Epilepsy

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4 medium

Do any have sensory seizures?

Do any have sensory seizures?

I had headache, nausea and vomited too. For three days this week!

It was because of my sensory seizure. I smelled rice and it suddenly got me that way. I mean fast.

I was so drained, tired, and sleepy. I was so knocked out that I sleep to the afternoon and the next day 1pm. The third day about 1pm-1:30pm.

I still get them here and there as far as headache and nausea , but not like the sensory seizure that is worst since I get drained, tired, and sleepy and lasts longer.

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A MyEpilepsyTeam Member said:

Going to a live event . Like a concert and sports event , can cause over excitement and trigger me into a seizure. Big family holidays can do it too.

posted about 11 hours ago
3 medium

Deja vu

Deja vu

Do any of you gets a deja vu before a seizure starts ??

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A MyEpilepsyTeam Member said:

I never get any warning before my grand mal seizures.

posted 1 day ago
8 medium

Sleep and Panicking

Sleep and Panicking

Does anyone find they sometimes can't sleep properly at night then they start panicking which leads to a seizure? I'm struggling to sleep at night and worried it's going to start triggering seizures. It's only since my doctor has changed my medication. Sometimes my brain won't shut down!

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A MyEpilepsyTeam Member said:

The nesting pillows seem to help me get to sleep most nights. However most nights I will then get up to go to the bathroom at 3 or 4. I really do not… read more

posted about 20 hours ago
1 medium

Whose had a VNS implanted and then upgraded to the new heartrate monitored VNS? What are the pros and cons of that upgrade?

Whose had a VNS implanted and then upgraded to the new heartrate monitored VNS? What are the pros and cons of that upgrade?

I got a VNS implanted. It's now 19 years old. I've been tested and the results say, I qualify for the newer VNS that's triggered by ones heartrate. Therefore I need people's advice and opinions to see if this is worth doing, by knowing some of other people's experiences.

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A MyEpilepsyTeam Member said:

Hi Jmaestas, I am glad that the implant has been helping you for that long a time. Is there something about the new implant that makes the doctor want… read more

posted about 5 hours ago
7 medium

Im looking for recommendations on medication that doesn’t cause weight gain and isn’t expensive.

Im looking for recommendations on medication that doesn’t cause weight gain and isn’t expensive.

My current medication is $800 per month. I’m covered up to 80% thankfully but even $150 is expensive for a single mom.

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A MyEpilepsyTeam Member said:

Your better talking to your doctor about side effects of you can go to www.drugs.com.

For the meds your and what your paying for it is nothing compared… read more

posted about 10 hours ago
7 medium

Do any of you feel that you have been taken advantage of?

Do any of you feel that you have been taken advantage of?

Lots of us have to stay under controll of others while some dont out of fear or need. Some of us refuse and go about on our own. Either way we all struggle either financially or body function or how we feel. How do all of you feel about your needs and has anyone ever known and taken advantage of you? If not have you ever fealt sheltered and how do you stay free even on your worst days.

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A MyEpilepsyTeam Member said:

I was engaged to a different guy before I had my accident. After the accident when I started having seizures and was put in the hospital to start meds… read more

posted 2 days ago
6 medium

Does epilepsy and mental disorders such as bipolar, scizophania, depression, anxiety, etc. have a connection?

Does epilepsy and mental disorders such as bipolar, scizophania, depression, anxiety, etc. have a connection?

I have 3 different types of seizures, schizoaffective disorder depressive type, depression, social anxiety, and more. I was wondering if there was anyone else out there in a similar situation as me or am I just a unique falling apart person.

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A MyEpilepsyTeam Member said:

We are not weird
I like looking at it as..
We are all unique..
Glad to help IBM anytime or add me to FB

posted 3 days ago
0 medium

EEG and Results?

EEG and Results?

I recently had a 24 hour ambulatory EEG and my doctor said everything looked great. Then the actual report was released to me online. Does anyone know what this means: EEG Classification-Abnormal III
It doesnt sound ‘great’. I’ve never heard of this before so if anyone has insight it would be much appreciated!

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A MyEpilepsyTeam Member said:

Sorry to send this answer to You, but I have given up on eeg's. I have had at least 5. That does include one that was 24 hours long one that was a week… read more

posted 5 days ago
5 medium

Pregabalin

Pregabalin

Has anyone been on pregabalin? I have a bad feeling about it. As I’ve already tired gabapentin before and it didn’t work. What’s your experience with it

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A MyEpilepsyTeam Member said:

Have never been on Pregablin~ Never even heard of it.
Have been on TEGRETOL since my first GrandMAL in 1969 @ age 15.
I'm now on Tegretol~ XR I take… read more

posted 2 days ago
3 medium

Alcohol and Epilepsy?

Alcohol and Epilepsy?

I am 22 years old, I just graduated from college. I am young and I like to go out with my friends and family and drink with them. I know that a lot, probably the majority, of the people on this will respond telling me not to drink any alcohol because it is dangerous. However, at my age and my social life, it just doesn't seem reasonable that I can not get drunk and have fun with my friends and have fun in my 20's like everyone else can.
Anyway, the day after drinking though is when I have… read more

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A MyEpilepsyTeam Member said:

I can understand how you feel, people do get scare that when we drink we will have bad seizures!! I still drink, even when people ask how many have you… read more

posted 5 days ago
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