Does Anyone Else Get Sudden Chills And A Sudden Body Jerk Occasionally?
Has anyone else ever experienced sudden chills that cause your body to jerk every so often? It's a bit hard to describe, but throughout my life, I've had these chills occur from time to time. They can happen when I'm cold, but not exclusively. Typically, I'll get goosebumps, and then my body will make a sudden jerk before returning to normal.
I was diagnosed with epilepsy when I was 22 months old, but since starting Keppra in Kindergarten, I have not experienced any seizures. There was a single⦠read more
I have, but not often, I don't think nothing of it, I think it might be a combo of stuff, meds, condition,age, or a natural thing, but not to worry about my opinion, but then it's different per⦠read more
Health Insurance
What is the best company to get health insurance with? I turn 26 in April and will no longer be able to get my medicine through my mother's insurance. I take name brand Keppra and cannot afford to pay for it outright. However, it is the only thing that has ever helped, I tried switching to generic when I was younger and ended up having a seizure after being seizure free for five years. I've been back on name brand ever since then and have been seizure free now for 13 years. If anybody could give⦠read more
Botox
Hi Iβm new to this page. I was just wondering if anyone has had Botox and had seizures or been ok after it? I have fully controlled juvenile myclonic jerk epilepsy and on Lamotrigine. xx
@A MyEpilepsyTeam Member sorry I havenβt logged in a while. Yes I had Botox and thankfully no seizure xx
I Might Have Asked This Before, But Do Songs Trigger Seizures In Anyone? If So What - It's Interesting
I love live music and concerts; the excitement and being included in the moment, the crowd's involvement, even the loudness. It's sort of amazing that those things aren't triggers for my seizures, and⦠read more
π»ππ ππ π¦ ππ₯π π‘ πΎπ πππ π₯π βπ ππππ£π₯π€ π π£ ππππππ πΌπ§πππ₯π€ πΉππππ¦π€π π π π½πππ€ππππ πππππ₯π€?
I believe I might have to ππ
Yes and the crowd and the extreme loudness give me great anxiety. I used to live for concerts π
Can I Attend A Concert With My Boyfriend Out Of Town However I Have Never Been To One So I Don'know How Or If It Will Effect Me In Any Way.
Must add I've had many little seizures at some of happiest times like this. Any high level of excitement not just stress may cause, very brief always fine after too. As Randy said no way it stops me⦠read more
Botox Has Interaction With Epilepsy ?
i have partial complex sizures and i had botox arround my eys for cosmatic reasons , and after 4 days i was having like electricity going on all over my brain and the same time i have pre menestrual syndrom .. this is complication of botox or only because the menestruation ?? please i need answer iam worried about that
Do Getting Headaches Part Of Having Epilepsy?
My boyfriend asked me to attend a concert with him. I am new to having this disease so I am learning about it. I have seizures that come on at anytime with or without triggers and have never been to one am not sure if it would trigger them due to lights. We both want me to attend but he understands why I'm hesitant he cares about my health. I don't want this disease to control my life but I don't want to do anything that will put me more at risk for an episode. Also is getting headaches part⦠read more
Headaches is a very common thing with seizures. And going to a concert a recommendation bring an extra dose of medicine and keep in the shadow/dark it helps plus eat protein it stops and helps⦠read more
How Did You Approach The Topic Of SUDEP With Your Spouse Or Loved One? (Especially If You Have Nocturnal Seizures.)
Thank you @A MyEpilepsyTeam Member
Musicogenic Epilepsy
Does anyone else have this form of epilepsy? I'm starting to feel like a test case and it hasn't even been 1.5 years since my epilepsy diagnosis. I started with focal seizures, after tests was determined to also have autoimmune epilepsy and now we are testing for musicogenic epilepsy since 8 out of my last 10 seizures I have been around music. We tested it when I had an EEG and I couldn't make it through a full song without having a seizure.
I think I read somewhere on here in an article that there were 80+ types. A lot are rare but they are also finding new ones as well.