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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
10892 questions
Does Anyone Have A Day That It Feels Like No One Has The Time To Talk To You? But Let You Have A Seizure, Hospital, It Changes?
A MyEpilepsyTeam Member asked a question 💭

What I mean is you don't want everyone to fall out or be scared of your seizures, but it would be nice to be called just to talk with you about something else. I saw a show today that made me think of getting a pet. At least I will have company? Is that stupid?

A MyEpilepsyTeam Member

100% I AGREE! 🦮💝
That is why Igot a seizure service alert dog. She may not warn me of my seizures. But she decrease them. Also, if I didn't have her I be living in a room with white paddd walls.🤪! I… read more

posted 1 day ago
I Sometimes Feel Tired And Exhausted In The Afternoon Like I Ran Out Of Fuel . Take A Power Nap And Back To Work
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I feel like the lights were nice and bright and someone turned them off,only security lights are on.
I appreciate the feedback, I just don't know. My blood work is good.

posted 4 days ago
So With My Seizures Sometimes Before It Happens I Will Get A Weird Smell And It Makes Me Do Weird Things I Don't Know I'm Doing
A MyEpilepsyTeam Member asked a question 💭

I have epilepsy and I suffer from tons of tonic clonic seizures atleast once a week sometimes twice and I get those smells and the weird things I do during it without knowing almost everyday and meds made my condition worse

A MyEpilepsyTeam Member

Oh wow, I've never smelled or heard anything. But I have woken up walking barefoot down the block and the cops approach me to see what's up. I woken up at that point totally confused about what… read more

posted 2 days ago
Why Do I Have To Sign In ?
A MyEpilepsyTeam Member asked a question 💭

Every time I reply to a member I have to enter my email address and password why?

A MyEpilepsyTeam Member

Thanks for your support , I am doing that now to make a connection.

posted 4 days ago
Do You Think I Have Got A Good Reason ?
A MyEpilepsyTeam Member asked a question 💭

My daughters not diagnosed with Epilepsy, however she has been having mental health issues and is waiting for a assessment. Is it worthwhile me seeking my epilepsy nurse to add input.

A MyEpilepsyTeam Member

I just wanted to add the depression and anxiety are common in epilepsy. There are other mental health issues.
Google "epilepsy and mental health" and you will learn more..

posted 17 hours ago
What Do You Guys Think/know About The VNS…. My Neurologist Brought It Up Once And I Think I Might Need It.
A MyEpilepsyTeam Member asked a question 💭

VNS (vagus nerve stimulator) it’s an implant
I have been on five seizure meds in the last four years and they are not working as well as I need them to.

A MyEpilepsyTeam Member

My son got his in December 2023 and I’m still not sure it’s working

posted 5 days ago
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I've Heard Testimonies Of People With Epilepsy Having Frequent Experiences Of Dejavu. Does Anyone Out There Have These Symptoms?
A MyEpilepsyTeam Member asked a question 💭

Throughout my life and still today, I've experienced feelings like I've been here before or I knew something would happen. It may not have anything to do with my condition but I've read similar testimonies and was wondering if anyone else out there experiences this.

A MyEpilepsyTeam Member

Gigi Love when long term epileptics post bout seizures. As tough as they seem always keep in mind we're fine after. Just relax let it pass then shrug off like a bad dream. Einstein felt same bout his.

posted 5 days ago
I Am 36 I Have Been Diagnosed Since 12 With Epilepsy. When You Get Older Can Seizures Spread Throughout The Brain?
A MyEpilepsyTeam Member asked a question 💭

I take Clonazepam.5 ml as as needed can I take it with my regular meds instead as a as needed because it stops my seizures right away my other meds just slows them down.

A MyEpilepsyTeam Member

Yo may be able to just check with your doctor 1st. I say that because some meds may interact with other meds changing actions of other meds or effects it can cause to other problems possible. Such as… read more

posted 4 days ago
Does Anyone Ever Have A Seizure Out Of No Where In Front Of A Family Member
A MyEpilepsyTeam Member asked a question 💭

I just had a seizure in front of my aunt and her husband out of no where it was all caused by a firetruck and every time you have one do you apologize to everyone for having it

A MyEpilepsyTeam Member

church, court 2 wks ago it seems no where are time is off limit

posted 3 days ago
I’m A Single Mom And I Just Wonder Why My Son Has To Be The One To Have Autism And Epilepsy… Not Complaining But Venting
A MyEpilepsyTeam Member asked a question 💭

And he’s just a tiny part of all the other stuff I got going on bad here at home ( I know others may have it worse ) and they say god gives you only what you can handle … well not today I’m tired and frustrated with everything

A MyEpilepsyTeam Member

Yes I prefer to stay alone then to get cheated on or hit by a man or them taking my sons money behind my back @A MyEpilepsyTeam Member

posted 3 days ago
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