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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Ever Had The Dajavo Feeling, Black Out And Totally Wake Up In The The Spot U Didn't Pass Out In?
A MyEpilepsyTeam Member asked a question 💭
posted 2 days ago
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A MyEpilepsyTeam Member

When I was a kid I was in the middle of a baseball game. Then next thing I knew I was laying in the back of our car because I had a seizure

posted 1 day ago
Who Wears An ID Medical Epilepsy Bracelet?
A MyEpilepsyTeam Member asked a question 💭

I do not wear one, but I do keep looking for one for myself to wear. however I keep backing out and do not want everyone to see what I have to suffer with and what illness I have etc to strangers.
I do struggle at accepting my epilepsy and I always will hide it from people.
Does it make you feel comfortable wearing one? for those that have one. is it worth getting one?

posted 2 days ago
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A MyEpilepsyTeam Member

I wear one because my epilepsy is invisible until I am having a TC seizure. With this, if I ever were to have a seizure in public, people could see my medical bracelet and know that I have epilepsy… read more

posted 12 hours ago
Wondering What Are The Best Devices For Seizure Alerts
A MyEpilepsyTeam Member asked a question 💭

Had 3 seizures Monday night starting at 9 pm first one was absence and the other 2 were tonic clonic seizures

posted 2 days ago
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A MyEpilepsyTeam Member

I have a "MyID" band on my watch that the EMS and doctors can scan to get my medical information (medication, doctors, surgeries, ect.) When it is scanned it automatically alerts my emergency contacts… read more

posted 12 hours ago
Has Anybody Ever Built Up A Resistance To Their Medication And Had To Change It?
A MyEpilepsyTeam Member asked a question 💭

I've been on Keppra for 12 years and now starting to have complex partial seizures, Doc has introduced Epilim and Pregabalin to see how that works. I would appreciate any comments or feedback. Thanks !

posted 2 days ago
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A MyEpilepsyTeam Member

I have maxed out on all my medications. My only option left is the VNS unfortunately.

posted 12 hours ago
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I Had A Episode That Lasted 6 Minutes And I'm Really Nervous About This.
A MyEpilepsyTeam Member asked a question 💭

I was out and really don't remember anything that happened. I was told that the episode was little over 6 minutes.

posted 2 days ago
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A MyEpilepsyTeam Member

I had a seizure 2 weeks ago and I had aura and then the seizure that last 8 minutes which I'm worried...im going 2 see my dr tomorrow

posted 1 day ago
Walking After Having A Seizure
A MyEpilepsyTeam Member asked a question 💭

Multiple times I have taking a nap and had a seizure body convulsions that last about 30 seconds to 1 minute, then in an unconscious state it is like a fog . Last night was the first night I was able to open the door and walk outside, it was on a balcony and my husband came running. I don't know what to do about these.

posted 2 days ago
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A MyEpilepsyTeam Member

Maybe think about putting a child proof lock or a coded lock key box type thing there. That way when you're in a post ictal daze you hopefully won't put the code in.

posted 2 days ago
Does Anybody Have More Seizure When Your Out In The Humidity?
A MyEpilepsyTeam Member asked a question 💭

Many of the flowers Mom planted here are so beautiful but I just can’t get out and take care of them like they need.

It amazes me that some of these flowers are still coming up after their place in the yard gets mowed over and I don’t get out to pull weeds like I should.

I went out to get the mail today because it’s such a nice day I wanted to take a walk.

It was a very short walk because right away I started feeling an aura coming on as soon as I got to the mailbox. After that I went right… read more

posted 3 days ago
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A MyEpilepsyTeam Member

@Rust

Yes, at least as much as I can. That helps a lot.

Just seems like the best thing for me is to stay out of the heat and also to not over exert myself.

posted 2 days ago
Lapse Of Judgement
A MyEpilepsyTeam Member asked a question 💭

My mom was diagnosed with focal unaware seizures presumably left temporal onset ..and I want know if lapses of judgement can be seizure related or if Alzheimers or dementia might be setting in.

My mom had a major lapse of judgement today. Today despite me warning her not to, she decided to open the door for a total stranger without questioning him.

My mom and I don't usually open the door for anyone unless they call themselves or other family members call and inform us of someone coming that… read more

posted 3 days ago
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member no human’s judgement is perfect, even a person living without medical challenges or minor medical challenges.

I understand your concern for your family member, at same time I… read more

posted 3 days ago
Keppa And Aptiom (zebinix)
A MyEpilepsyTeam Member asked a question 💭

Anyone on keppra and aptiom? How do you find it in terms of sleepiness etc?

posted 3 days ago
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A MyEpilepsyTeam Member

Have been on keppra for many years, it gives me very intense dreams, I have found cannibis has helped to dull this side effect alot.

posted 3 days ago
What Do You Do To Get The EEG Glue Out Of Your Hair?
A MyEpilepsyTeam Member asked a question 💭

I’m getting another EEG on Thursday and it’s funny that I’ve had these so many times yet I still haven’t found the perfect way to get the glue out. If you have any ways that you think work pretty well with getting it out please let me know!!

posted 3 days ago
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A MyEpilepsyTeam Member

I accidentally turned off the camera when I was asleep one day in January. They did find 5-8 second events while sleeping. They told me to only be away from the camera for 20 minutes. I was supposed… read more

posted 2 days ago
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