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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Fear And Focal Aware Seizures
A MyEpilepsyTeam Member asked a question 💭

During seizures I usually have stroke like symptoms, and every time I get a seizure i feel like im having a stroke. I know that it is a seizure but I can’t stop the fear of having a stroke from coming even though I logically know I’m not having one. Has anyone experienced something like this? I can’t stop the thoughts of stroke from happening

posted 4 days ago
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A MyEpilepsyTeam Member

Thanks for your answer margery! It’s comforting knowing I’m not the only one 💕

posted 3 days ago
Missed Dosages
A MyEpilepsyTeam Member asked a question 💭

I'm worried I missed 2 days dosage of vimpat (200mg twice a day) because dtr did not call in prescription approval - I know I shouldn't wait last minute to call in refill but I called in on Wed. My last dose of vimpat Fri. nite. I am also on 100mg lamotrogine and 200mg Briviact twice a day and I haven't missed those. The pharmacy finally called today for pickup. I normally take my meds 10 am/pm daily. Should I take a pill tonite to get on regular schedule again or take right away. So far so… read more

posted 4 days ago
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A MyEpilepsyTeam Member

John wick is an amazing movie what special effects are now is just wow.

posted 2 days ago
Seizures And Weather Conditions
A MyEpilepsyTeam Member asked a question 💭

Hello, my question to you is: Do solar flares, moon phases (full moon, new moon) affect you? They influence me a lot. please be specific and against

posted 5 days ago
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A MyEpilepsyTeam Member

I can’t answer to the moon and activities, but down here on the surface, we can get seizures from being in hot weather and cold weather may affect other people,

Then there the change in the… read more

posted 4 days ago
Guilt
A MyEpilepsyTeam Member asked a question 💭

Has anyone felt a sense of guilt because their child developed seizures?
I remember feeling terribly responsible when my daughter developed seizures. I thought it was my fault somehow.

posted 5 days ago (edited)
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A MyEpilepsyTeam Member

Loren2,
I know. 😁

posted 1 day ago
Does Anyone Else Notice That Our System Health Care Isn't Much Different Than Foreign. At Least In The Past 10 Yrs?
A MyEpilepsyTeam Member asked a question 💭
posted 5 days ago
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A MyEpilepsyTeam Member

This is the year of changes time for healing and health and willpower Stand firm in the foundation of faith remember the Soul never age's only the Flesh age's, keep the Family Faith and remember that… read more

posted 2 days ago
MRI With A VNS Implant?
A MyEpilepsyTeam Member asked a question 💭

5 years ago a hospital would not do an MRI because of my VNS (they said it was like a pacemaker… immediate’NO’!) But I am having one done this week, and the form I had to fill out didn’t put ‘neurological devices’ in without the ‘NO’. Has technology gotten better, or am I getting a driver up at 6:30 am only to be turned away at the door? 🤷‍♀️

posted 5 days ago
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A MyEpilepsyTeam Member

Woops, I was waking up! MRI machines are generally— or + +, now!

posted 3 days ago
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I've Been Experiencing Symptoms OfTodd's Paralysis It's In A Few Case's Of Epilepsy. Has Anyone Heard Or Have This And Could Give Advice
A MyEpilepsyTeam Member asked a question 💭
posted 6 days ago
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A MyEpilepsyTeam Member

When I first had seizures, I had Todd’s paralysis. I would get it on my whole right arm. It would last a day or two.

posted 5 days ago
Did Epilepsy (for Those Of You Who Were Diagnosed Young) Hamper Your Chances To Graduate High School? Or To Go On To College?
A MyEpilepsyTeam Member asked a question 💭

In high school (1980 - 1984), I had some issues, but I was still very intelligent (though did not know until 2021 that I was suffering from brain damage from the return of my Epilepsy in 1980 to when I was finally diagnosed in treated in 1997 --- this only being possible because research was published in 1995 that proved that Epileptic Partial Seizures existed. Thus some of the things that so many more older epileptics than me were being judged for before 1995 -- such as daydreaming, bad… read more

posted 6 days ago
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I used to get this all the time when I was in primary school. mainly due to the fact that when I was a child I was mainly treated by a paediatrician (basically a GP that does… read more

posted 2 days ago
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Smoothie Recipes
A MyEpilepsyTeam Member asked a question 💭

Does anyone make smoothies? I have a NitruBullet and have been making the same one for breakfast for a long time and want to change it up. Also, if there are recommendations for someone with epilepsy. I am mainly looking for breakfast ideas, but open to any.

posted 6 days ago
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A MyEpilepsyTeam Member

Thank you for the recommendations so far.

posted 4 days ago
Are There Wars Really Going On?
A MyEpilepsyTeam Member asked a question 💭

Wars bring homeless, wounded, dead, mentally ill. Wars bring sad, frustrated, uncertainty. Wars kill.

posted 6 days ago
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A MyEpilepsyTeam Member

But I just wanna go home sometimes

posted 5 days ago
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