Epilepsy Questions and Answers | MyEpilepsyTeam

Connect with others who understand.

sign up log in
Resources
About MyEpilepsyTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:
Is There A Solution If The New Medication I Was Prescribed Isn't Covered By Insurance?
A MyEpilepsyTeam Member asked a question 💭

So I'm currently on some different medications. Two of which, the Zonisamide and Depakote, I've been on for a couple years but the effectiveness of the medication has worn off and I've started having seizures again every week to every month. Just recently my neurologist has wanted to switch me to Xcopri and has talked about RNS while taking this medication but this medication isn't covered by my insurance at all. I've been trying to fill the prescription and Everytime I try, I get an error… read more

posted 38 minutes ago
View reactions
A MyEpilepsyTeam Member

Eden2, contact the company that manufactures Xcopri. The pharmaceutical companies say it in their advertisements all the time, and like ProudTX said, sometimes they will offer a steep discount. It’s… read more

just posted
Sponsored Content
Find out more about different epilepsy treatments Read more >
I Had Seizures 24 Hours After First Two Covid Booster Shots, Did You?
A MyEpilepsyTeam Member asked a question 💭
posted 3 hours ago
Be the first to like/hug
A MyEpilepsyTeam Member

No, I had no association between seizures and the COVID vaccine. But that all depends upon an individual’s immune system response.

posted 12 minutes ago
Why Do Neuro Docs Try To Push You Into The PNES Bucket From The Start?
A MyEpilepsyTeam Member asked a question 💭

Just started the epilepsy journey this March, I’m 53. My Neuro wants me to do the inpatient 3-5 day EEG, which is fine. I’m on 1500 mg keppra 2xday, and 600mg gabapentin 3xday. I have what I’d call focal aware seizures that I get stuck in a state of staring and then my left shoulder and abdominal muscles shake / contract and release rapidly, lasting 1-3 minutes. Sometimes on bad days it can last up to 10 min. That’s rare. I have days when I have clusters of them, some days with none. I’ve only… read more

posted 4 hours ago
Be the first to like/hug
A MyEpilepsyTeam Member

Sounds very frustrating and scary. Personally I've had muscle contractions during a tonic clonic, but in tonic clonic you are never conscious so I've never seen it myself which I guess is the only… read more

posted 2 hours ago
What Safety Measures Do You Take? Devices Do You Use?
A MyEpilepsyTeam Member asked a question 💭

When I was diagnosed last year, my employer was 100% onsite no matter what - it was a small building so at least if I had a seizure someone might see me. At my new job that I started yesterday, it's hybrid, which I love, but I learned during my first day of onboarding that I will only see people in-person once a week since everyone gets to make their own schedule. My boss is 100% remote and lives in another state. The office is downtown in a skyscraper, but I was really surprised how few… read more

posted 5 hours ago
View reactions
A MyEpilepsyTeam Member

And once I knew what had happened, I explained about the seizure to the other co-worker (she was the one who went to our boss to report me for harassment), she explained that I had told her (who was… read more

posted 3 hours ago
Does Anyone Get Sick From Their Medications?
A MyEpilepsyTeam Member asked a question 💭

Does anyone get sick from their medications? I take 450mg trokendi pm, 300mg xcopri pm, and 300mg vimpat pm. I also take 200mg vimpat am, i used to take 300mg, but i ran out for two weeks and got sick everytime i tried to go back upso i remained at 200mg. Along with 100mg zoloft and a birth control pill. I got sock several times while trying to go back up on the vimpat, and afterwards. We know that was the cause, but now it hits me randomly, almost once or even twice every month, that may be a… read more

posted 10 hours ago
View reactions
A MyEpilepsyTeam Member

I have had certain medications in the past that caused me to be sick to my stomach. And if I ever forget to eat something before taking my Metformin (for diabetes), then I always remember how it felt… read more

posted 5 hours ago
Anyone On Keppra Have Depression And Are U Sad Every Day.
A MyEpilepsyTeam Member asked a question 💭
posted 20 hours ago
Be the first to like/hug
A MyEpilepsyTeam Member

I haven't had it. But I'm only on a low dosage. I did get it when I was on a higher dosage of Tegretol.

posted 9 hours ago
Can Anyone Tell Me What Kind Of Surzuies Do You Have ? How Long Does It Last ?
A MyEpilepsyTeam Member asked a question 💭
posted 1 day ago
Be the first to like/hug
A MyEpilepsyTeam Member

Mine are very different it last 1 hour and it hurt my body my back hurt there are not same surzuies am get older each day get scare but am try be positive right am hurt I fall yesterday body… read more

posted 1 hour ago
Trouble In Paradise 😖
A MyEpilepsyTeam Member asked a question 💭

anyone finds it difficult to have a relationship or marriage due to triggers or even being too emotional to the point where you just give up …

posted 1 day ago
View reactions
A MyEpilepsyTeam Member

I was married in my early stages of epilepsy and I do believe that it played a major factor in my divorce. I never reached out and tried to start another relationship but I would recommend to not… read more

posted 24 hours ago
Grapefruit ?!
A MyEpilepsyTeam Member asked a question 💭

Anyone else avoids anything to do with Grapefruit or other kinds of food or drink …
i know some avoid Alcohol , energy drinks and maybe caffeine …. but am curious what foods or drinks triggers your seizures

posted 1 day ago
Be the first to like/hug
A MyEpilepsyTeam Member

Actually, certain medications, like Tegretol and its generic versions are an excellent example of grapefruit interfering with the work of the medications.

I don't have any food triggers or… read more

posted 22 hours ago
Can I Have Different Types?
A MyEpilepsyTeam Member asked a question 💭

I seem to have different types of epilepsy? Is that possible or am I not remembering them accurately?

posted 2 days ago
View reactions
A MyEpilepsyTeam Member

It's possible I have 2 types of epilepsy

posted 1 day ago
Continue with Facebook
Continue with Google
Your privacy is our priority. By continuing, you accept our Terms of Use and Privacy Policy.
Already a Member? Log in