Epilepsy Questions and Answers | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
11587 questions

Anyone Remember The Old Days When An EEG Was Performed Using Needles?

A MyEpilepsyTeam Member asked a question 💭

So far I've seen three different approaches to an EEG. Nowadays they glue them to your head. About 30 years ago I had a nurse rub my head raw with what felt like sandpaper and then glue it. But back in the early days of epilepsy, they had a dozen needles they stuck in your head. I remember it felt like they grabbed about 4-5 strands of hair and pulled them. It never hurt pulling them out. Sorry if you didn't care to hear this kind of stuff but I just can't forget it.

A MyEpilepsyTeam Member

I had never heard of that. Glad we have moved forward.

posted 22 hours ago

People With A VNS Noticed Any Seizures While Using A Microwave?

A MyEpilepsyTeam Member asked a question 💭

2 days running I had seizures after standing by a microwave oven while it was on.

A MyEpilepsyTeam Member

Well bab's this is just me but it sounds like you wore your self out from running. And that can bring on a seizure as well. Now Iv been by a microwave with My vns and RNS magnets . And I never had a… read more

posted 3 days ago
Sponsored Content
Learn more about VNS Therapy Read more >
Sponsored Content
Learn more about VNS Therapy Read more >

Anyone Using Brivact And Having Memory Issues After Starting It Recently. I Take Lamictal And Brivact And Am Forgetting Things More.

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I have some memory issues too. My doctor said it was due to my age, being on my medication for so long at high doses, my epilepsy, and menopause. I think it is different for everyone. I also know… read more

posted 21 hours ago

What Is Your Favorite Memory Of A Doctor Who Treated Your Epilepsy?

A MyEpilepsyTeam Member asked a question 💭

Dr. Krasnow! A neurologist. 1969! Patient, kind, understated. He suggested I keep my medicine for the day in a shot glass to help my memory. Dr. Krasnow was particularly gentle while talking to me of rousing me out of what was then an epileptic fog of uncontrolled seizures.

A MyEpilepsyTeam Member

Ilene Ruhoy, in Seattle, WA, looked for the cause of the seizures. She was caring and very thorough. She retired, unfortunately. I am with another great woman, now
There was another really great… read more

posted 22 hours ago

How To Adjust From A Country Life To An Apartment Life? I Recently Moved To Tunkhannock Pa. Do You Think My Two Seizures Are From Stress?

A MyEpilepsyTeam Member asked a question 💭

My oldest sister Courtney decided to kick me and my father out. I'm now the only one woman again just by cooking and cleaning up the place. Ever since we moved to the apartment I only had two minor seizures.

A MyEpilepsyTeam Member

It's dif per person, I think that you may have to adjust with your new surroundings but that is your call, and then get into a comfortable way of living then you once were, try and stay pos and hang… read more

posted 3 days ago

Has Anyone Tried Or Currently Taking Xcopri For Seizures? How Long? Does It Help?

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Have been taking Xcopri since November 2022, was having a medication issue as one in particular just wasn't working so we dropped the one causing the problem then began Xcopri, this has been working… read more

posted 4 days ago

Do Any Of You Have A Vagal Nerve Stimulator? Have You Found It Helps With Depression As Well As Seizures?

A MyEpilepsyTeam Member asked a question 💭

My doc said a VNS will not help with my seizures but could possibly ease my treatment resistant depression. I am desperate to try anything. He won't recommend I have another brain surgery however. Isn't there an exterior component as well? How does it work? 🧐
I could do my own research but would rather hear from y'all with personal experience.

A MyEpilepsyTeam Member

I have treatment resistant depression as well! I’ve heard about that being used as treatment for depression but was told that it could potentially trigger seizures. I have no idea what to believe… read more

posted 3 days ago
Sponsored Content
Learn more about treatment options for epilepsy Read more >
Sponsored Content
Learn more about VNS Therapy Read more >

Does Anyone Taking Lamotrigine Feel Depressed And Tired?

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I take lamotrigine 600mg daily. Since starting the medication I am more depressed, but I am not sure I can blame it all on the medication. There were a lot of other things going on in my life… read more

posted 21 hours ago

Helpful Info For Me As I Move To A New Doctor?

A MyEpilepsyTeam Member asked a question 💭

I’ve spent my first 3.5 years with general neurologist. I’m moving to an epileptologist in a couple weeks.

A MyEpilepsyTeam Member

Because my seizures have e gotten so bad and I've been in about 30 different epilepsy medications my neurologist wants me to go see a epileptologists so they can do the more in depth testing that I… read more

posted 4 days ago

My Name Is Kimberly Has Anybody Had The RNS Surgery And Still Having Seizures ?

A MyEpilepsyTeam Member asked a question 💭

I've had rns surgery done but yet still having seizures seems since I had the surgery I feel like it's made my seizures worse

A MyEpilepsyTeam Member

Hang in there and try and stay pos people

posted 6 days ago
Sponsored Content
Find out more about different epilepsy treatments Read more >
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in