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Health Insurance
A MyEpilepsyTeam Member asked a question 💭

What is the best company to get health insurance with? I turn 26 in April and will no longer be able to get my medicine through my mother's insurance. I take name brand Keppra and cannot afford to pay for it outright. However, it is the only thing that has ever helped, I tried switching to generic when I was younger and ended up having a seizure after being seizure free for five years. I've been back on name brand ever since then and have been seizure free now for 13 years. If anybody could give… read more

posted December 1, 2022
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A MyEpilepsyTeam Member

I took Keppra XR. Insurance changed it generic and seizures increased. I had to get prior authorizations. Dr stated it has to be name brand due to the ineffectiveness of the generic. But I was eventually switched to Briviact and very similar. For me, less side effects. Generic lamictal doesn't work as well name brand too. Not too uncommon for AED's. My stuff has never been controlled well. First was state insurance along with a different assistance organization. Now its state and federal and I'm very grateful. My monthly meds are over $10,000. I found programs through county, state office, American disability association, and more. Have to find time to start typing key words into search bar and making calls. Not simple to find some of them. Epilepsy foundation guided me a couple times too. Good luck.

posted December 2, 2022
A MyEpilepsyTeam Member

First thing to do is to check , with you county human Services for medical assistance ( state insurances ) program . You might have co-pay, but that’s it. The big question is , how picky they are with brand meds over generic meds.

posted December 1, 2022
A MyEpilepsyTeam Member

Wow I'm have ask bout that medication!!! And by you being 26. I don't know but there's a age limit when you on parnets health insurance. If you get health insurance through your State (medicad) always ask if they will cover your medication.

posted December 1, 2022
A MyEpilepsyTeam Member

@Conneri , I’m guessing you’re not working right now. You could contact your local Epilepsy Foundation & let them know your situation & ask if there’s any way they could help or what they could suggest. I didn’t have any insurance for a few years & I contacted my local Epilepsy Foundation & let them know of my situation & asked if there was any way they could help me & so I got signed up on a program they offer that I think is like $25.00 dollars a year & that covers my meds & blood work & my check-ups with my Neurologist for which have been by phone cause I started on it around the time Covid started. If I need meds I contact my Epilepsy Foundation for my Depakote & if I need to get a message to my Neurologist then I must go through the Epilepsy Foundation & they will contact my Neurologist’s office. I don’t know why they require it be this way but they do. Plus by using their services for this, they require that we see their Neurologist & I got lucky & the Neurologist I see volunteers with our Epilepsy Foundation & so I got to keep the same doctor. When I began seeing my Neurologist in 2019 she had me do a 5 day in hospital video EEG & then put me on Vimpat & at the time there wasn’t a generic & so they warned me that it might be expensive & to look for resources & so I reached out to the manufacturer of the Vimpat & was approved for their Patient Assistance Program & so after providing my information I don’t have to pay anything for the Vimpat & I order that from the UCB pharmacy. With the Epilepsy Foundation I also had to provide some information. So you could check with the manufacturer of the Keppra to see if they offer any Patient Assistance Programs. The program requirements with your Epilepsy Foundation might be different than mine. You can locate your local Epilepsy Foundation at www.epilepsy.com . Hope this helps. Your friend in Texas, Becky

posted December 1, 2022
A MyEpilepsyTeam Member

I might be able to. I'm still looking into it. I'm willing to do whatever I have to, to make sure that I can stay on the meds I'm on. My neurologist logic is if it's not broken, don't fix it and I'm inclined to agree with her for the most part. I know for sure they're still effective because when I've had to go without for short periods of time, I've felt closed to having a seizure, but thankfully I never got there due to being able to get my meds in my system in time. It's definitely a little scary, trying to figure this stuff out on a timetable, but I'm hopeful that I will be able to remain on my meds, I've still got time!

posted December 1, 2022

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