My husband suddenly started having grand mal seizures about 6 years ago completely out of the blue and was diagnosed with epilepsy about 6 months after his first cluster of seizures. He was young (27) fit and healthy and strong as he is a farmer, since the epilepsy began he has changed in almost every way... can anyone else relate?
I am wondering if anybody has noticed their seizures getting worse or happening more or more intense with methadone? I'm on it for pain because I have a bad back and I have neuropathy and a bad knee. My husband googled methadone and it says people with epilepsy should not be taking it and that it could cause seizures. I take a low dose I take 5 mg three times a day I also take meloxicam which is mobic one time a day and flexeril three times a day.
I have God's grace and the ocean and beach plus Bob Marley today is the second anniversary of my wife's passing away I'm sitting on the beach looking at the ocean listening to Jimmy Buffett drinking… read more
It was my son having, what I think is a seizure, and I am getting push back saying he is in pain. Background: has CP and has had seizures all his life. He is having increased seizures, mostly focal and some/rare tonic clonic. While there might be pain I know it isn’t it. Getting desperate.
Wow I never thought to ask for video of eeg when I had seizures during the 5 day eeg. I have to schedule another so I will definitely ask
Ask pain management Dr about it it's made by Abbott Via St Jude's hospital. . Mine is a Proclaim XR . Reduced my sciatica pain by 50%.
Also my Neurosurgeon approved it and the chance of a Grand Maul or any other seizure is low!
I started Xcopri 2 weeks ago and have now been experiencing muscle pain! I'm not sure if I have a kidney stone or what because it was just my back aching! But now my neck is hurting and my butt was aching so bad earlier😥😥
Call your pharmacy and ask them and see if they can give you an idea what to use
Recently my husband has been experiencing chest pains on the daily but has been cleared by his cardiologist via an echo, cardiac cath, stress test and halter. Does anyone experience this? Not sure if it's side effects from the Dilantin. Can Epilepsy cause idiopathic chest pain?!? Please Help!
Do you know what your Sodium levels are like? I'm pretty sure if your Sodium is too high this can lead to acid build up then if it gets bad enough bone break down leading to broken bones. But I think… read more
I have maxed out on all my medications, and they do not help my seizures. My seizures have been getting worse and more intense. My neurologist said my last option is the VNS, but I want to learn more about it before I go through with it
I can always tell when I have a seizure because it feels like I was rubbing my eyes on the carpet. It normally feels like this all day. Does this happen to anyone else? Does anyone know why this happens?
That's a. Interesting symptom
Is there a difference between the spinal tap into the brain stem nurologicaly or is it the same?
The link below from the US National Library of Medicine is the main page on spinal diseases and additional information: https://medlineplus.gov/spinalcorddiseases.html
I have focal eppilepsy. My speech is very impaired now. Vision is now double. Balance is impaired. Meds ia now toplep 300mg a day and epitec 200mg a day split in half morning and night.
Over the last 3 weeks my speech and vision as well as balance has started going. My fits have increased significantly. I am suffering feom chest pain as well. Muscular i canntouch. This I cant.
The neuro has kept up with the diary has to be submitted in a few weeks.
Please sgare your expieriences with me. Is… read more
I hear you @A MyEpilepsyTeam Member. I get side-effects from my medication too. I am on 4 different AEDs(one of them is in 2 strengths)which makes it worse. They tend to say ‘the more AEDs you are… read more