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Ive Been Having Episodes Where I Have Trouble Breathing

Ive Been Having Episodes Where I Have Trouble Breathing

For a while now, not very often, it feel like my throat almost completely closes and my dad has to give me a form of cpr. My parents are thinking that i am having extreme allergic reactions from my summer allergies, aka pollen, or that i may even have asthma. I was just curious if any of guys have had something like this and it could be part of my epilepsy, i just dont want to worry about anything new.

A MyEpilepsyTeam Member said:

It sounds like your having a seizure and during the seizure you stop breathing, for what ever the reason is.

posted 5 days ago

Does Anyone Know Why Depakote Levels Would Be Low If Taking Double The Normal Dose?

Does Anyone Know Why Depakote Levels Would Be Low If Taking Double The Normal Dose?

My son is taking double the normal dose of depakote since Feb. 29 and normal dose of lamactal. His lab came back in the 40s! I was expecting it to be at the toxic level! He is having severe shakiness, moodiness, fatigue, and sleeping alot. But how could it possibly drop low again taking double? Ive been physically giving it to him to make sure there are no missed doses. This happen to anyone else and did u find out what caused it… read more

A MyEpilepsyTeam Member said:

If he’s taking another medication with his Depakote, it is possible that the Lamictal reducing the effects of the Depakote. That can happen. That’s also… read more

posted 6 days ago

Has Anyone Done A 7 Day At Home EEG?

Has Anyone Done A 7 Day At Home EEG?

A MyEpilepsyTeam Member said:

Never knew u could but then again I’m from Sydney Australia & we probably wouldn’t get this till a few years after Europe.

posted 4 days ago

Extratemporal Cortical Resection

Extratemporal Cortical Resection

Well , first off, this isnt a question, it’s a point of the scientific matter. After my craniotomy, with permission from my epileptologist, my family pitched in and got me a good amount of marijuana. Since then, ive had 3 neuro-psych evaluations. After having a 1/3 of my brain removed , with cognitive therapy, literally my IQ went up 14 points from the last test 8 years ago.my full scale IQ from the last test is 106. What really surprised me was my Perceptual Reasoning Index IQ… read more

Name Brand To Generic

Name Brand To Generic

Hey everyone. I recently decided to switch from name brand lamictal and keppra to generic. My doctor said it is cimpletely fine, but i just want to know if anyone has any first hand knowledge on this? Its just so much cheaper is why.

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member Good question. I think you should click on Contact Us on the bottom of the page and ask someone who designed this site to ask… read more

posted 3 days ago

Would The Real Aspie Epsy, Please Stand Up

Would The Real Aspie Epsy, Please Stand Up

Im looking to add to my team. Is there anyone else on here that also has been diagnosed with Autism Spectrum Disorder?

A MyEpilepsyTeam Member said:

I was recently diagnosed. Age 30y/o. ASD. But i would certainly fall in to that which was previously diagnosed as aspergers. Do you have any… read more

posted 7 days ago

Does Anyone Have Psychiatric Side Effects Of Lamictal!

Does Anyone Have Psychiatric Side Effects Of Lamictal!

Making up story, dizziness, depression, less or not aware, anxiety, more tired, negative emotions, hallucinating, vivid dream, nightmares, emotions fluctuate, visions in the head, psychiatric seizures, no peripheral vision, more regular seizures, continuously thinking negative or what where outcomes of it if too high

A MyEpilepsyTeam Member said:

I will b asking my travel agent when they r back open.

posted 2 days ago

Anyone Ever Take Elite CBD Cannabidiol Time Release Pills?

Anyone Ever Take Elite CBD Cannabidiol Time Release Pills?

GodMother brought me a bottle of them and she said it helps her pain. Told me it may work for my seizures. Doing research on them now.

A MyEpilepsyTeam Member said:

I love CBD oil and the results I get from using it. Seizure free, off opiate pain meds and pretty much pain free. I still take seizure meds and always… read more

posted 8 days ago

Have You Or Anyone Who You Know Had A Problem Finding A Good Neurologist?

Have You Or Anyone Who You Know Had A Problem Finding A Good Neurologist?

Is this an issue (for residents of the United States) because you are not living close to one of the large cities with major hospitals or medical facilities? Or do you know of other reasons?

And for you who do not live in the United States, do you have a similar problem in your country?

A MyEpilepsyTeam Member said:

I have an amazing neurologist and i live in a town not a city.

posted 4 days ago

Reishi Mushrooms

Reishi Mushrooms

Did anyone ever tried the Reishi mushroom i was told it could help with the seizure can anyone tell if they tried it if yes did it work ?

A MyEpilepsyTeam Member said:

I don't know anything about those

posted 12 days ago
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