Epilepsy

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Whose had a VNS implanted and then upgraded to the new heartrate monitored VNS? What are the pros and cons of that upgrade?

Whose had a VNS implanted and then upgraded to the new heartrate monitored VNS? What are the pros and cons of that upgrade?

I got a VNS implanted. It's now 19 years old. I've been tested and the results say, I qualify for the newer VNS that's triggered by ones heartrate. Therefore I need people's advice and opinions to see if this is worth doing, by knowing some of other people's experiences.

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A MyEpilepsyTeam Member said:

My names jimmy ball I had vns in2001 and it helps me good,I don’t have grandmal seziures anymore I’m 59 yrs old never worked or drive I have two younger… read more

posted 10 minutes ago
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Im looking for recommendations on medication that doesn’t cause weight gain and isn’t expensive.

Im looking for recommendations on medication that doesn’t cause weight gain and isn’t expensive.

My current medication is $800 per month. I’m covered up to 80% thankfully but even $150 is expensive for a single mom.

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A MyEpilepsyTeam Member said:

I am sorry but I don't know of any meds that will stop weight gain I know that meds are expensive. You say you want to stop weight gain, by the looks of… read more

posted about 5 hours ago
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Do any of you feel that you have been taken advantage of?

Do any of you feel that you have been taken advantage of?

Lots of us have to stay under controll of others while some dont out of fear or need. Some of us refuse and go about on our own. Either way we all struggle either financially or body function or how we feel. How do all of you feel about your needs and has anyone ever known and taken advantage of you? If not have you ever fealt sheltered and how do you stay free even on your worst days.

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A MyEpilepsyTeam Member said:

I am now by myself apart from my late husbands 14 yr old cat, who happens to be lying on the table next to my iPhone as I try & send u messages. I… read more

posted about 22 hours ago
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Does epilepsy and mental disorders such as bipolar, scizophania, depression, anxiety, etc. have a connection?

Does epilepsy and mental disorders such as bipolar, scizophania, depression, anxiety, etc. have a connection?

I have 3 different types of seizures, schizoaffective disorder depressive type, depression, social anxiety, and more. I was wondering if there was anyone else out there in a similar situation as me or am I just a unique falling apart person.

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A MyEpilepsyTeam Member said:

So think about the most common triggers for anyone. Then think of the most common signs to get checked for mental health assistance. They are close to… read more

posted 42 minutes ago
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EEG and Results?

EEG and Results?

I recently had a 24 hour ambulatory EEG and my doctor said everything looked great. Then the actual report was released to me online. Does anyone know what this means: EEG Classification-Abnormal III
It doesnt sound ‘great’. I’ve never heard of this before so if anyone has insight it would be much appreciated!

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A MyEpilepsyTeam Member said:

Sorry to send this answer to You, but I have given up on eeg's. I have had at least 5. That does include one that was 24 hours long one that was a week… read more

posted 1 day ago
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Pregabalin

Pregabalin

Has anyone been on pregabalin? I have a bad feeling about it. As I’ve already tired gabapentin before and it didn’t work. What’s your experience with it

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A MyEpilepsyTeam Member said:

It’s not a new medicine. I was on Pregabalin way back in 2011 but it didn’t help my epilepsy at all and left me feeling awful so I was taken off it. I… read more

posted about 10 hours ago
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Alcohol and Epilepsy?

Alcohol and Epilepsy?

I am 22 years old, I just graduated from college. I am young and I like to go out with my friends and family and drink with them. I know that a lot, probably the majority, of the people on this will respond telling me not to drink any alcohol because it is dangerous. However, at my age and my social life, it just doesn't seem reasonable that I can not get drunk and have fun with my friends and have fun in my 20's like everyone else can.
Anyway, the day after drinking though is when I have… read more

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A MyEpilepsyTeam Member said:

I can understand how you feel, people do get scare that when we drink we will have bad seizures!! I still drink, even when people ask how many have you… read more

posted 1 day ago
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Side effects

Side effects

They have my 19 yo son on 5 different medications & he is still not completely seizure free. My son recently had Onfi added to his med regime, which elicited the most serious side effects thus far with personality changes, he has become very angry and is experiencing depression. This is not my son. I am very confused, worried, and frustrated. I am seeking to know if others will similar presentations of their epilepsy have had similar experiences? That you for letting me join this group. I am… read more

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A MyEpilepsyTeam Member said:

Hi @A MyEpilepsyTeam Member . It is much harder dealing with Epilepsy at a later age, compared to being born or being diagnosed at a early age.

When… read more

posted about 23 hours ago
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Blackouts

Blackouts

I noticed lately lots of people on the forum are having lots of blackouts as well as seizures. Is there a common link here or medication?

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A MyEpilepsyTeam Member said:

That is correct. An epileptic seizure causes increased prolactin levels in the blood and a misfire of electrical activity in the brain. That’s why you… read more

posted 1 day ago
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Can drinking coffee affect your epilepsy in anyway

Can drinking coffee affect your epilepsy in anyway

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A MyEpilepsyTeam Member said:

Well my neurologist let’s me have a beer at 5pm & then a glass or 2 of Sauvignon Blanc wine each night, if I’m ok!! Red wine is terrible.

posted 2 days ago
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