Epilepsy

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3 medium

An Epilepsy Walk in WEST PALM BEACH ~ THERE ISN'T ONE !

Who lives in the West Palm Beach area & who would be interested in putting together an Epilepsy walk?
I was on faceBook this morning and just happened to notice that there wasn't a walk in Flordia.

posted about 5 hours ago
A MyEpilepsyTeam Member said:

I am in Tucson, Arizona. WAY
too far from me.
I usually get notifications about these kind of things. And I did not get anything on
Facebook, or… read more

posted about 5 hours ago
8 medium

Does anyone else suffer from nerve damage too?

posted 1 day ago
A MyEpilepsyTeam Member said:

Hi Veronica Do you mean pain like sciatic nerve or fibromyalgia? Many
conditions bring on this from swelling etc. In my case I have fibroid cysts
which… read more

posted about 4 hours ago
4 medium

If you have a seizure whilst napping does that count as a nocturnal seizure or awake seizure?

Don't know if I've had one or not but just curious

posted 2 days ago
A MyEpilepsyTeam Member said:

I’d still let your Dr. know. It’s for your safety and again you never know when they can appear? I used to have them awake now in my naps at times. I… read more

posted about 6 hours ago
7 medium

Ketogenic Diet??

Hi there,
I was wondering if any adults have experience using the ketogenic diet, apparently it’s not just for children any more. I’ve tried the Atkins diet twice, lasted a month on it at the most (ended up losing weight) but it was so boring and bland. This is the only option I have since extensive testing hasn’t revealed a focus/foci for my seizures. Any advice, resourcea would be much appreciated

posted 2 days ago
A MyEpilepsyTeam Member said:

I never heard of it. But I have tried a walking diet which you watch your carb intake. But you can still eat what you want but just less portions if you… read more

posted 1 day ago
5 medium

Vitamins are suppose to be good for you. However, they trigger my seizures. Does this happen to anybody else? If so, what else can you take?

posted 2 days ago
A MyEpilepsyTeam Member said:

i cant take any type of B vitamin. i dont get seizures on Bvitamins but i get this 'brain fog' where i cant remember anything. 2 seconds into what you… read more

posted 2 days ago
8 medium

Eczema and epilepsy

I suffer from eczema which is worse when my epilepsy and seizures are bad. Does anyone else have this problem?

posted 3 days ago
A MyEpilepsyTeam Member said:

I get eczema on the back of my calves. I've never noticed any correlation with my seizures though. My eczema is usually worse in the winter. I've found… read more

posted 1 day ago
6 medium

How can I calm my husband after seizures.

Need help on how to calm my husband after a seizure! He is very angry and confused and will fight. I have a fractured jaw from this last seizure.

posted 4 days ago
A MyEpilepsyTeam Member said:

When you talk with your husband after the seizure, remember, he's confused, probably scared, and probably wonders what happened. You have to tell him… read more

posted about 12 hours ago
5 medium

What is your sleep like?

I was reviewing my sleep log (started keeping one July 13, 2018). I haven’t been to bed before midnight. A couple of nights I went to bed at midnight but more often it is between 2am-5am. I don’t have a consistent sleep pattern. Some nights it’s 4 hours, some nights it’s 10 hours. Regardless of how many hours I sleep, I feel wiped out when I wake up.

What is your experience like?

edited, originally posted 4 days ago
A MyEpilepsyTeam Member said:

I'm flakey as far as my sleep schedule. It's regular, but off hours. Unless I'm involved in physical activity, by 9:00 pm I can't stay awake. If I go to… read more

posted about 11 hours ago
4 medium

Hair regrowth products

Update: Okay so I'm getting responses but none that answer my question. I appreciate hearing everyone's experiences but I really do need my question answered.

What hair regrowth/strengthening products do you use? (Minoxidil aside, because I already use it)

Topamax (Topiramate) badly damaged my hair follacles when I was on it a handful of years back. (I'm now 33 yrs old). I use Minoxidil, but I am wondering what else I could be doing. Any suggestions from those with the same issue?

edited, originally posted 4 days ago
A MyEpilepsyTeam Member said:

I am a lot older than you. I have very thin hair and baby fine. I use Nioxin to help it look fuller. I have been using this for 3 years now and my hair… read more

posted 3 days ago
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