I stayed at my best friends house, woke up, had a seizure. She was wonderful about it. Cared for me, made sure I was safe. Now I’m feeling strange about it all.
I had epilepsy all my life . I have seizured everywhere. I’ve seizured at home , at school when I was younger, In front of and at my friends home, and any where in public.
My friends would show… read more
I don't understand why I would need more medication if I am seizure free. It makes me sleepy and depressed. I have been on seizure medication for 50 years and seems to me it causes clinical depression which I have dealt with for many years.
I appreciate the question and the responses. I would add that my neurologist's nurse is a good resource as well. She may be able to help you with why and what you can do.
It appears every 3-6 months my seizures become out of control again and I need to increase my medication. Things will go well for a bit and then get out of control again and a dose increase will temporarily help. Is this normal? Does this happen to you guys? Im on tegretol, vimpat, and clobazam.
"So far so good" as in just none of the immediate side effects or Keppra, or are you in a long-term seizure free state?
Losing your hair when you wash it in the shower?
Yes definitely!
I don't know how many so my post from yesterday when I talked about how my day went so/so after having an MRI done and everything that happened during the process. And it wasn't something that happened once and done but repeatedly during the whole time had to do it with and without constrast I seem to continue having convulsions until they stopped the machine and it started all over again shortly after they would start it back up Which got me to wondering can an MRI cause or induce seizures in… read more
YES, an MRI can cause it. In your case it was probably just the discomfort you felt, with the sounds, being in "the tube" and so on. You can get over that and have another one if you want. The MRI… read more
Thank you! A pharmacist had said the same too, she just didn't seem 100% on it tho.
Dose anyone suffer with blackout seizures? I am 33 years old was diagnosed with epilepsy at 29 years old I have been on numbers different medication my doctor has me on then packed and oxy carbamazepine and I have been suffering for the last 2 months with the Fallout blackout it's to the point to where I'll be standing up doing something and I'll just start trilling backwards and fall and I'll come to when I hit the ground it's gotten so bad that I've had to get stitches in my nose because I… read more
i recently lost consciousness and hit the pavement with my face. i thought it was a blackout seizure but the doctors didn't think so because i had not wet myself and i remember hitting my face but not… read more
I had a stroke a month ago. My hubby watched me and decided this was not seizure activity and called the EMTS. I got the drug that you have to have within 3hours so i was very lucky. I have some weakness on my left side but it is stronger already after all the rehab. I've been reading that people with epilepsy are more likely to have a stroke. Did anyone else know this? Have you experienced strokes too? What alarms me is unless someone knows you really well, they won't know you were having a… read more
Cognitive Behavioral Therapy (CBT) links follow to explain what it is and how it can help you to gain the tight grasp on depression and anxiety and more from successfully taking down your Wall and… read more
Those of you that have had epilepsy for a long time, how often do you need to change medication? Does one work for quite a few years and then your seizures come back, and you have to try a new med? Is it common for people’s bodies get used to the meds?
From what my neurologist has said it's like all medicine your body develops a tolerance and that's when they give you a higher dose depending on your response it might come down to trying alternate… read more
I had some seizures that I won’t forget. They were some of the worst ones that I’ve ever had (both physically and mentally) and there’s a picture of my bloody face. Whenever I see it, it’s hard for me to keep my cool and hold back my tears and emotions.
Hang in there and try and stay pos