Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Botox concern" in Q&A. To see all results and access other features, sign up for free.

Does Anyone Else Get Sudden Chills And A Sudden Body Jerk Occasionally?

A MyEpilepsyTeam Member asked a question πŸ’­

Has anyone else ever experienced sudden chills that cause your body to jerk every so often? It's a bit hard to describe, but throughout my life, I've had these chills occur from time to time. They can happen when I'm cold, but not exclusively. Typically, I'll get goosebumps, and then my body will make a sudden jerk before returning to normal.

I was diagnosed with epilepsy when I was 22 months old, but since starting Keppra in Kindergarten, I have not experienced any seizures. There was a single… read more

β€’
View reactions
A MyEpilepsyTeam Member

I have, but not often, I don't think nothing of it, I think it might be a combo of stuff, meds, condition,age, or a natural thing, but not to worry about my opinion, but then it's different per… read more

Health Insurance

A MyEpilepsyTeam Member asked a question πŸ’­

What is the best company to get health insurance with? I turn 26 in April and will no longer be able to get my medicine through my mother's insurance. I take name brand Keppra and cannot afford to pay for it outright. However, it is the only thing that has ever helped, I tried switching to generic when I was younger and ended up having a seizure after being seizure free for five years. I've been back on name brand ever since then and have been seizure free now for 13 years. If anybody could give… read more

β€’
View reactions
A MyEpilepsyTeam Member

I took Keppra XR. Insurance changed it generic and seizures increased. I had to get prior authorizations. Dr stated it has to be name brand due to the ineffectiveness of the generic. But I was… read more

π”»π•šπ•• 𝕐𝕠𝕦 π•Šπ•₯𝕠𝕑 π”Ύπ• π•šπ•Ÿπ•˜ π•₯𝕠 β„‚π• π•Ÿπ•”π•–π•£π•₯𝕀 𝕠𝕣 π•Šπ•–π•”π•šπ•’π• π”Όπ•§π•–π•Ÿπ•₯𝕀 𝔹𝕖𝕔𝕒𝕦𝕀𝕖 𝕠𝕗 π”½π•π•’π•€π•™π•šπ•Ÿπ•˜ π•ƒπ•šπ•˜π•™π•₯𝕀?

A MyEpilepsyTeam Member asked a question πŸ’­

I believe I might have to πŸ˜•πŸ˜”

β€’
View reactions
A MyEpilepsyTeam Member

Yes and the crowd and the extreme loudness give me great anxiety. I used to live for concerts πŸ˜’

Can I Attend A Concert With My Boyfriend Out Of Town However I Have Never Been To One So I Don'know How Or If It Will Effect Me In Any Way.

A MyEpilepsyTeam Member asked a question πŸ’­
A MyEpilepsyTeam Member

Must add I've had many little seizures at some of happiest times like this. Any high level of excitement not just stress may cause, very brief always fine after too. As Randy said no way it stops me… read more

Do Getting Headaches Part Of Having Epilepsy?

A MyEpilepsyTeam Member asked a question πŸ’­

My boyfriend asked me to attend a concert with him. I am new to having this disease so I am learning about it. I have seizures that come on at anytime with or without triggers and have never been to one am not sure if it would trigger them due to lights. We both want me to attend but he understands why I'm hesitant he cares about my health. I don't want this disease to control my life but I don't want to do anything that will put me more at risk for an episode. Also is getting headaches part… read more

β€’
View reactions
A MyEpilepsyTeam Member

Headaches is a very common thing with seizures. And going to a concert a recommendation bring an extra dose of medicine and keep in the shadow/dark it helps plus eat protein it stops and helps… read more

Botox Has Interaction With Epilepsy ?

A MyEpilepsyTeam Member asked a question πŸ’­

i have partial complex sizures and i had botox arround my eys for cosmatic reasons , and after 4 days i was having like electricity going on all over my brain and the same time i have pre menestrual syndrom .. this is complication of botox or only because the menestruation ?? please i need answer iam worried about that

How Did You Approach The Topic Of SUDEP With Your Spouse Or Loved One? (Especially If You Have Nocturnal Seizures.)

A MyEpilepsyTeam Member asked a question πŸ’­
β€’
View reactions
A MyEpilepsyTeam Member

Thank you @A MyEpilepsyTeam Member

Musicogenic Epilepsy

A MyEpilepsyTeam Member asked a question πŸ’­

Does anyone else have this form of epilepsy? I'm starting to feel like a test case and it hasn't even been 1.5 years since my epilepsy diagnosis. I started with focal seizures, after tests was determined to also have autoimmune epilepsy and now we are testing for musicogenic epilepsy since 8 out of my last 10 seizures I have been around music. We tested it when I had an EEG and I couldn't make it through a full song without having a seizure.

β€’
View reactions
A MyEpilepsyTeam Member

I think I read somewhere on here in an article that there were 80+ types. A lot are rare but they are also finding new ones as well.

Sponsored Content
Learn more about treatment options for focal seizures Read more >

Has Anyone Gone & Done An EEG Stay In Hospital? My Very Pushy Consultant Wants Me To Do This, L Have Concerns & Mentally For Me I'm Concern

A MyEpilepsyTeam Member asked a question πŸ’­
β€’
View reactions
A MyEpilepsyTeam Member

You could ask if they could let you do it at home. They may let you do that. I was to do that myself, but my Topiramate was increased to the maximum dose instead. Still to see the specialist in… read more

Does Loud Noices Or Music Make Any Of You Have Sezuires And High Aniexty?

A MyEpilepsyTeam Member asked a question πŸ’­

Hello everyone, I was just wondering do any of you have sezuires from loud music in a closed area like my self. Also do you have high anxiety from noice that is unusually louder than usual. I recntly in the last couple of years picked up on this. When someone yells at me in anger sezuires happen no doubt. I ran off one time and hit my head on the wall during a complex partial and dont remember anything. Just woke up with a knot on my head and a bad headache. Can any of you relate?

β€’
View reactions
A MyEpilepsyTeam Member

Yes especially anything pounding like where I live right now people rev there motors and that brings on mine