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During seizures I usually have stroke like symptoms, and every time I get a seizure i feel like im having a stroke. I know that it is a seizure but I can’t stop the fear of having a stroke from coming even though I logically know I’m not having one. Has anyone experienced something like this? I can’t stop the thoughts of stroke from happening
Thanks for your answer margery! It’s comforting knowing I’m not the only one 💕
I'm worried I missed 2 days dosage of vimpat (200mg twice a day) because dtr did not call in prescription approval - I know I shouldn't wait last minute to call in refill but I called in on Wed. My last dose of vimpat Fri. nite. I am also on 100mg lamotrogine and 200mg Briviact twice a day and I haven't missed those. The pharmacy finally called today for pickup. I normally take my meds 10 am/pm daily. Should I take a pill tonite to get on regular schedule again or take right away. So far so… read more
John wick is an amazing movie what special effects are now is just wow.
Hello, my question to you is: Do solar flares, moon phases (full moon, new moon) affect you? They influence me a lot. please be specific and against
I can’t answer to the moon and activities, but down here on the surface, we can get seizures from being in hot weather and cold weather may affect other people,
Then there the change in the… read more
Has anyone felt a sense of guilt because their child developed seizures?
I remember feeling terribly responsible when my daughter developed seizures. I thought it was my fault somehow.
Loren2,
I know. 😁
This is the year of changes time for healing and health and willpower Stand firm in the foundation of faith remember the Soul never age's only the Flesh age's, keep the Family Faith and remember that… read more
5 years ago a hospital would not do an MRI because of my VNS (they said it was like a pacemaker… immediate’NO’!) But I am having one done this week, and the form I had to fill out didn’t put ‘neurological devices’ in without the ‘NO’. Has technology gotten better, or am I getting a driver up at 6:30 am only to be turned away at the door? 🤷♀️
Woops, I was waking up! MRI machines are generally— or + +, now!
When I first had seizures, I had Todd’s paralysis. I would get it on my whole right arm. It would last a day or two.
In high school (1980 - 1984), I had some issues, but I was still very intelligent (though did not know until 2021 that I was suffering from brain damage from the return of my Epilepsy in 1980 to when I was finally diagnosed in treated in 1997 --- this only being possible because research was published in 1995 that proved that Epileptic Partial Seizures existed. Thus some of the things that so many more older epileptics than me were being judged for before 1995 -- such as daydreaming, bad… read more
@A MyEpilepsyTeam Member I used to get this all the time when I was in primary school. mainly due to the fact that when I was a child I was mainly treated by a paediatrician (basically a GP that does… read more
Does anyone make smoothies? I have a NitruBullet and have been making the same one for breakfast for a long time and want to change it up. Also, if there are recommendations for someone with epilepsy. I am mainly looking for breakfast ideas, but open to any.
Thank you for the recommendations so far.
Wars bring homeless, wounded, dead, mentally ill. Wars bring sad, frustrated, uncertainty. Wars kill.
But I just wanna go home sometimes
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