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Are used to be on Tegretol Haldol Fina Barb my sling and I can’t take because I’m allergic to it but all that other stuff they used to give my only question about the GABA do they remain in your brain… read more
Has anyone had Boxtox as part of their treatment? Before going to Cleavland clinic for second opinion my neurologist was giving my 40 injections in my skull every 6 weeks. Maybe it was helping stop the spread of my hemangioma. I am just curious because I have not seen anyone mention it.
Hello everyone, I was just wondering do any of you have sezuires from loud music in a closed area like my self. Also do you have high anxiety from noice that is unusually louder than usual. I recntly in the last couple of years picked up on this. When someone yells at me in anger sezuires happen no doubt. I ran off one time and hit my head on the wall during a complex partial and dont remember anything. Just woke up with a knot on my head and a bad headache. Can any of you relate?
Noise never bother me but if its rap I walk out no matter what there for just like if were at a wedding and if they do that star ball flashing we get up and leave as we did that twice at a friends… read more
I have been a teacher for 24 years. But last week, for the first time, I seized in front of my class. I was in the middle of a lesson. My kids were amazing. I have prepared every class on the first day of school with a just in case procedure, and they were rock stars. But for 23 years it was never needed. School seemed to become a safe haven from my seizures. I had them very infrequently over the years but never in school. I hit my head and have been sporting a black eye trying to teach these… read more
I was a sub up until 2 years ago. I never had a grand mal in front of students. I did, a couple times, have petit mals firing off one after the other in front of them. When they went to lunch a… read more
Hi everyone, I hope you are all well. Being new to the forum I don't know if this has been asked before, so I apologize if it is a repeat. Since diagnosed with epilepsy in 2010, and being put on medication I have become essentially celiac. One of the triggers for my seizures is refined sugar. I can tolerate about 1/2tsp to a tsp a day max. Have been very stable for 5 years no known seizures or deep brain "incidents " that I am aware of ( I used to get seizures in my sleep but they always woke me… read more
I'm up for that because I'm known for presentations since Pre-K. Have done some with NYU, Columbia University, a professor assistant be he was good with psychology and I know neurology and was chosen… read more
@A MyEpilepsyTeam Member . Thank you . You just helped me give another example on how we are all different when it come to Epilepsy and seizures. There are so many ways that can cause a person to have… read more
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