Epilepsy

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4 medium

Has anyone had an aura while refilling weekly pills?

I had one last night and was having problems thinking while refilling my pill cases. However, I knew that I had had these problems and had had auras at that time. So, this morning before I took my breakfast pills, I checked to make sure I had the correct pills in the case. When I noticed the pills which were not there and those which did not belong there, I went back and checked all of my cases to make changes to make sure that I had the pills in the proper… read more

posted about 6 hours ago by A MyEpilepsyTeam User

When/if that did happen, which has been a while. I wait to refill when fill fully recuperated. Before would finish, when was able. Would go over to see… read more

posted about 2 hours ago
8 medium

I do not experience auras...I don't know when a seizure is going to happen...are there other symptoms?

I collapse seize and take hours to come around. It has caused MD's to induce coma. I have become confused and stripped naked.I also tend to have multiple without returning to normal in between. I bite my tongue and wet my pants.These episodes started last August at age 31. It doesn't seem to relate to a "typical" seizure. can anybody relate?

posted about 18 hours ago by A MyEpilepsyTeam User

Yes, but mine started at age 18. They are called Grand Man Seizures none of the sea could understand why I had them. Fast forward early 50's o am… read more

posted about 5 hours ago
6 medium

Answers

me and my partner wanna start our own family what i am hoping to find out is it possible for me to have kids and if so how can i go about this

posted 2 days ago by A MyEpilepsyTeam User

I’m here cause it’s supports Me mentally. You don’t feel on yr own . And the resources have help too. Bless you all

posted 1 day ago
8 medium

Purpose of this forum

Epilepsy and its associated problems is serious and needs each sufferer to support one another. So what do people want from this site? advice, guidance, someone to share your thoughts with, a shoulder to cry on. In my opinion it is certainly not a dating site!

posted 2 days ago by A MyEpilepsyTeam User

This site is great if your looking for support , a little education, what type of Epilepsy we have and what’s the differences and similarity’s, what we… read more

posted about 9 hours ago
4 medium

Absence seizures actually True grand Mal seizures?

My son was recently diagnosed with Absence Seizures in which hid neurologist called them the true form of Grand Mal seizures that are hereditary. She said they usually start out as the small absence seizure of stare offs and eye fluttering, absence of awareness or unaware of anything happening during the spell. She explained to me that all people diagnosed with acute absence seizures will eventually endure full on grand Mal seizures with convulsions. Has anyone… read more

posted 3 days ago by A MyEpilepsyTeam User

I have Absence seizures but they don’t lead me into a grand mall seizure

posted about 9 hours ago
1 medium

Is it normal to have your blood tested while you are taking Dilantin?

posted 4 days ago by A MyEpilepsyTeam User

Thanks, Chastity. Both my neurologist and the pharmacist warned me about the effects of Dilantin on the bones and gums. The neurologist told me to tell… read more

posted 1 day ago
5 medium

How do you handle wandering postictal state if patient is in danger but is also aggressive towards others?

My husband wanders in an agitated and confused state after his tonic-clonic seizures. Last time he tried to escape the house onto the street but thankfully the paramedics arrived. I am not supposed to restrain him and could not convince him to stay indoors (he began to get slightly aggressive). Does anyone have any suggestions on how to handle this?

posted 4 days ago by A MyEpilepsyTeam User

I have lost awareness of my surroundings a couple of times, but was still conscious, if that makes sense?! Once I was in the drug store, I was browsing… read more

posted about 17 hours ago
5 medium

Is there support for partners of people with epilepsy?

My fiancé was wondering if there were supports out there for partners of people with epilepsy. After I have a seizure, I am pretty moody and he is learning to role with it, but I think having support would be helpful.

posted 7 days ago by A MyEpilepsyTeam User

The Epilepsy Foundation has support group. You may want to get o hold the Epilepsy Foundation in your state. Another idea, is to search around on here… read more

posted about 9 hours ago
1 medium

Vimpat

has anyone taken vimpat before taking a shower, and then have a seizure right after?

posted 8 days ago by A MyEpilepsyTeam User

My fiance took vimpat and it seemed to do well until we started to notice the side effects were greater and he would have less grand Mal seizures but… read more

posted 3 days ago
5 medium

Have others used neurofeedback to help with controlling their symptoms?

posted 8 days ago by A MyEpilepsyTeam User

My sister did a full study on it for her masters and found lots of people improved their control to seizure when it has a relationship to stress and… read more

posted 5 days ago
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