Etc. That Are Best To Share The Truth About Epilepsy?

Do You Know Of Good Books, Articles, YouTube Videos, Etc. That Are Best To Share The Truth About Epilepsy?

There are books like A Mind Unraveled that give perspective from someone with Epilepsy from when he first was having spells, when he was told it was seizures, etc.

What we need is the best sources (which he did not have then) that can explain in Plain English the realities of Epilepsy (compared to all of the myths that the media have been telling them for at least the last 60 years). We need a Epilepsy 101… read more

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member i have a fb group 'seizures with a since of humor' (this group has seizures and make fun of set seizures and the effects on our… read more

posted about 15 hours ago

How Many Are Experiencing Increased Depression?

How Many Are Experiencing Increased Depression?

I have a 23 year old daughter who was diagnosed with JME in her middle school year. She has an engineering degree and working full time. Since March 2020, she has been working from home and I am feeling more and more helpless to see her not motivated to wake up, take care of herself, complete her days work, even her 12 year long journey of classical dance is suffering because of her lack of motivation. Her seizures have been in control. But wanted suggestions on how… read more

A MyEpilepsyTeam Member said:

Depression is sadly common among epileptics. It can be a side effect of medications but more often it is just having to live the way we do. The… read more

posted 4 days ago

How Can Someone With Epilepsy Get A Job When They Look At You And Think It's A Liability Issue?

How Can Someone With Epilepsy Get A Job When They Look At You And Think It's A Liability Issue?

A MyEpilepsyTeam Member said:

When just going for an interview it can be any one who may or may not get hired , but if they fire you , it has to be for a very good reason. We are… read more

posted 1 day ago

What Type Of Seizure Am I Having?

What Type Of Seizure Am I Having?

I believe that I have two types of epilepsy. One is definitely Myoclonic but I am having a lot of trouble trying to determine exactly what my second type is called.

With the second type, they happen late at nice when I'm awake & on the internet on my laptop. I will be sitting on my bed with one leg over the side. I blackout and apparently fall across my bed (because that's where I find myself later) and I do not regain consciousness for 3 to 4 hours.

Sometimes when I wake in… read more

A MyEpilepsyTeam Member said:

Your welcome @A MyEpilepsyTeam Member . I hope you find the true answer of you seizure. Good lunch with your research on it . Let me know if that was… read more

posted about 3 hours ago
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