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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
11587 questions

How Is Everybody Today And Whose Watching The Game Tonight?

A MyEpilepsyTeam Member asked a question 💭

Would love to be friends with anybody on here

Has Anybody Been Able To Come Off Their Meds After A Period Of No Seizures?

A MyEpilepsyTeam Member asked a question 💭

I have had 2 grand mal or tonic clonic seizures in the past year and my doctor suggested that generally they would like to see a person seizure free for 2yrs before withdrawing meds. Thank you and God Bless!

A MyEpilepsyTeam Member

Oh, I was 10 years at the time. It was there idea I didn't really have much say in it but in the end I didn't even get through the weaning process of coming off one the meds so it failed pretty badly.

posted 29 minutes ago

What Kind Of Sleep Alarms Do They Have For Seizures

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I use my cell phone alarm

posted 8 hours ago

Since I Started Having Seizures I Would Start Noticing That My Tongue 👅 Has Been Sticking Out Of My Mouth❣️Does This Happen To Anyone Else

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

yes and no. yes i stick out my tough but no not haveing a seizure. i stick out my tough when i'm really concentrating or deep in thought.

posted 13 hours ago

What Epilepsy Medication Won't Further Damage The Kidneys And Bone Marrow?

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Ironically for me same cause of seizures also keep bones healthy so 50 + years on Dilantin no problem. High level of estrogen has off set this-my bone density tests of woman 20 years younger. Saw in… read more

posted 5 hours ago

EEG

A MyEpilepsyTeam Member asked a question 💭

I got the results of my 48 hours EEG and it showed slower than normal brain waves causing daytime drowsy. Anyone know how to fix this? He didn't know what was causing it.

A MyEpilepsyTeam Member

The EEG confirms the change in brain waves to confirm if epileptic. We know epilepsy from the brain like diabetes from the pancreas having a prob neither cause is known but can treat symptoms with… read more

posted 4 hours ago

What Kind Of Activities Are You Involved In That Is Not Part Of An Epilepsy Support Groups? That Are Not Hobbies You Just Do By Yourself.

A MyEpilepsyTeam Member asked a question 💭

I can't volunteer since it is $70 ride each shift. I can't join a Board because they require an annual contribution and I need the funds for my new meds. I can't work at an open house any more since they don't have a weekend transportation system. I can't get to a farmers market since the hours are during rush hour and the transportation system prioritizes work and medical appointments (makes sense). I can't get a PT job since the transportation system is so unreliable. (I just had a blood… read more

A MyEpilepsyTeam Member

I am a volunteer police officer in my area and once I am settled down for good I will take the course again and then I will be a volunteer police officer in 2 places.

posted 14 hours ago

How Do You Feel And What Do You Do When People Who Don’t Know Anything Try To Tell You About Your Epilepsy And Seizures?

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I ignore them.

posted 20 hours ago

My Son Takes A Huge Amount Of Keppra. Since He Has Been Taking It, His Personality Has Changed. He Is Aggressive, Hostile. What Do I Do?

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I have read that adding vitamins b6 and 12 help.

posted 1 day ago

What Do You Think, Absence Seizures Can Be More Or Less Dangerous In Workplace Environment?

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I agree I have had seizures since I was just 18 months old and I have tried working an sad to say it never worked out 😞

posted 1 day ago
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