I don't understand why I would need more medication if I am seizure free. It makes me sleepy and depressed. I have been on seizure medication for 50 years and seems to me it causes clinical depression which I have dealt with for many years.
If you have low levels with your medication, you will soon or later start seizuring again. Everyone’s body could start tolerating the meds . Some , it may take awhile and some it may take shorter time… read more
I stayed at my best friends house, woke up, had a seizure. She was wonderful about it. Cared for me, made sure I was safe. Now I’m feeling strange about it all.
I had epilepsy all my life . I have seizured everywhere. I’ve seizured at home , at school when I was younger, In front of and at my friends home, and any where in public.
My friends would show… read more
Losing your hair when you wash it in the shower?
Mostly in the shower when I’m washing my hair or brushing it
Morning all
My story here is long and complex . in 2005 I had a tonic clonic seizure. ended up in the ER and got dignosed with a cavernoma that had hemorrhaged. was put on tegrital and had surgery. fast forward 12 months and my neurosurgeon took me off tegratal
Started getting ready bad aura, but not knowing what they were thought I was losing my mine. this caused anxiety and then serve depression. Was then but on two antidepressants, mirap and cymbalta been on them both for 11 years.… read more
@A MyEpilepsyTeam Member Was your response to me or someone else?
I had a neurologist appointment. I know I answered most questions like I know what I am talking about. But when I get home and try to explain to my husband what the doctor said, I don't remember. I don't remember why I need a test? I don't remember what I said. I feel so dumb. My spouse usually goes to my appointments, but couldn't go this time. He gets frustrated when I don't have the information. He thinks that sometimes doctors just want to do tests to get information for statistical… read more
Thank you Terry. 🙂
It appears every 3-6 months my seizures become out of control again and I need to increase my medication. Things will go well for a bit and then get out of control again and a dose increase will temporarily help. Is this normal? Does this happen to you guys? Im on tegretol, vimpat, and clobazam.
"So far so good" as in just none of the immediate side effects or Keppra, or are you in a long-term seizure free state?
I know many of you had surgery on your brain. Have any of you experienced a chronically runny nose, just on one side (clear discharge)?
PeggyShore
They always say rhinitis. I have broken my upper right cheek and nose. My ENT says rhinitis to me! I feel for you along with cracked forehead. That happened 40 years ago, before taking… read more
That’s good to hear that you got the support!
My question today is quite simple. How can I continue doing sports and not have seizures? I want to stay in good shape which started requiring some exercises with small weights/ dumbbells
However I noticed that some time after I work out I have seizures… what is the way to find out how much I can exercise without provoking my seizures? Any ideas on that?
Hi Tanya. Exercising for me is one of the few things I do routinely to keep my mind off of my epilepsy. It took me a while to come out of denial to realize I could no longer do the level of exercise… read more
My dermatologist says that I have lupus and that it's not from the medicine I'm on, but back in 2012 I got roesaea and my neurologist told the dermatologist that I could get lupus from my medicine that I was taking. The only one I'm taking is Topamax which I started in 2006. My sister is on it too and she was just diagnosed with a autoimmune disease and she's been on Topamax for 14 years now. I'm not sure what to do about this whole thing? Both the neurologist and dermatologist are trying to… read more
It did not show the meds that can cause Lupus, but according to the note in the photo I took, there are 46 medications that can induce Lupus.
You may want to talk to your Dr. About this . Find out if… read more