I don't understand why I would need more medication if I am seizure free. It makes me sleepy and depressed. I have been on seizure medication for 50 years and seems to me it causes clinical depression which I have dealt with for many years.
I stayed at my best friends house, woke up, had a seizure. She was wonderful about it. Cared for me, made sure I was safe. Now I’m feeling strange about it all.
I also have "trigeminal neurolgia" from being buried in the snowy blizzard in boston 1978 & saved by the national guards.Thank you!! I was on dilantin for years and the ER doctor said my epilepsy meds were also controlling my "trigeminal neurolgia" facial nerve pain.. Because years later when they took me off of dilantin is when I experience the pains. I can't let the slightest wind blow on the right side of my face or I will be bedridden for a week of pain. My question is there another seizure… read more
It appears every 3-6 months my seizures become out of control again and I need to increase my medication. Things will go well for a bit and then get out of control again and a dose increase will temporarily help. Is this normal? Does this happen to you guys? Im on tegretol, vimpat, and clobazam.
After years of Lamictal controlling my seizures, I had a breakthrough seizure with no explanation. When I was pregnant, they increased and increased my dose since I was not reaching “therapeutic levels” per my blood draws. After pregnancy I returned to my previous dose (the one that had worked for years) and had a breakthrough seizure with no explanation. Once again, even though we’ve beenincreasing my lamictal dose, levels in my blood are barely rising into therapeutic range. Anyone else have… read more
I'm just wondering has anyone been asked to show a doctor what happens when you have a seizure like act it out
I mean how do you act out a seizure 🤷♀️or is this common practice 🤔
My first neurologist appointment he asked him to show him what happens , the second one didn't but then when I was doing my eye test the optometrist asked me to show her what happens I told her I can't mimick the same actions as my seizures.
I just find it a bit insulting or am I just being way oversensitive on… read more
Any helpful tips or advice on how to deal with your blood levels dropping to adjust to a lower dose of your medication over the next couple of months dealing with side effects and symptoms?
Have any of you experienced auras that come and go repeatedly over a span of a few hours? I have had my share of brief auras (2-3 minutes) but on Sunday and Tuesday of this week I felt disoriented and dizzy for 3-4 straight hours each day. I was afraid a full seizure was on the way but luckily that hasn't happened yet. I'd appreciate hearing about anyone's experience with this. Thanks and kind regards!
Hi everyone, I hope you are all well. Being new to the forum I don't know if this has been asked before, so I apologize if it is a repeat. Since diagnosed with epilepsy in 2010, and being put on medication I have become essentially celiac. One of the triggers for my seizures is refined sugar. I can tolerate about 1/2tsp to a tsp a day max. Have been very stable for 5 years no known seizures or deep brain "incidents " that I am aware of ( I used to get seizures in my sleep but they always woke me… read more