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Epilepsy

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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Red Hair And Vitamin D

Red Hair And Vitamin D

https://www.health.com/condition/skin-cancer/re...
I have read this information on a number of medical websites. We have an unfortunate amount of melanoma in the family. We don't tan, we burn and turn a lovely shade of amber. I also woke up near the end of eye surgery. Bummer. So, I know there is some truth to what some of these medical sites say. But, none of them said anything about epilepsy and vitamin D. Is epilepsy impacted by the MC1R gene aka melanocortin 1 receptor (alpha… read more

A MyEpilepsyTeam Member said:

Did you know you're not allowed to donate blood if epileptic I found out the hard way threw myself in 1 awhile back most of that day a blurry but it should be posted in the donation bus I'd like to… read more

posted about 4 hours ago
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Did Anybody Have This Problem?

Did Anybody Have This Problem?

Did anybody have trouble with medicade after you got married??

A MyEpilepsyTeam Member said:

Never had to go threw that as I got it from GM when got hired if didnt then I would get it from my wife as she work for the IRS but hope you get it

posted 2 days ago

How To Deal With Medicine Shortages In The US

How To Deal With Medicine Shortages In The US

With the increasing world tensions with China (They produce many of our meds), supply chain shortages, growing inflation, the potential for seeing the shelves bare of basic food necessities, would it be possible to get a sufficient level of medications to last us a couple months before the impact of some of these actually comes about? Without our meds, some of us could be facing some most unpleasant consequences.

A MyEpilepsyTeam Member said:

The commandment not to worry is definitely to be kept in mind as is mentioned in the Sermon on the Mount. Without meds, I don't know if there would be any changes or not. I would be really bummed… read more

posted 3 days ago

Does Anyone Have Nocturnal Seizures In Their REM Sleep?

Does Anyone Have Nocturnal Seizures In Their REM Sleep?

98% of my seizures happen during my REM sleep usually after 3am or later in the morning. I'm pretty much on a two week cycle. I have been on numerous AEDs and nothing seems to break the cycle. Was wondering if anyone has these types of seizures and have they found a treatment that has help reduce these type of seizure activity?

A MyEpilepsyTeam Member said:

Don’t you love some of these doctors. Your story reminds me of the joke. “I went in to see the doctor because my arm hurt when I bend it and he/she said then don’t bend it”
I do believe good sleep… read more

posted 3 days ago
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Auras Are My Big Thing Such As Cars Passing By Really Affect Me Voices In My Head.

Auras Are My Big Thing Such As Cars Passing By Really Affect Me Voices In My Head.

Also this morning I woke up had a seizure not sure what type, only knew because I was sweating and my wife gave me bucalim to stop jerking. Missed work again. No seizures for a month the 8th in 7 days, on meds have VNS (does help) but I cried this morning sick and tired of this. What to do any interesting research etc, Good luck to all.

A MyEpilepsyTeam Member said:

I can relate to lots of crying! I too have a VNS. My husband has noticed that it seems to make seizures shorter, but I staill experience auras. What flavor of seizures do you have? Mine are… read more

posted 3 days ago
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Mozart Reducing Seizures

Mozart Reducing Seizures

This sounds weird but i saw q bunch of scholarly articles regarding case studies of people listwning to mazart once q day. Specifically one piece in mozart ( mozart sonata two pianos in D, k448) scientists have seen the reduction in seziures of various ages but arent certain of the science as to why. im curious if anyone else has heard about this, or has tried it? I have started trying it a few days ago and i cant say anything for certain but i have noticed it help me sleep much better. And… read more

A MyEpilepsyTeam Member said:

My husband read this article out to me I try to relax by listening to classical music before I go to sleep ,sadly no change in seizure frequency though

posted 3 days ago

Has Anyone Ever Heard Of Or Taken A Med Called Neuriva?

Has Anyone Ever Heard Of Or Taken A Med Called Neuriva?

Was told that it can help with stress and was told by all my doctors that that's where all my seizures come from.

A MyEpilepsyTeam Member said:

I've never heard of it. But from what it sounds like, it has natural stuff in it. When it comes to natural stuff I take Omega-3 and fish oil/krill oil. Omega-3 is really good for your brain. I take it… read more

posted 4 days ago

Do You Experience Vomiting Or Nausea As Part Of Your Epilepsy? (and Not Caused By Medication)

Do You Experience Vomiting Or Nausea As Part Of Your Epilepsy? (and Not Caused By Medication)

I'm interested to know if vomiting or feeling like you'd like to be sick is a known occurance linked with epileptic seizures? And if you have experience of where that might fit in the epilepsy chain? Eg. Aura, seizure, or post ictal.

I know people can be nauseous from medication so I'm only asking if it's specifically related to the seizure itself.

Look forward to replies. Thank you.

A MyEpilepsyTeam Member said:

On the odd occasion I wake in the night with an aura ,a rising feeling of nausea in my stomach.At times ,if I take my meds @ 7:15 am & don't have breakfast til 10 that will cause me to feel sick.

posted 3 days ago
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