Questions & Answers

Has Anyone Tried The Ketogenic Diet Too Help With Their Epilepsy?

Epilepsy And Pregnancy

Hello everyone
This question is mainly for the women who have carried children, but if you can answer this question in anyway please feel free!
My wife and I are talking now about having children, however here in Ontario the epilepsy world is a little behind and maybe outdated.

So my question to all the women is, what medication(s) where some of you on to make carrying your child/children safe? Because my doctors keep telling me it’s not safe and never going to be possible
So I’m… read more

How Did You Realize When You Were Developing Siezures

Does Anyones Faith Carry Them When Everything Else Is Bleak

Please I need some inspirational stories I love em they fuel me

Does Anyone Have Seizures Associated With The Cerebellum?

I have very old scar tissue in this area. Wondered if there is a connection to seizures.

My Daughter Doesn’t Understand Why I Not Super In To Dating

I am not as enthusiastic about dating now.i developed epilepsy from a traumatic brain injury from a ex partner. I only had one relationship since then it ended badly. I don’t know if it’s ptsd or the traumatic brain injury that is the root of the problem.I seem to have a hard time connecting on that area anymore.she wants me to find a wife.

Here Is The Answer To Being Asked About The Devices I Use

Does Anyone Else Use Smart Watches To Monitor O2 Levels To Notify Friends?

I use one that can be set off by over movement and start taking o2 levels. And if they are dropping they contact my friend to tell her. I might not be breathing I test it often to make sure it is working to. Paranoia lol

Not Epilepsy Related, Just Need Inspiration… 😂

We have decided on a first name for our baby girl, but can’t find a on a middle name we both like. We will be calling her Evelyn after my grandma. She will get Evie for short. We’re just really stuck for middle names….

Nerologist Running Own Test Not Asking For What Has Already Been Done

Just seen the nerologist last Thurs Jan 2023.My Nerologist, She doesn't want anyone elses scans or tests. When I've already have had abnormal EEGs plus video EEG. MRI & Cat scans are all normal tho. Anyhow my Nerologist,She wants to do all her own
Workup. Is this normal?
Cause none of my sons Nerologists have did same testing they always went to next step/testing. He was finally diagnosed 2022 Generalized epilepsy after yrs (started when 14 yrs, now 25) of having them and being on meds.