Epilepsy

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2 medium

Anyone using CBD OIL to augment seizure control? How do you arrive at a dose? And how long before noticing benefits?

My epilepsy was termed petit mal back in the day. Cognitive and absence more than anything, plus toss in ”co-stuff” like migraines, anxiety, depression, ADHD. My pharmacy started carrying a brand Ananda Professional and I started a full spectrum extract 600, 20 mg/ml; 2.5 weeks ago. Using 1.0 ml twice daily. Any insights?

posted 1 day ago
A MyEpilepsyTeam Member said:

i take koi cbd oil 500 mg about 1/2 a measuring dropper at night. it is from a local cbd store.
i used to have seizures (complex partials) a couple… read more

posted about 18 hours ago
8 medium

Mesial temporal sclerosis with focal dyscognitive seizures

Hi. I have been following your comments for a while, but up to now, I have been rather hesitant to ask for help.

My Husband was diagnosed with mesial temporal sclerosis at the age of 41. He suffers form FOCAL DYSCOGNITIVE SEIZURES (complex partial). Anybody out there with some advice?

posted 1 day ago
8 medium

Mesial temporal sclerosis with focal dyscognitive seizures

Hi. I have been following your comments for a while, but up to now, I have been rather hesitant to ask for help.

My Husband was diagnosed with mesial temporal sclerosis at the age of 41. He suffers form FOCAL DYSCOGNITIVE SEIZURES (complex partial). Anybody out there with some advice?

posted 1 day ago
0 medium

Removal of 2 medicines and sleep

Because I've been 1 year seizure, anxiety and depression free since surgery, my neurologist removed 2 of my 4 medicines. Tegretol (Epilepsy) and Mirtazaphine (anxiety/depression). Both have tiredness side effects. I've been having trouble sleeping since then. My usual bed time was 9:30, an hour after medications. My sleep doesn't even reach 6 hours anymore. Last night just 4 hours. I don't have as much as energy before. I've been feeling dizzy and it's affecting my childcare duty… read more

posted 1 day ago
A MyEpilepsyTeam Member said:

Thank you team! I researched and tried a couple of steps but didn't work. I got desperate so I took my Mirtazaphine and fell asleep.
I'll call my doctor… read more

posted about 24 hours ago
8 medium

Difficulty sleeping, any medications or OTC pills taken

My neurologist told me that I could have difficulty sleeping due to my medications and my overall condition. As I’m sure you all know, lack of a good night’s sleep will trigger seizures the next day.

I’m wondering if any of you have difficulty sleeping and if so what prescription meds or Over the Counter pills you take for this?

Thanks!

Guy

posted 2 days ago
A MyEpilepsyTeam Member said:

Regarding this question about sleep aids for people like us who have difficulty sleeping....you said you can’t imagine any seizure medications that don’… read more

edited, originally posted about 7 hours ago
3 medium

Neuro being lazy or conversion disorder? Zombie walk!!

Hey everyone,
.as you know I have seizures,

Frontal lobe seizures both sides primarily left sided though, simple and complex partial, and I have a small pituitary tumor. I've been recently diagnosed with the seizures.

Over the past year I've had this slowed gait, leg weakness since the birth of my daughter. I had a spinal epidural given I had a c section with her. I thought I just needed recovery etc. It's progressed to the point of walking like a zombie all… read more

posted 3 days ago
A MyEpilepsyTeam Member said:

Amen, don't be afraid or intimidated by the doctors. Ask and say whatever you feel. That's what they're there for.

posted about 6 hours ago
4 medium

Need some advice about my job/boss

So recently got new boss from 1st Oct... he doesnt know much about my epilespy. Hes a pharmacist and owner of the company so knows a bit but obv more to the drug side. Ever since he started he keeps telling me to i qoute “have a time out” or a “mental break” and it makes me feel quite uncomfortable as i know my limits and it makes me feel like a naughty kid or whatever when he says “have a time out”. What can i say or do to stop that without rocking the boat? Thanks x

posted 4 days ago
A MyEpilepsyTeam Member said:

I have had nice people treat me "special" thinking that it would make them feel better about how uncomfortable they felt about my "issue". (And I am an… read more

posted about 16 hours ago
2 medium

Hello everyone, I was wondering do any of you ever have more sezuires when the seasons Change?

It seems. Have more in the summer due to heat. More Cp and more auras in the fall winter due to low clouds, uncomfortable auras, de ju vue, anxiety, over sensitve and so on.

posted 4 days ago
A MyEpilepsyTeam Member said:

Weater and season change mess me up next to no sleep and stress

posted about 3 hours ago
7 medium

Rescue therapy for aura clusters

Hello all

Happy friday .
I'm an zebinix's to control my focal seizures since July 2017 . My epilepsy is the result of a cavernous malformation that hemorrhage and was removed in 2005 . I still get aura's quite regularly, my neurologist also gave me Ativan but said to use them sparsely. I think this was because of the addictive quality. Now I'm unsure should I take one when I get a aura. These aura come in clusters and leave me wiped out after and very shook. Any advice who be… read more

edited, originally posted 4 days ago
A MyEpilepsyTeam Member said:

I almost always take my rescue med, Valium, when I have a cluster of auras. If I get one aura I will use my VNS magnet, if it happens a second time I… read more

posted about 12 hours ago
3 medium

Can you end Keppra cold turkey after 24 days?

My boyfriend has been taking Keppra for 24 days. He had a seizure on Oct 14 and the doctor put him on 500mg twice a day. He is having bad side affects of moods, anger, and depression.
We want to stop it and just end the medicine. Today he only took 1 500mg.

It was his first seizure ever and he's never really taken any meds growing up, or even medicine (DayQuil/NyQuil) when he's sick. His body is super sensitive to any type of meds.

Waiting on the EEG and MRI results.… read more

posted 5 days ago
A MyEpilepsyTeam Member said:

Please don't get confused by all the answers/ suggestions this is NOT a Doctors
office. Screwing around with meds like this with no medical supervision… read more

posted about 6 hours ago
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