Also for me as a result of the right temporal lobe labectomy that saved my life left me without depth perception. Having said that no sky diving for me. Wouldn't change it for the world.
Yes, I have rheumatoid arthritis and see if you can find my first post on 4/10/23.
Hi-
I was wondering if anyone has had more than one long term stay to have a seizure to map them out? My husband had one a year ago but no seizure while in the hospital. He wants to go back in but I was looking for some feedback.
Thanks!
When I had my EEG and brain mapping done , it took 8 days. Most of the reason was that they couldn’t get any big seizures for the mapping test and they had me down to no meds . My doctor came to visit… read more
I’ve been on Carbotral since i was 8, and trokendi since i was 14-15. I was hospitalized in the past 2 weeks to study my absent seizures off all medications, because i normally have auras only when medicated, until the padt year, ive recently began having absents again also. The doctors tested one medication that was unsuccessful while i was hospitalized, before testing Vimpat over a 24 hour period, and then i was released. I’ve been out for nearly 2 weeks now, and i haven’t had any seizures… read more
Hey,
has anyone who has been on Keppra had any issues with chipping teeth or with an unknown cause? I started it just over two months ago and within a month, I noticed my very front left tooth was chipped and today it happened to my front right. Origally I put it down to maybe a possible nocturnal seizure but this time my tooth basically broke with no explanation so I'm not sure what it could be.
Has anyone else had anything else like this happen while on Keppra?
Thanks.
I have had quite a few teeth capped as far as my Dr told me from beginning that it eats away at the enamel that and possibly grind teeth I used to do all that
That and I take 4000 daily but we all… read more
I have been having double vision which is an expected side effect, but when it was doing it this morning I decided to check my BP. It was very high. 180/102. It was taken manually. I take a low dose BP medicine. I had already taken it along with my other medications earlier. I don't see anything that lists that as a side effect. Has anyone else had this happen? Or maybe it was an isolated incident. I did have my BP rechecked at work after i sat for about 10 minutes, manual also. It was 132/98… read more
How are people managing in the UK with the clocks/time changing who take lots of medication? and is it effecting your seizures?
It turns "the boss" wants me to keep my pill alarms at 8 and 8 and slowly adjust my body by taking at say, um 715, then 730, 745...,,
I've been on Clonazepam for 7 years now, 3mg daily for the last 3 years. Except last year my Dr cut me down to 2mg a day in March, I ended up having 6 seizures in March and a total of 17 from March - October. I, without telling my Dr put myself back on 3mg a day and my seizures have slowed down. She lowered my dose cuz I told her wanted off of them, but not at the risk of having that many seizures again. If I suddenly stop taking it when will the withdrawal begin and how dangerous is it? Status… read more
Back to the Vimpat. It has a mild amount of sedative in it. It can replace a lot of other medications. Inquiry about it..
Ok, so this is like the 3rd time this happened. Usually my morning routine consists of bagel & coffee from Dunkin', but yesterday I made my own from home. I took my medicine, but still ended up having a seizure. This happened a few times before, when I change my morning breakfast routine, I end up having a seizure. I guess I'm just used to having breakfast from Dunkin', but my mom doesn't want me having it all the time.
@A MyEpilepsyTeam Member
I know there are apps online that are free to download as reminders to take meds. I have an in home google assistance. It can help with reminders ect. I bought it st… read more
I know this sounds strange but has anyone that had surgery wake up and 99.9 percent of all seizures gone? If so how did you cope and deal with all the stresses and pressure that the healthy person would have? Did it overwhelm you? I had a rough time adjusting to all these changes. It was all worth it believe me. Or anyone try and picture you wake up seizure free? How fast, it changes everything. Wendal
The other way to describe what I initially went through was all these doors,and windows opened up and one by one I jumped through them. I know how blessed I am everyday and never take it for… read more