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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Any Feel Ashamed That They Have Epilepsy And Keeping It Quiet?
A MyEpilepsyTeam Member asked a question 💭

I keep it quiet and I don't want people to know. I've tried hiding but can't because I have seizures periodically.

posted 10 hours ago
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A MyEpilepsyTeam Member

Everyone from school to work has treated me with respect when I’ve had a seizure so I’ve never even kept it a secret that I have seizures.

posted 4 hours ago
Medical Marijuana
A MyEpilepsyTeam Member asked a question 💭

Hello Everyone,

I would like to know if any of you use marijuana instead of medication. Do you feel stoned and unable to do your daily things? I was diagnosed with epilepsy November 2022. I have tried 5 different medications and now the Dr wants me to try another. I can not stand the way they make me feel!

Thank You,

Deana

posted 11 hours ago
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A MyEpilepsyTeam Member

it is tricky... not because weed is safe (it is), it's the states and there laws. all you need to know is there is 2 main types of marijuana... cbd and thc. thc is more potent but getting effects. cbd… read more

posted 4 hours ago
Dose Anyone Else Take Their Meds And End Up Napping Afterwards Because Your Energy Gone???
A MyEpilepsyTeam Member asked a question 💭

I have energy before I take my meds in morning but shortly after I do I end up sleeping no matter what

posted 16 hours ago
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A MyEpilepsyTeam Member

Yes

posted 2 hours ago
Seizures And Flying
A MyEpilepsyTeam Member asked a question 💭

Epilepsy Seizures and Flying - A quick question does having Epilepsy Seizures (ones with no warnings prior, total blank out during and no recollection of whats happened after Ones) make you fearful of flying??

posted 19 hours ago
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A MyEpilepsyTeam Member

During my teens my dad lived in Colorado and every summer I would fly down in a play. I don’t know, if I ever seizured, but I would try to remember, to warn the person next to me about my seizures… read more

posted 2 hours ago (edited)
Does Anyone Else Take Melatonin To Help With Nocturnal Seizures?
A MyEpilepsyTeam Member asked a question 💭
posted 1 day ago
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A MyEpilepsyTeam Member

I tried but it made my seizures worse and I elbowed my girlfriend in the face while seizing in my sleep unfortunately. Even if it is a natural substance it isn’t good for seizures because it directly… read more

posted 1 day ago
How To Improve Your Memory Recall?
A MyEpilepsyTeam Member asked a question 💭

In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more

posted 2 days ago
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A MyEpilepsyTeam Member

According to my research Clonazepam/Klonopin was first approved by the US Food and Drug Administration in 1976. This approval means that it will be available from pharmaceutical companies in a… read more

posted 11 hours ago
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Overwhelmingly Sleepy
A MyEpilepsyTeam Member asked a question 💭

I have days where I have to really fight to stay awake. It's next to impossible to keep my eyes open.
I've been tested for a lot of things; but so far no answers.
Yesterday I underwent a Doppler ultrasound of my carotid arteries. (I'll have to wait several days for the results.)
Has anyone else experienced such sleepiness?

posted 2 days ago (edited)
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A MyEpilepsyTeam Member

Sometimes I sleep well at night. Other times ( like last night)
I don’t sleep at all. It varies.

posted 18 hours ago
What Is A Aura Or A Dizzy Spell With A Seizure
A MyEpilepsyTeam Member asked a question 💭

I’ve had these my whole life and they make me space out and cause me to faint a lot !

posted 2 days ago
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A MyEpilepsyTeam Member

Leslie The loss of bladder control is due to loss of muscle control from seizures. Very common during one like for me. Of course reason is known for need to urinate.too. Your lucky if no lack of… read more

posted 2 days ago
Autism Spectrum Disorder And Epilepsy With Depression?
A MyEpilepsyTeam Member asked a question 💭

It’s almost like you are blocked from reality v.s what is happening in the world around you because of stress!

posted 2 days ago
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A MyEpilepsyTeam Member

Negative thoughts can lead to negative outcomes. Stay positive!! Stress can cause seizures. When feeling down pick up the Bible. Remember that God will never give you more than you can handle. ❤️&🙏

posted 2 days ago
I Just Need To Know If Anyone With This Device Has Had This Hardcore Feeling Before
A MyEpilepsyTeam Member asked a question 💭

it’s a hard core burning feeling from the device in your chest up ur neck where the wiring goes. it’s like a vibrating burning, just a really really bad pain, my family said they could see the device in my chest popping out:/ i just donnnttt know what to do mannn

posted 2 days ago
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I have had my VNS completely removed. It didn’t cause any pain or damage. I’ve now had the RNS for 4 or 5 years.

posted 5 hours ago
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