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Hi Everyone, Does Anyone Have Any Advice On Treating A Badly Bitten Tongue Due To Fortnightly Seizures? My Son Is Autistic And No Verbal.
Seizures And Sleep
Does anyone have seizures during they're sleep, waking up,
Or just falling asleep...
@A MyEpilepsyTeam Member. , Most but not all of my seizures occur in my sleep & so I don’t always know if I’ve had a seizure unless I notice something is odd or someone witnesses it like my Mom or… read more
Hi I'm Lianne Is Anyone From The Telford Area?
I have got secondary epilepsy and if I hadn't had that 2st seizure me and my unborn baby wouldn't be here. I had a massive brain tumour the pregnancy hormones made the tumour grow causing a seizure. Too long a story to add here but my baby is a healthy 24 year old.i was told he might not survive the 14 hour anesthetic
Hi @A MyEpilepsyTeam Member , Glad to hear you & your baby made it through that. If you click on “Meet Others” you can type in your location & it will show you others who live near that area. I see… read more
Racking My Brain But A Mate I Know Is Epileptic And He Was Telling Me With Epilepsy It’s Harder To Have Kids? Sorry For The Awkward Question
Im really sorry for the awkward question but this is a open non judgmental place to get help but it’s something that’s been racking my brain but a mate i know is epileptic and he was telling me with epilepsy it’s harder to have kids? Ive been single 10 years but i just wanted to know how accurate that is?
Again sorry for awkwardness
Honestly been scared to ask because it might make people uncomfortable or judge me for it
Aaron Please don't feel not the Dad type at your age. If due to having seizures kids are much more open minded bout. My kids grew up with with me having frequent drop down types never scared always… read more
Due To My Epilepsy, I Also Suffer From Major Depression & Anxiety... How Do You Maintain In A Battle Like This?
I've found that because of my seizures I keep myself isolated but in solitude, my depression tends to increase. However, going out around people, my anxiety becomes unmanageable and will trigger seizures... This is becoming more and more taxing as I grow older...
Easier said than done of course: find what makes happy or chill. For me it's playing my Trumpet, listening to tunes, playing video games, even cuddling with my cat. Find your zen. I used to smoke… read more
For Folks Who Use Mycophenolate For Autoimmune Epilepsy...
I was diagnosed with this type of epilepsy earlier in the year. Since my main doctor doesn't know what to do, he brought in an autoimmune consultant. Hasn't been ideal to work with, but the current situation is took me 3 messages in order to get him to look at my blood draw results he ordered and I told him what dose I am taking and the side effects and acts like this is a huge surprise to him. He's known since May. He wants me at 2K mg twice a day and even 500mg makes me so sick I finally… read more
@A MyEpilepsyTeam Member what do your doctors say? I'm worried they will no longer sign off on the DMV forms that it is okay for me to drive after 4 months because I'm "not following the treatment"
How To Tell If My Medication Is What Is Waking Me Up
So for the past few months, I've been waking up around 3 AM or 5 AM and I just can't fall back asleep, I don't know what to do. I've tried almost everything I've taken sleep studies. I've tried mouth guards. I've tried melatonin, and I'm not entirely sure at this point. So I'm pretty sure it's probably my epilepsy. Medication, that's keeping me awake.
I'm currently on zonegran and trileptal.
I usually have the same issue. Usually, for me it helps to stay physically active throughout the day. Most of the time I try & stay active and 10:30 or 11pm to midnight I shut off all the lights & put… read more
How Can I Tell If I Had A Seizure In My Sleep
I have grand maul seizures in my sleep only it seems and im taking keppra and divalproex for them. Sometimes like today I wake up feeling super tired and weak but my wife and baby who sleep in bed with me didnt notice anything.
Is it possible to have many different kinds of seizures while I'm sleeping and is it possible im having smaller seizures while I am awake and just not aware of what they are? Are either normal?
When I woke up today I was very weak and my body felt empty. Like a ripple… read more
Maybe if it's an option. You could try putting up a video camera and record yourself overnight while you're sleeping. If you don't have one, some cell phones might give you that option based on the… read more
What Are Your Top Tips For Dealing With Epilepsy In The Heat?
As I have always in the past before I was diagnosed. I grew up in South Florida and I know what hot is!
Could There Be Some Information On Narcolepsy.and Maby Other.disorders That May Have The Same Symptoms.???? Thank You I Didn't Find Anything
Other conditions related to Epilepsy……
Comorbid Neurological Disorder
Migraines
Brain Tumors
Rasmussen’s encephalitis
Dravet Syndrome
Hypothalamic Harmotoma
Non Epileptic Seizure conditions
Narcole… read more
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