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First Time Seizure In Front Of Bestie, How Do I Deal With It?
A MyEpilepsyTeam Member asked a question 💭

I stayed at my best friends house, woke up, had a seizure. She was wonderful about it. Cared for me, made sure I was safe. Now I’m feeling strange about it all.

A MyEpilepsyTeam Member

I had epilepsy all my life . I have seizured everywhere. I’ve seizured at home , at school when I was younger, In front of and at my friends home, and any where in public.

My friends would show… read more

I Have Been Seizure Free 6 Years. My Neurologist Increased Lamictal Because After Bloodwork, Said It Was Not At Therapeutic Level. Why?
A MyEpilepsyTeam Member asked a question 💭

I don't understand why I would need more medication if I am seizure free. It makes me sleepy and depressed. I have been on seizure medication for 50 years and seems to me it causes clinical depression which I have dealt with for many years.

A MyEpilepsyTeam Member

I appreciate the question and the responses. I would add that my neurologist's nurse is a good resource as well. She may be able to help you with why and what you can do.

How Often Do You Increase Your Medication?
A MyEpilepsyTeam Member asked a question 💭

It appears every 3-6 months my seizures become out of control again and I need to increase my medication. Things will go well for a bit and then get out of control again and a dose increase will temporarily help. Is this normal? Does this happen to you guys? Im on tegretol, vimpat, and clobazam.

A MyEpilepsyTeam Member

Hello… I used to have a similar problem, until my doctor found the right combination of medicines to get control of the abnormal brain waves (which is what epilepsy is). Now, I have had basic control… read more

Do You All Feel That Our Medications Loses Their Effectiveness After A Few Years?
A MyEpilepsyTeam Member asked a question 💭

Those of you that have had epilepsy for a long time, how often do you need to change medication? Does one work for quite a few years and then your seizures come back, and you have to try a new med? Is it common for people’s bodies get used to the meds?

A MyEpilepsyTeam Member

I'm sorry to tell you this but be prepared to be taken off a med put on new one, possibly sometimes more than one med. Reason doing so is in search which one or combo will work best for you. I came… read more

Can MRI Cause Or Induce Seizures?
A MyEpilepsyTeam Member asked a question 💭

I don't know how many so my post from yesterday when I talked about how my day went so/so after having an MRI done and everything that happened during the process. And it wasn't something that happened once and done but repeatedly during the whole time had to do it with and without constrast I seem to continue having convulsions until they stopped the machine and it started all over again shortly after they would start it back up Which got me to wondering can an MRI cause or induce seizures in… read more

A MyEpilepsyTeam Member

Yes. I had a no-contrast MRI and it caused partial seizures 30 minutes afterwards.

Has Anyone Lost There Hair Being On Vimpat?
A MyEpilepsyTeam Member asked a question 💭

Losing your hair when you wash it in the shower?

A MyEpilepsyTeam Member

Yes definitely!

Loud Sounds - What Is Your Favorite Noise Cancelling Headsets?
A MyEpilepsyTeam Member asked a question 💭

I have to avoid loud sounds as a trigger. The headsets are ranging from $50 - $500+. Anyone have any recommendations otherwise I have been going with the pack of 35 foam ear plugs for $3.

A MyEpilepsyTeam Member

They various types of pods that are noise canceling and you can generally play your own music from your phone

I Missed A Dose Of Lamictal IR Friday Night And I Am Scheduled To Get Lab Work Done On Monday. Will My Blood Count Be Back To Normal?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Thank you! A pharmacist had said the same too, she just didn't seem 100% on it tho.

Blackouts
A MyEpilepsyTeam Member asked a question 💭

Dose anyone suffer with blackout seizures? I am 33 years old was diagnosed with epilepsy at 29 years old I have been on numbers different medication my doctor has me on then packed and oxy carbamazepine and I have been suffering for the last 2 months with the Fallout blackout it's to the point to where I'll be standing up doing something and I'll just start trilling backwards and fall and I'll come to when I hit the ground it's gotten so bad that I've had to get stitches in my nose because I… read more

A MyEpilepsyTeam Member

i recently lost consciousness and hit the pavement with my face. i thought it was a blackout seizure but the doctors didn't think so because i had not wet myself and i remember hitting my face but not… read more

Is There A Number I Can Call Or Address?
A MyEpilepsyTeam Member asked a question 💭
Everything To Know About Epilepsy Glasses and Seizure Prevention Read Article...
A MyEpilepsyTeam Member

You’re welcome @A MyEpilepsyTeam Member