My son has been in Vimpat for 3 months now. Today out of nowhere he developed itchy bumps all over his hands and feet shortly after his first pill in the morning. The rash went away as the day went on and then came back later tonight after his second dose of Vimpat. I’m concerned because the Vimpat seems to be helping him (no seizures since he’s been on it) but now I’m worried we might have to change meds again. Anyone react to medication like this months after starting it?
Totally normal to feel uncomfortable. When I used to go to court my deepest fears would be that I would have a seizure when I was making an argument before the court. Fortunately that never happened.… read more
During seizures I usually have stroke like symptoms, and every time I get a seizure i feel like im having a stroke. I know that it is a seizure but I can’t stop the fear of having a stroke from coming even though I logically know I’m not having one. Has anyone experienced something like this? I can’t stop the thoughts of stroke from happening
Hannabanana Before I knew bout my epilepsy I thought the same. First was I psychic crazy or on the verge of a stroke. That overwhelming feeling we get at first feels like this. I was relieved to know… read more
I'm worried I missed 2 days dosage of vimpat (200mg twice a day) because dtr did not call in prescription approval - I know I shouldn't wait last minute to call in refill but I called in on Wed. My last dose of vimpat Fri. nite. I am also on 100mg lamotrogine and 200mg Briviact twice a day and I haven't missed those. The pharmacy finally called today for pickup. I normally take my meds 10 am/pm daily. Should I take a pill tonite to get on regular schedule again or take right away. So far so… read more
Take your next scheduled dose if that is what your Dr wants it should say on your prescription.
Hello, my question to you is: Do solar flares, moon phases (full moon, new moon) affect you? They influence me a lot. please be specific and against
They do nothing for me. I remain my normal self.
Has anyone felt a sense of guilt because their child developed seizures?
I remember feeling terribly responsible when my daughter developed seizures. I thought it was my fault somehow.
I would say my prayers didn't feel guilty but more so a feeling of knowing they are helpless to do anything other than the norm (MD's, Meds, etc). I would never blame them as it is my life to live.
Yep in three days on a plane for another Dr few hundred miles from home.
5 years ago a hospital would not do an MRI because of my VNS (they said it was like a pacemaker… immediate’NO’!) But I am having one done this week, and the form I had to fill out didn’t put ‘neurological devices’ in without the ‘NO’. Has technology gotten better, or am I getting a driver up at 6:30 am only to be turned away at the door? 🤷♀️
When I first had seizures, I had Todd’s paralysis. I would get it on my whole right arm. It would last a day or two.
In high school (1980 - 1984), I had some issues, but I was still very intelligent (though did not know until 2021 that I was suffering from brain damage from the return of my Epilepsy in 1980 to when I was finally diagnosed in treated in 1997 --- this only being possible because research was published in 1995 that proved that Epileptic Partial Seizures existed. Thus some of the things that so many more older epileptics than me were being judged for before 1995 -- such as daydreaming, bad… read more
IT certainly did. Had many issues even once I got things straightened out enough to be mainstreamed back into the local school. Needed tutors for most of my classes, got held back 2 times. I did… read more
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