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A MyEpilepsyTeam Member asked a question ๐Ÿ’ญ
Salt Lake City, UT

I can always tell when I have a seizure because it feels like I was rubbing my eyes on the carpet. It normally feels like this all day. Does this happen to anyone else? Does anyone know why this happens?

September 23, 2020
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Answer Summary

Members overwhelmingly confirmed that eye pain, light sensitivity, and blurry vision after a seizure are common experiences, with many noting... Read more

Members overwhelmingly confirmed that eye pain, light sensitivity, and blurry vision after a seizure are common experiences, with many noting it helps them recognize when a seizure has occurred. Several members shared related after-effects including severe migraines, facial numbness, muscle soreness, and fatigue, with some finding that sleep and strong pain relief help them recover. A recurring theme was that seizures affect everyone differently, and the community offered warm encouragement to keep listening to your own body throughout the journey.

A MyEpilepsyTeam Member

Thanks Sean ๐Ÿ™ although itโ€™s rubbish we all make a come back, we just need to keep smiling ๐Ÿ˜Š ๐Ÿ’œ

October 13
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member 3000 mgs sounds insane. A lot of us are on several medications and will never be 100% seizure free. Remember that sometimes the side effects can be worse than the seizures themselves and it might not be worth it. The way I see it is I would rather feel semi normal every day and like SHIT every once and a while after a seizure, then like SHIT EVERY SINGLE DAY.

Good luck Ronda bc it will be your own journey. I would recommend listening to your intuition NOW. YOU KNOW WHAT'S BEST. YOUR BODY KNOWS!! Don't let the Dr bully you. Listen to yourself.

October 1, 2020
A MyEpilepsyTeam Member

Thanks. I've been studying since I was six. Certain taji forms really help me especially if I have the "aura"onset. Been able to ride through that and not have an actual seizure with them

April 21, 2023
A MyEpilepsyTeam Member

Sometimes everything hurts or I just am so tired. I want to rest forever it seems. I'm light sensitive all the time and it causes me pain too.

April 21, 2023
A MyEpilepsyTeam Member

The intensity of the headaches after seizures makes the eyes hurt. Sleep for me seems the best medicine for this still.

April 6, 2023

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