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First Time Seizure In Front Of Bestie, How Do I Deal With It?
I stayed at my best friends house, woke up, had a seizure. She was wonderful about it. Cared for me, made sure I was safe. Now I’m feeling strange about it all.
I had epilepsy all my life . I have seizured everywhere. I’ve seizured at home , at school when I was younger, In front of and at my friends home, and any where in public.
My friends would show… read more
I Have Been Seizure Free 6 Years. My Neurologist Increased Lamictal Because After Bloodwork, Said It Was Not At Therapeutic Level. Why?
I don't understand why I would need more medication if I am seizure free. It makes me sleepy and depressed. I have been on seizure medication for 50 years and seems to me it causes clinical depression which I have dealt with for many years.
I appreciate the question and the responses. I would add that my neurologist's nurse is a good resource as well. She may be able to help you with why and what you can do.
How Often Do You Increase Your Medication?
It appears every 3-6 months my seizures become out of control again and I need to increase my medication. Things will go well for a bit and then get out of control again and a dose increase will temporarily help. Is this normal? Does this happen to you guys? Im on tegretol, vimpat, and clobazam.
Hello… I used to have a similar problem, until my doctor found the right combination of medicines to get control of the abnormal brain waves (which is what epilepsy is). Now, I have had basic control… read more
Do You Have Hypertension With Your Condition,
I looked up online and found out it's a symptom of epilepsy and starts at 60, deals with blood pressure in dif ways per person.? I think that i may have that, but what are your thoughts about this ❓
Dave High Blood pressure can start at any age there are many factors that Drs consider such as your activity level age gender race blacks tend and african americans tend to have higher blood pressure… read more
Importance Of Blood Tests
how often do people take blood tests to check depletion levels that most of the medications cause? especially after increase and change of medications?
I don't really do Blood tests that often and only after decreasing my medication.
Do You All Feel That Our Medications Loses Their Effectiveness After A Few Years?
Those of you that have had epilepsy for a long time, how often do you need to change medication? Does one work for quite a few years and then your seizures come back, and you have to try a new med? Is it common for people’s bodies get used to the meds?
I'm sorry to tell you this but be prepared to be taken off a med put on new one, possibly sometimes more than one med. Reason doing so is in search which one or combo will work best for you. I came… read more
Racking My Brain But A Mate I Know Is Epileptic And He Was Telling Me With Epilepsy It’s Harder To Have Kids? Sorry For The Awkward Question
Im really sorry for the awkward question but this is a open non judgmental place to get help but it’s something that’s been racking my brain but a mate i know is epileptic and he was telling me with epilepsy it’s harder to have kids? Ive been single 10 years but i just wanted to know how accurate that is?
Again sorry for awkwardness
Honestly been scared to ask because it might make people uncomfortable or judge me for it
there is 40+ causes of epilepsy. yes makeing love and (for women) that time of the month seizure is a trigger. but that is 1-2 outta 40+
think for a second... i have a facebook support group that… read more
Can MRI Cause Or Induce Seizures?
I don't know how many so my post from yesterday when I talked about how my day went so/so after having an MRI done and everything that happened during the process. And it wasn't something that happened once and done but repeatedly during the whole time had to do it with and without constrast I seem to continue having convulsions until they stopped the machine and it started all over again shortly after they would start it back up Which got me to wondering can an MRI cause or induce seizures in… read more
Yes. I had a no-contrast MRI and it caused partial seizures 30 minutes afterwards.
Difference Between Aura And Seizure?
I was diagnosed TLE with secondary generalisation. Can someone help me connect the dots on this Yesterday was SSDI exam. All day I was very stressed, twitching, nauseous headache, bp way up, stuttering (which I don't normally do), no memory, tingly, chills. Made it through the day. Last night I was up several times with legs twitching and very confused and soaked in sweat. This morning I am totally out of it, headach and I feel like i ran a marathon last night. Also tons of anxiety. So what… read more
AustainCain
An "aura" are the sensations that one gets before a seizure .
Now partial seizures/complex are a type of seizures.
The worst kind of seizure is a GrandMal.
Each Epileptic is different… read more
Loud Sounds - What Is Your Favorite Noise Cancelling Headsets?
I have to avoid loud sounds as a trigger. The headsets are ranging from $50 - $500+. Anyone have any recommendations otherwise I have been going with the pack of 35 foam ear plugs for $3.
They various types of pods that are noise canceling and you can generally play your own music from your phone