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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Pain In My Temples
A MyEpilepsyTeam Member asked a question 💭

I have sharp pains that hit me in my temples. Does anyone else have this pain and what do you do for it. I am 65 and had seizures since 13 years of age. This pain just started about 2 years ago. My neurologist gave me a antiflmatory but it does not help. Some times it wakes me up. The pain in my head is horrible.

posted 2 days ago
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A MyEpilepsyTeam Member

Pain meds can cause constipation also.

posted 9 hours ago
Has Anyone Had Or Has Their Child Had A Frontal Lobe Resection Surgery? If So, How Did It Work Out?
A MyEpilepsyTeam Member asked a question 💭
posted 2 days ago
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A MyEpilepsyTeam Member

I have not had a frontal lobe resection, but I have experienced two left-hemisphere partial temporal lobectomy procedures in 1998 and 2000. These strongly reduced the severity and frequency of my… read more

posted 19 hours ago
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Do You Guys Ever Just Find Yourselves Feeling Tired?
A MyEpilepsyTeam Member asked a question 💭

I know that as an epileptic we need more sleep than the average person. I find myself taking naps just about every day because I’m tired no matter how much I may sleep the night before. I average about 5-6 hours because I’m a college student. Is this like really concerning or normal?

posted 2 days ago
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A MyEpilepsyTeam Member

I’ ve had new med. 6 months ago. Fall asleep in chair! This med controls my seizures accept when I forget. I get plenty of sleep.

posted 6 hours ago (edited)
Is It Possible For My Newly Diagnosed 12 Y/o Son To Outgrow Epilepsy?
A MyEpilepsyTeam Member asked a question 💭
posted 2 days ago
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A MyEpilepsyTeam Member

It depends on the original diagnosis. Some forms you just can't outgrow not matter when they a diagnosed but some are basically childhood forms and can be outgrown.

posted 9 hours ago
For Those That Have Been On A Stable Drug Regimen For A While How Long Did It Take For You To Get To That Point?
A MyEpilepsyTeam Member asked a question 💭

It has been almost one year since I was diagnosed with right temporal lobe epilepsy. I have tried Keppra (had to stop due to side effects) and am now on Briviact. My dosage was just increased due to a cluster of breakthrough seizures this week and I'm concerned that the drug may not work for me. I'm curious how long it took folks to find a drug regimen that worked best for them.

posted 2 days ago
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A MyEpilepsyTeam Member

It's so helpful to hear from all of you that have been dealing with this for a while. It's hard accept that there's no easy solution and that this is something that I'll need to constantly pay… read more

posted 1 day ago
How Many People Have Headaches That Last All Day After Aura's?
A MyEpilepsyTeam Member asked a question 💭
posted 2 days ago
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A MyEpilepsyTeam Member

I only had headaches that lasted all day after an aura barrage or mix of auras and simple partial seizures. My others came without any auras, but they did come with the all day headaches of varying… read more

posted 21 hours ago
Does Anyone Have Night Time Seizures?
A MyEpilepsyTeam Member asked a question 💭

They only last for a couple of seconds but it’s multiple ones

posted 2 days ago
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A MyEpilepsyTeam Member

I’ve had nocturnal seizures since the beginning and unless I wake up to an injury or different sleeping location than when went to bed I never know if they are still happening. There’s never any… read more

posted 2 days ago
Anyone Have To Have A Spinal Tap?
A MyEpilepsyTeam Member asked a question 💭

I guess I'm supposed to get one to test my brain...

posted 2 days ago
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A MyEpilepsyTeam Member

I had one about 35 years ago. I wanted to start seeing an epileptologist. He set me up for an MRI and told me there was a white matter around the brain. He said it could be MS and the only way to… read more

posted 2 days ago
For Those Who Have Epilepsy, Do You Feel Your Significant Other Places Their Work Travel Ahead Of Your Safety At Home?
A MyEpilepsyTeam Member asked a question 💭
posted 3 days ago
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A MyEpilepsyTeam Member

I have been an very independent person since last year also. My husband only helps me when we leave the house when I have to go to doctor appointments and only because I have little vision in my… read more

posted 1 day ago
Is There A App For This??
A MyEpilepsyTeam Member asked a question 💭
posted 3 days ago
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, If limited at all, it’s just a few apps that’s discontinued , for what ever the reason is

posted 2 days ago (edited)
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