I’m considering moving to the US and would just like some input as to the healthcare system (costs for repeat prescriptions etc.) for those living with controlled (most of the time) seizures.
Have any of you had success getting disability with controlled seizures? I'm considering applying, but my seizures are for the most part under control. I have some breakthrough seizures now and then because of missing or being late with my meds, but I haven't had a heavy seizure since March 2017. Still, I find it harder to concentrate and remember things at work, which has been the case for years but seems to be getting worse - as well as my social anxiety. I could work a… read more
My youngest diagnosed at a week old with epilepsy has been on meds. They have been raising her dose as she grows. He's hadn't had a seizure in almost a month but the last 4 days she's had an average of 15 seizures a day. The only thing that's changed is our luck really. Our car had to get a 1000$ fix, my partner and I have been thinking about breaking it off and my mother has left our lives so high stress right now. So do any of you find that when you are… read more
Been a labourer all my life only became an epileptic four years ago at 25 . No one seems to want to take on the liability . Sydney NSW
I was on the keto diet for 2.5 years and it worked well for me. However, I ended up stopping because it required too much preparation and I was getting lazy.
Now, I’m thinking of starting the keto carnivore diet because I’ve heard many great things agout it. Any thoughts?
Anyone has migraines that lead to seizures? For me its a trigger and i really try to get it under control as i am terrified of having a seizure. Been on aimovig to control the migraines but for the past week and a half it feels like my brain stem is about to pop. How do you control migraines anyone please.
I don't drink. Just havent ever been much of a drinker. Last night I had two mixed drinks. My son got married yesterday :) anyhow. I've had tons of mini seizures some were kinda violent but only lasting at most a minute or two. Was it the alcohol or just the stress of a busy long day?
Has anyone been dx with Mesial Temporal Sclerosis. From what i understand its responsible for at least 90% of retractable epilepsy. The only treatment is brain surgery. I am being tested. Did u have the surgery. What was your sucess. How was the surgery. Any info would b helpful
I woke with a fever in the middle of the night had about 5 mini seizures before I realized what was happening.
I got up and cooled myself bringing my temperature down. Took awhile for Tylenol to kick in..but once it did I was able to go back to bed without any more incidents. Kinda scary.
For those that have epilepsy and live in Scandinavian countries what is the medical systems and support like?