Anyone Have Any Tips On Getting Doctors To Listen?

So, I’ve been trying for nearly a year now to get my medication changed (Lamotrigine). I hate it. It makes me feel terrible and makes living life as a university student very very difficult.

I had an appointment with a neurologist and when i expressed all the problems i had he dismissed me and told me that i was in a “good middle ground” because the seizures i’m having are small and only last a couple minutes (i get really confused and have to remind myself where i am, what’s happening, etc)… read more

Seizures Every 6 Months?

My son has been getting better at remembering to take his medication on his own but continues to have seizures every 6 months almost exactly even if he takes his medicine on time. Has anyone had experience with having seizures every 6 months?

Does Anyone Else Ever Wake Up Sometimes In The Morning And Have A Jerking Motion, Not A Seizure Just Jerking Motions?

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Has Anyone Had Or Has Seizures That Start With A Severe Thumb Cramp?

My Grand Mal seizures always would start with my right thumb cramping up to a point that it feels like my hand is peeling back open on itself. It's the worst pain you could ever imagine. I would start praying to go unconscious so I wouldn’t feel it anymore. Then that's when the convulsing and actual seizure would start after I blacked out. I would wake up 20-45 minutes later very confused and with a headache and all the blood vessels above and around my eyes would be popped from straining soo… read more

Have Anyone Had Children During The Epilepsy Exspireince ? , Being Diagnosed Epilepsy?

I am 25 years old , is scared to have children because of my disgnose , I need a little support ,

Epileptic Surgery???

My son is in the process of being tested for temporal lobe epileptic surgery. The neurologist told us it will stop the seizures. Has anyone in the group experienced this or have any positive feedback?

Has Anyone Been On Vimpat? I Noticed It Makes Me Angry Has Anyone Else Had This Effect?

Hi, I Have Been On Keppra For About 2 1/2 Years. I've Noticed When I Travel And Then Return Home,I Need A Day Or Two To Recover My Energy

I feel exhausted ,especially from air travel. Anyone else?

Gelastic Epilepsy

Hello friends,
I have gelastic epilepsy and have been on the search for anyone with this exact seizure as well. If anyone can connect me that would be great!

Medical ID Vs. Service Dog

I have non epileptic seizures and I would like to get some peoples opinion about different types of medical Id bracelets/necklaces or anything that is similar compared to getting a service dog.