Epilepsy Questions and Answers | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
10806 questions
Does Anybody Know What The Side Efects Are To Eplepin?
A MyEpilepsyTeam Member asked a question 💭
Hello:) My Doctor Is Changing My Zonegran To Xcopri. Does Anyone Have Experience Transitioning These ?
A MyEpilepsyTeam Member asked a question 💭

I’m also curious about if this will help my memory issues? And work better with lamictal. 🤔

A MyEpilepsyTeam Member

Yes. When I was put on the zon and lamictal I also lost a fair amount of weight. It’s also something I’m a bit nervous about. Trying to be brave. lol. It’s been many yrs since I have attempted a… read more

posted 2 hours ago
What Foods Can Cause You To Have A Seizure When You Eat It?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Other than Alcohol and regular pop ( can drink Diet pop only ) that trigger my seizures, I don’t have any food that triggers my seizures.

posted 2 hours ago
For People Who Have VNS And/or RNS
A MyEpilepsyTeam Member asked a question 💭

So I have a VNS and RNS...both don't help anyone have similarities

A MyEpilepsyTeam Member

You’re welcome.
It was originally use for Parkinson’s Disease. The DBS did get approval from the FDA until 2018, to use for Epilepsy. Its Fairly new for the Epilepsy Community.

posted 2 hours ago
Sponsored Content
Learn more about VNS Therapy Read more >
How Often Do You Have Blood Work Done With On Carbamazepine?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

When I visit my Epileptologist, my Dr. Has me do blood work to check my blood levels . If my levels are low the Dr. will up my dose.Or transition to a diff ent med. If my levels are up the Dr. Will… read more

posted 2 hours ago
Anyone Else Dealt With An Insurance Company Change Your Medicine(s) To The Generic Brand Of What Your Doctor Prescribed?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Yes . My Dr. Always had to fight with the insurance ,to keep me on the brand name medications.

posted 1 hour ago
Going Thru Menopause As A Caregiver How Do Women Deal With This.. I Won’t Put My Son In A Home Because I Know They Abuse People There ?
A MyEpilepsyTeam Member asked a question 💭

I do get help only 2 days a week but all I wanna do is sleep and can’t because I use that time to clean the house I feel like my body is gonna break any good advice

A MyEpilepsyTeam Member

Yes I’m the caregiver for my son but I’m going thru menopause and was wondering what others did to find relief because it’s not his fault he has epilepsy and autism and I a not my fault I have… read more

posted 7 hours ago
Does Anyone Still Blame The Person Or The Accident That Started Your Seizures For The Pain You Go Through Every Day?
A MyEpilepsyTeam Member asked a question 💭

What I mean is my seizures were started by too many blows to the headed by the abuse from my seizure. What do I do to let it go since I am reminded of it every day?

A MyEpilepsyTeam Member

Cheryl - it is ok to feel how you feel! You acquired your epilepsy in a completely different manner than the rest of our team
Give yourself some Grace about those feelings. I’m so sorry those things… read more

posted 6 hours ago
Are There Other Premed Students On This App That Have Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I updated "my story" for this app yesterday. And it mentions that I am currently working towards getting an associates degree in science (specifically surgical technology). But my long-term goal is to work towards getting a doctorate degree in neurosurgery . Having epilepsy is what has inspired me to pursue this goal. So I am curious to know if there are others that are on a similar journey.

A MyEpilepsyTeam Member

There was a time I wanted to go to school to become a Pharmacy tech( eventually a pharmacist). I didn't because I didn't want to risk that while dispensing someone else's medicines( for seizures or… read more

posted 14 hours ago
Do People With Epilepsy Also Have Behavioral Problems?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I have autism alongside my epilepsy as well as ADHD

posted 5 hours ago
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in