When I was a kid I was in the middle of a baseball game. Then next thing I knew I was laying in the back of our car because I had a seizure
I do not wear one, but I do keep looking for one for myself to wear. however I keep backing out and do not want everyone to see what I have to suffer with and what illness I have etc to strangers.
I do struggle at accepting my epilepsy and I always will hide it from people.
Does it make you feel comfortable wearing one? for those that have one. is it worth getting one?
I wear one because my epilepsy is invisible until I am having a TC seizure. With this, if I ever were to have a seizure in public, people could see my medical bracelet and know that I have epilepsy… read more
Had 3 seizures Monday night starting at 9 pm first one was absence and the other 2 were tonic clonic seizures
I have a "MyID" band on my watch that the EMS and doctors can scan to get my medical information (medication, doctors, surgeries, ect.) When it is scanned it automatically alerts my emergency contacts… read more
I've been on Keppra for 12 years and now starting to have complex partial seizures, Doc has introduced Epilim and Pregabalin to see how that works. I would appreciate any comments or feedback. Thanks !
I have maxed out on all my medications. My only option left is the VNS unfortunately.
I was out and really don't remember anything that happened. I was told that the episode was little over 6 minutes.
I had a seizure 2 weeks ago and I had aura and then the seizure that last 8 minutes which I'm worried...im going 2 see my dr tomorrow
Multiple times I have taking a nap and had a seizure body convulsions that last about 30 seconds to 1 minute, then in an unconscious state it is like a fog . Last night was the first night I was able to open the door and walk outside, it was on a balcony and my husband came running. I don't know what to do about these.
Maybe think about putting a child proof lock or a coded lock key box type thing there. That way when you're in a post ictal daze you hopefully won't put the code in.
Many of the flowers Mom planted here are so beautiful but I just can’t get out and take care of them like they need.
It amazes me that some of these flowers are still coming up after their place in the yard gets mowed over and I don’t get out to pull weeds like I should.
I went out to get the mail today because it’s such a nice day I wanted to take a walk.
It was a very short walk because right away I started feeling an aura coming on as soon as I got to the mailbox. After that I went right… read more
Yes, at least as much as I can. That helps a lot.
Just seems like the best thing for me is to stay out of the heat and also to not over exert myself.
My mom was diagnosed with focal unaware seizures presumably left temporal onset ..and I want know if lapses of judgement can be seizure related or if Alzheimers or dementia might be setting in.
My mom had a major lapse of judgement today. Today despite me warning her not to, she decided to open the door for a total stranger without questioning him.
My mom and I don't usually open the door for anyone unless they call themselves or other family members call and inform us of someone coming that… read more
@A MyEpilepsyTeam Member no human’s judgement is perfect, even a person living without medical challenges or minor medical challenges.
I understand your concern for your family member, at same time I… read more
Anyone on keppra and aptiom? How do you find it in terms of sleepiness etc?
Have been on keppra for many years, it gives me very intense dreams, I have found cannibis has helped to dull this side effect alot.
I’m getting another EEG on Thursday and it’s funny that I’ve had these so many times yet I still haven’t found the perfect way to get the glue out. If you have any ways that you think work pretty well with getting it out please let me know!!
I accidentally turned off the camera when I was asleep one day in January. They did find 5-8 second events while sleeping. They told me to only be away from the camera for 20 minutes. I was supposed… read more