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Night Sweats, Unrelated To Meds Or Menopause

Night Sweats, Unrelated To Meds Or Menopause

Anyone else get night sweats EVERY SINGLE NIGHT (not from medication, menopause or perimenopause) specifically from their epilepsy? I sleep with my room probably about 55° every night yet every night I wake up 10 times every evening very uncomfortable and drenched in pools of sweat.

A MyEpilepsyTeam Member said:

Yes most nights

posted 2 days ago

Does Anybody Else Just Zone Out

Does Anybody Else Just Zone Out

I have times where i just zone out i dont think its a seisure like i am still there and know whats going on but im totaly in thought about somthing and i usualy dont know what that somthing is i Notice im doing it somtimes and almost have to pull myself out of it. people notice and always ask me if im ok.

what do you guys think i dont want to ask my neurologist he will just say its a seisure and upp my meds.

A MyEpilepsyTeam Member said:

I've gone through this many times myself. As long as it doesn't turn into a seizure I think you're fine. If you think he won't believe you then don't tell him. But make sure to watch out for warning… read more

posted 7 days ago

How Many Of You Have Sufferd Loss Of Sex Drive From Your Epilepsy/medications? Am I Alone? Anything To Be Done About It?

How Many Of You Have Sufferd Loss Of Sex Drive From Your Epilepsy/medications? Am I Alone? Anything To Be Done About It?

A MyEpilepsyTeam Member said:

Having epilepsy since birth with a seizure disorder at age 5 from sever phenomena and a temp of 105.9 and taking all kinds of medication for 45 years and suffering from depression and insomnia and… read more

posted 3 days ago

I Found It!!TLC Total Life Changes IASO Natural Detox Instant Herbal Tea?

I Found It!!TLC Total Life Changes IASO Natural Detox Instant Herbal Tea?

Has Anyone Ever Tried This Tea? I Literally Go 3 Days Without A Seizure. And Even Though It Has THC In It, You Just Wont Be Super High. Even Takes My Auras Away!! Please Try This. You'll Feel Normal Again, I Promise!!

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member ... trust your gut and research everything. i just got tlc tea ingredients... and (on a separate link) got the individual ingredients and then benefits.
and....

posted 10 days ago

Does Anyone Take XCopri?

Does Anyone Take XCopri?

Probably about to switch to this medication was just curious about side effects and how if it works well for some of you guys. Thanks in advance👍🏼

A MyEpilepsyTeam Member said:

as you can see when I hit a therapeutic dosage I had a pretty good drop in activity even though I am fairly drug resistant. Hopefully that helps.

posted 6 days ago

Ladies,did You Breastfeed Your Baby While On Multiple Medications?

Ladies,did You Breastfeed Your Baby While On Multiple Medications?

Firstly I didn't plan to fall pregnant, but at the end the neurologist said to take three small doses of medication throughout the day instead of 2 big ones..

But apparently during pregnancy the baby takes in more medication then breastfeeding so therefore apparently its safe

But I was only on one medication now I am on two.. anyone feed baby while on 2 meds? What did your neurologist say..

I'm thinking to mix feed with formula to reduce the medication in the milk even if the doctor says its… read more

A MyEpilepsyTeam Member said:

My children are now in their 30's .I was only placed on Teardrop as I had a tonic -clonic 6weeks before my eldest was born Back in the 80's the care wasn't so good back then I was advised that the Tegread more

posted 9 days ago

Experience Of Epilepsy In 3 Month Old Baby

Experience Of Epilepsy In 3 Month Old Baby

My step grandson has started having seizures. Mri ok. Eeg positive. He’s currently in hospital and now also having night seizures during sleep. Today an awake seizure lasted 3 mins. He’s been put on kepra
Any experiences/advice gratefully received

Has Anyone Seen A Psychiatrist Because Of The Depression Epilepsy Gives Us Vs Talking With Your Neuroloigst?

Has Anyone Seen A Psychiatrist Because Of The Depression Epilepsy Gives Us Vs Talking With Your Neuroloigst?

I'm meeting a Psychiatrist next month for the 1st time because of my depression with epilepsy. I'm hoping I'm walking in the right direction doing so and possibly getting on an anti depressive medication. Even though my grand mal seizures are spread 3-4 years apart they have caused major injuries. I've had surgery on my right rotator cuff twice years ago, pulled my other rotator cuff out of socket this past August, had minor surgery on my eye and trips to the ER. Not to mention the visits… read more

A MyEpilepsyTeam Member said:

Yes. I was actually eventually diagnosed with "medication resistant major depressive disorder due to brain damage from epilepsy," after trying every medication on Earth and doing every test. The only… read more

posted 9 days ago
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Has Anyone Ever Had An Out Of Body Experience During/after/before A Seizure?

Has Anyone Ever Had An Out Of Body Experience During/after/before A Seizure?

I can't pinpoint when exactly, but I had a seizure and I'm not sure whether this was during the last stages of the grand mal or whether it was during my "aura" phase but I had an out of body experience where I had a cold sweat and remember shivering and shaking. During the experience, I remember hearing a drone-like sound playing in the background, I was in my late grandfather’s house with all my cousins in a room, but the room got emptier until it was just me and my father in the room except… read more

A MyEpilepsyTeam Member said:

Your welcome @A MyEpilepsyTeam Member

posted 10 days ago

Does Anyone Have Experience With Cognitive Behavioral Therapy?

Does Anyone Have Experience With Cognitive Behavioral Therapy?

My nuero told me i’m experiencing stress induced seizures on top of my other ones and he recommended this. If you do have experience, did it help? How long did it take for you personally to see results?

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member Therapy doesn't work for everyone. However, it is great that you did not quit with that and found other ways to help yourself. In the end, it is not important (except when… read more

posted 2 days ago
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