Epilepsy
Questions + Answers
Going to school
I am wanting to go back to school ,but i am 54 yrs old and with all.the siezures ive had thru out my life my memory isnt the best,and the technology i cant comprehend and im affraid i cant doit
I graduated from nursing school before I was diagnosed last August so I have a few tips that can hopefully help. If your teachers are fine with it you… read more
Kidney stones
I’m having a bout with kidney stones. It’s a side affect of topomax and zonimiside. I’ve 1 but I found iut there are a bunch just hanging there waiting to drop. Not looking forward to that. Anyone on these meds have the same issues
I have been on Zominiside and Zonegran ( brand name ) but not the other. Zonegran made me have Kidney Stones. Then my Dr. Had me change to the generic… read more
Can you sincerely list some of the good things that have happened in your life due to having epilepsy you are grateful for?
We all understand the different difficulties that having this condition have brought to our lives, but I can also be grateful for the good things that have happened because of it. It has brought my family closer together, it has taught me to be more sensitive towards people, it has helped me grow stronger and trust in the Lord more, it has taught me that I can get hit over and over again… read more
Getting involved in a Support Group through the Epilepsy Foundation ( in the USA ). It helped me learn more about the others and more things on… read more
Does anyone have the VNS?
I have had epilepsy 52 yrs. I have taken more seizure meds than I can remember and am allergic to over 10. I am currently on 4 AED’s( Dilantin, Vimpat, Zonegran and Klonipin) along with CBD and THC oil. Can someone please give me info...pros and cons? Thank you.
Best thing I ever did was agree to surgery. 5 months now.
3 yrs ago i was afraid and said no.
Exercising and seizures
Hi Everyone (New here!)
I recently starting having partial seizure clusters (normally controlled 90% w meds). I narrowed the reasoning down to my recent increase (major) in exercise. I don't know if it's from dehydration, lack or calories, or over-doing it, BUT I am a normally active person, have gone from 0-60 in the past (exercise-wise) and this has never happened. It is the only thing I can relate this to. Normal stress/hormone/LIFE.. except for this. Going on 5 days of clusters and… read more
I totally believe age is just a number. I have been weight training for years. I do yoga, run, hike, and lift. I did Crossfit a few years ago until I… read more
Question for women/people on depakote.
Ok, backstory first. I was on a cocktail of AEDs (lamictal, zonegran and depakote) for 3 years, without a single seizure. My neurologist moved to CO when they legalized marijuana so he could do studies on it. So my new (and current for the past 3 years) neurologist took me off the depakote as soon as we saw him and my seizures resumed and I feel as if my myoclonics have gotten extremely worse. My question to women/people on depakote: do you ever have any of the ‘horror… read more
I tried a combination of depakote and tegretol when I first went to college. One made me nauseous, the other made me hungry. Despite all that, I gained… read more
Reduced Sex Drive
I'm a bit embarrassed about this question but maybe someone can help or has similar issues. Do any males have a reduced sex drive because of the medication they take? (and have they identified the tablets).
It really depends on which one with me. I've had zonagram really effect it, but I wasn't sure if it was energy levels, then going down a bit on lyrica… read more
Does anyone use mindfulness or yoga to help adress your seizures? Do you have any suggestions of online support groups/resources you like?
Meditation and concentration on certain positive subjects has definitely provided a solid base in reducing seizures. I believe a need for more… read more
Still struggling with vertigo, joint pain, exhaustion, headaches... anyone else?
For over a week now I have been struggling with vertigo (dizziness, shaking, nausea, nystagmus), severe joint pain, headaches, exhaustion. Has anyone else had this and how long did it last? I was hospitalized for 4 days and I am feeling miserable enough that I would almost welcome another hospitalization... and I HATE hospitals, like most of us, I'm sure. The pain in my joints (every joint, seriously) is so severe I cannot lift… read more
I feel that way when it rains and for 3 days before it rains. And of course the day after I 'tie one on' I dont usually drink much but a couple times a… read more
Do you have Jaw problems after Temporal Lobe surgery?
I had a RTLE in 2003. When I got out of ICU and a meal arrived I learned for the first time that my jaw would only open about 1/4 inch. And even that much opening was causing extreme pain in the right side of my face. For the 2 days I was in the hospital after surgery they could only feed me 2 scoops of mashed potatoes, i got them into my mouth by licking the potatoes frombetween the tines of the fork after fitting the fork between my teeth.
Here I am 15… read more
Yeah it depends on how hard I bite in the seizure but dislocation I don't need to worry about now my jaw got wired up at the back and have about 5/6… read more