Epilepsy

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US Healthcare for people with epilepsy

US Healthcare for people with epilepsy

I’m considering moving to the US and would just like some input as to the healthcare system (costs for repeat prescriptions etc.) for those living with controlled (most of the time) seizures.

A MyEpilepsyTeam Member said:

Healthcare in the US is very expensive. Example. My son and I were heading to his grandmother's house who lives about 120 miles away. He forgot his… read more

posted about 11 hours ago

Disability even with controlled seizures?

Disability even with controlled seizures?

Have any of you had success getting disability with controlled seizures? I'm considering applying, but my seizures are for the most part under control. I have some breakthrough seizures now and then because of missing or being late with my meds, but I haven't had a heavy seizure since March 2017. Still, I find it harder to concentrate and remember things at work, which has been the case for years but seems to be getting worse - as well as my social anxiety. I could work a… read more

A MyEpilepsyTeam Member said:

Took me 3 years. It's a state thing. Lots of people trying to cheat the system. Makes it harder for us.
Many here will tell you, best shot for SS… read more

posted about 15 hours ago

Can bad stress cause a child to have more seizures?

Can bad stress cause a child to have more seizures?

My youngest diagnosed at a week old with epilepsy has been on meds. They have been raising her dose as she grows. He's hadn't had a seizure in almost a month but the last 4 days she's had an average of 15 seizures a day. The only thing that's changed is our luck really. Our car had to get a 1000$ fix, my partner and I have been thinking about breaking it off and my mother has left our lives so high stress right now. So do any of you find that when you are… read more

A MyEpilepsyTeam Member said:

Seizure s can definitely be stressed induced. After my surgery my seizures went from Neuro induced to stress finduced

posted about 9 hours ago

Does any one have tips to find work

Does any one have tips to find work

Been a labourer all my life only became an epileptic four years ago at 25 . No one seems to want to take on the liability . Sydney NSW

A MyEpilepsyTeam Member said:

Hi Andy I know what you mean about getting a job with epilepsy it seems like I cannot get a full time job I have a part time job I don't know how it… read more

posted 1 day ago

Keto diet Vs keto carnivore diet

Keto diet Vs keto carnivore diet

I was on the keto diet for 2.5 years and it worked well for me. However, I ended up stopping because it required too much preparation and I was getting lazy.

Now, I’m thinking of starting the keto carnivore diet because I’ve heard many great things agout it. Any thoughts?

A MyEpilepsyTeam Member said:

keto vs keto carnivore (i will call it keto c) is the same thing. the prep and weighting and stuff. the different is keto c is all meat and little dairy… read more

posted about 20 hours ago

Migraines and seizures

Migraines and seizures

Anyone has migraines that lead to seizures? For me its a trigger and i really try to get it under control as i am terrified of having a seizure. Been on aimovig to control the migraines but for the past week and a half it feels like my brain stem is about to pop. How do you control migraines anyone please.

A MyEpilepsyTeam Member said:

My neurologist suggested Trileptal as an add-on med to treat migraines and seizures. Haven’t tried it yet though. She’s giving me Riboflavin to try… read more

posted about 8 hours ago

Can alcohol make seizures worse?

Can alcohol make seizures worse?

I don't drink. Just havent ever been much of a drinker. Last night I had two mixed drinks. My son got married yesterday :) anyhow. I've had tons of mini seizures some were kinda violent but only lasting at most a minute or two. Was it the alcohol or just the stress of a busy long day?

A MyEpilepsyTeam Member said:

Yes from my understanding drinking (usually heavy drinking ) either interferes with meds taken which cause the seizure , or alcohol just causes seizures… read more

posted 1 day ago

Mesial temporal sclerosis

Mesial temporal sclerosis

Has anyone been dx with Mesial Temporal Sclerosis. From what i understand its responsible for at least 90% of retractable epilepsy. The only treatment is brain surgery. I am being tested. Did u have the surgery. What was your sucess. How was the surgery. Any info would b helpful

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member... did you know that celiac disease attack the weakest link. my hole family has celeac disease but only i have seizures. one of… read more

posted 4 days ago

Quick question does your temperature effect your seizures?

Quick question does your temperature effect your seizures?

I woke with a fever in the middle of the night had about 5 mini seizures before I realized what was happening.

I got up and cooled myself bringing my temperature down. Took awhile for Tylenol to kick in..but once it did I was able to go back to bed without any more incidents. Kinda scary.

A MyEpilepsyTeam Member said:

Thank you

posted 4 days ago

Scandinavia

Scandinavia

For those that have epilepsy and live in Scandinavian countries what is the medical systems and support like?

A MyEpilepsyTeam Member said:

I did live on the north shore area of sydney, Australia but after a good 3+ yrs without my husband ... I now have moved to the Central West of Sydney,… read more

posted 5 days ago
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