Connect with others who understand.

sign up log in
About MyEpilepsyTeam

Epilepsy

Questions + Answers

Don't see your question? ask question
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

Seizures

Seizures

Do You Guys Feel A Grand Mal Seizure Coming On ?? What Is It Like When You Have One ??...I Sleep For Hrs Afterwards & Sometimes Wake Up With A Headache & My Body Feel Like A Hard Core Work Out (Sore) . I Was Brused Once On My Forearm . Im Back To My Normal State After I Sleep . I Feel Mine Coming Bc I Space Out Alot Multiple Times Seconds Or Minutes Apart . I Do A Hard Jerk/Twitch & I Drop Whatever Is In My Hand At That Time Cause Of Course I Can't Control The Jerk/Twitch . Plus I Cant Focus… read more

A MyEpilepsyTeam Member said:

A couple i had a feeling of thats wierd and then woke up after the seizure. For the most of my seizures i just wake up on the floor, with. A tongue… read more

posted 25 minutes ago

How Do You Guys Find Other People React To Your Seizures

How Do You Guys Find Other People React To Your Seizures

Are they mostly supportive? Do they get freaked out? Lately I've had a bit of a hard time because the people around me while they care for me, and they help me they don't keep it a secret that it sometimes too much for them. It hurts me to know I'm hurting others around me.does anyone else feel this way?

A MyEpilepsyTeam Member said:

It seriously scares people. I feel so sorry for my husband. He feels helpless and scared. That's mainly why I wanted to get my VNS. I have been over 6… read more

posted about 5 hours ago

Brain Surgery

Brain Surgery

If You've Received Brain Surgery, How Did It Effect You Both In A Negative & Positive....I Want To Know The Pro & Cons.

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member that was like the same with where I had my surgery. Had 8/12 months of tests and surgeries at Abbott Hospital. But I'm sure… read more

posted about 4 hours ago
Sponsored Content
Learn more about available surgeries to treat epilepsy Read more >

How Do You Feel About Yourself Now That You've Been Diagnosed With Epilepsy ??

How Do You Feel About Yourself Now That You've Been Diagnosed With Epilepsy ??

A MyEpilepsyTeam Member said:

My epilepsy diagnosis was a relief. You know those weird out of body
feelings -once thought I was psychic or crazy..At 17 had my first biggy
-1972-… read more

posted about 18 hours ago

Cheese

Cheese

Has anyone had a seizure or seizure symptoms by eating cheese?

A MyEpilepsyTeam Member said:

Have never had any problems from eating CHEESE of any kind.
LOVE BLUE or Roquerfort cheese
In fact I don't have any FOOD allergies ~ Well used to have… read more

posted about 8 hours ago

Working With Epilepsy

Working With Epilepsy

How many of you have managed to maintain your full-time jobs with epilepsy? I feel like I was raised to always work hard and ignore every problem, but it is getting hard to manage. I do not have near the issues some people have and I know it's a struggle. After almost 20 years of this, it's finally starting to take it's toll on me. Any advice in this area?

A MyEpilepsyTeam Member said:

I aldo have chronic migraines too. It seems like I keep getting more medication for new issues and still trying to maintain my cognitive abilities and… read more

posted 1 day ago

What Are Symptoms Of Epilepsy Besides Seizures?

What Are Symptoms Of Epilepsy Besides Seizures?

My daughter has recently been diagnosed. Im struggling to find any info on other symptoms, especially that aren't caused by medications. Are seizures the only symptom?

A MyEpilepsyTeam Member said:

Starring, blinking alot, spontaneous things, muscle jerks, many other things

posted 4 days ago

What Should You Do When It’s Not Possible To Take Medication ‘on Time’?

What Should You Do When It’s Not Possible To Take Medication ‘on Time’?

I know you’re meant to take meds at the same time every day.
I take my morning medication at ~10.30am, but I work casual in retail - sometimes I’ll have morning shifts and be in the store in front of customers then.
I usually take my meds before the shift (today, that was ~8am). Is it better taking them then, 2.5hrs early, or afterwards, ~1hr late.

PS. There’s not always a chance for me to duck out to my locker and take them on time, and there’s… read more

A MyEpilepsyTeam Member said:

I take my tablets twice daily and since one of my drugs is a slow release drug [[treatment:tegretol:550881451fcaa30562000d6f]] slow release I have to… read more

posted 4 days ago

What Is The Best Medication To Take While Pregnant?

What Is The Best Medication To Take While Pregnant?

I am trying different medications right now that are safe to take while pregnant, but they haven’t worked well for me and I keep having seizures. Just wondering if any women can tell me medications that worked for them while pregnant?

A MyEpilepsyTeam Member said:

Thank you. I have been asking my doctor and not getting many answers. I’ve tried two meds that are safe to take while pregnant and I may need to try… read more

posted about 2 hours ago
Continue with Facebook
Sign up with your email
Already a Member? Log in