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Epilepsy And Pregnancy

Epilepsy And Pregnancy

Hello everyone
This question is mainly for the women who have carried children, but if you can answer this question in anyway please feel free!
My wife and I are talking now about having children, however here in Ontario the epilepsy world is a little behind and maybe outdated.

So my question to all the women is, what medication(s) where some of you on to make carrying your child/children safe? Because my doctors keep telling me it’s not safe and never going to be possible
So I’m… read more

posted 10 hours ago
A MyEpilepsyTeam Member

Please keep in mind that my daughters are in their 50s; and I'm sure times have changed
I was on phenobarbital and Dilantin during both pregnancies. When my first daughter was born, a doctor told… read more

posted 5 hours ago (edited)

How Did You Realize When You Were Developing Siezures

How Did You Realize When You Were Developing Siezures

posted 11 hours ago
A MyEpilepsyTeam Member

@Peanuts2
When I was 10 years old I was standing in my room and my mom came back and saw me drooling and staring at the wall. She said my name and I didn’t respond. I did hear her so I wasn’t… read more

posted 6 hours ago (edited)

Does Anyones Faith Carry Them When Everything Else Is Bleak

Does Anyones Faith Carry Them When Everything Else Is Bleak

Please I need some inspirational stories I love em they fuel me

posted 21 hours ago (edited)
A MyEpilepsyTeam Member

Thanks John

posted 2 hours ago

Does Anyone Have Seizures Associated With The Cerebellum?

Does Anyone Have Seizures Associated With The Cerebellum?

I have very old scar tissue in this area. Wondered if there is a connection to seizures.

posted 1 day ago
A MyEpilepsyTeam Member

I tried to research this and there are many scholarly articles available through Google. There's definitely a connection but I'll let you read those articles. 😊

posted 1 day ago

My Daughter Doesn’t Understand Why I Not Super In To Dating

My Daughter Doesn’t Understand Why I Not Super In To Dating

I am not as enthusiastic about dating now.i developed epilepsy from a traumatic brain injury from a ex partner. I only had one relationship since then it ended badly. I don’t know if it’s ptsd or the traumatic brain injury that is the root of the problem.I seem to have a hard time connecting on that area anymore.she wants me to find a wife.

posted 1 day ago
A MyEpilepsyTeam Member

Hey man I would tell her it is so you can devote more too her. But I getcha. If ya don't want to date it is your choice. No matter what the circumstances. We put too much emphasis on being with… read more

posted 1 day ago

Here Is The Answer To Being Asked About The Devices I Use

Here Is The Answer To Being Asked About The Devices I Use

posted 1 day ago
A MyEpilepsyTeam Member

Right

posted 6 hours ago

Does Anyone Else Use Smart Watches To Monitor O2 Levels To Notify Friends?

Does Anyone Else Use Smart Watches To Monitor O2 Levels To Notify Friends?

I use one that can be set off by over movement and start taking o2 levels. And if they are dropping they contact my friend to tell her. I might not be breathing I test it often to make sure it is working to. Paranoia lol

posted 2 days ago
A MyEpilepsyTeam Member

Awesome

posted 6 hours ago

Not Epilepsy Related, Just Need Inspiration… 😂

Not Epilepsy Related, Just Need Inspiration… 😂

We have decided on a first name for our baby girl, but can’t find a on a middle name we both like. We will be calling her Evelyn after my grandma. She will get Evie for short. We’re just really stuck for middle names….

posted 2 days ago
A MyEpilepsyTeam Member

EVIE DAWN RAE.

posted 2 days ago

Nerologist Running Own Test Not Asking For What Has Already Been Done

Nerologist Running Own Test Not Asking For What Has Already Been Done

Just seen the nerologist last Thurs Jan 2023.My Nerologist, She doesn't want anyone elses scans or tests. When I've already have had abnormal EEGs plus video EEG. MRI & Cat scans are all normal tho. Anyhow my Nerologist,She wants to do all her own
Workup. Is this normal?
Cause none of my sons Nerologists have did same testing they always went to next step/testing. He was finally diagnosed 2022 Generalized epilepsy after yrs (started when 14 yrs, now 25) of having them and being on meds.

posted 2 days ago
A MyEpilepsyTeam Member

But my offer is no joke. I make it not in jest. But I'm all seriousness

posted 20 hours ago
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