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Question About Absent Seizures For Someone Who Works In The Medical Field.
So I work in an ER in St Louis, MO and I have Epilepsy and was diagnosed with Nocturnal seizures in 2021. I have in the past few months started having what seemed like panic attacks but without the rapid heart rate and no chest pain. I am unable to get the words from my head to my mouth and if someone is talking to me I can’t really make out what they are saying. It just sounds like jumbled words. I also get very clammy. I don’t know what to do, they are becoming more frequent and they keep… read more
I have nocturnal seizures as well. I wish they were more controlled but at least things aren't as bad as they used to be. Over the last several years, I've noticed that I'm dealing with the same thing… read more
Does Anybody Else Throw What Can Only Be Called Irational Temper Tantrums? Ive Had Trouble With This
I was taking clabozam but was taken of it for this reason and put on Fycompa. Now I wonder if it isnt working
I find myself having a lot of outbursts if I am off the medication or on it. I have clinical anxiety and depression as well as mild autism and I feel like the combination of those around the time of… read more
Surgery
Has anyone had the RNS device removed ?? I had to have mine removed because of an infection. I was told if the RNS is not replaced I would need cranioplasty. I’m afraid of having the device put back in and getting another infection.
@A MyEpilepsyTeam Member A few things to point out here, the RNS is attached to the Skull not the brain, so the infection is more than likely not related to brain. It probably could be fixed it just… read more
So Two Years Ago Was My First Seizure. I Dropped At Band Practice Hit The Drum Kit And Wound Up In The ER.
After 3 month stay I was released with diagnosis of Auto immune encephalitis.
Now two years and a different doctor, i was told I have Norse Epilepsy. Meds don't work so just had DBS. Waiting to see if that works on seizures. Anyone else misdiagnosed? Honestly don't know what it is or who to believe.
@A MyEpilepsyTeam Member, I've had it a long time from the worse to hardly have seizures any longer. Went through hard times but never hesitated to go to a different Dr. if didn't feel was being… read more
What Is A Good App To Help Log My Seizures?
Epsy
WHAT IS THE TREATMENT FOR TONIC-CLONIS EPILEPTICUS?
I have non-epilepsy, however ageing has caused focal seizures at night causing hard falls, and some emergency visits. Medical treatment and literature is scarce in Canada. Thank you.
Does NS have an Epilepsy group? Here in Edmonton we have one. I’m on the board .
Epilepsy Association of the Maritimes . I found it.
How Many People Live On Their Own?
My roommate is very difficult to live with and I've been saving for years to get my own place (pre epilepsy). Now, I'd still like to get my own place and have started attending open houses. What do you do to be safe? I'm still testing out different med combinations to manage the seizures. thank you
I wasn't able to live on my own. I was living with my brother for a while, then I moved in with my partner, I cant live on my own anymore I'm told
Does A Structured Or Unstructured Day Help Keep You Relatively Healthy?
A flexibly structured day helps keep me seizure free. No chaos! 4x6 cards help with the specifics, like “To Do” and grocery lists.
For myself I need a fluid but somewhat structured day. It helps me reduce the stress.
How To Handle Startle Seizures? What Are The Causes? What Can Be Done If Drug Resistant ?
Sorry I wish I could. In fact, I learned a new type of seizure. I’ve never heard of it. I’m guessing it’s a rare form of seizure
Seizures Impact Balance?
My sons14 nonverbal so it's hard to no how he's really feeling
@A MyEpilepsyTeam Member
Certain medications cause me to have uncontrollable eye movements (dizziness). You say your son is nonverbal. I can’t even tell when I have a seizure so if he was verbal he… read more
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