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Does snyone else in the group have an auto immune diseases with the Epilepsy?
@A MyEpilepsyTeam Member
The other name the Remicade is referred to is Humaira. Hugs Wendy
@A MyEpilepsyTeam Member,
Omd not good. Do let me know if you're auto immune dieases effect you're Epilepsy? So far I have Lupys SLE, Psoratic Arthritis, Sogren' s.
I get sick much easier with the compromised immune system. If it triggers my temperature from getting sick that can cause a seizure. Aside from that with me my Epilepsy is controlled by meds.
Wishing you all the best and hang in there. Wendy
@A MyEpilepsyTeam Member,
As it stands right now they have come a long ways here in Canada.
I take what is considered a biological introvenis every 6 weeks. It is called Remicade. They used it for heart cancer patients. Realized I wasn't effective but showed a lit of promise with taking out the immune system.
Breast cancer. Not heart cancer. I take it for Lupus SLE. Plus I take it for Psoratic arthritis. I get really sick from it as you would as it was an old Chemo medication. Thank goodness for it.
Long term really hard on you're body. Plus it is really expensive. I don't pay for it. Blue Cross does. Also used for Chrones Diease.
The reason I have it take it is due to so many other meds interact with the Mysoline/ Or Primidone. Hugs to you and if any friends you have want info no problem. Wendy
@A MyEpilepsyTeam Member
I've never had this problem but know people without epilepsy who have gf problems. I hope they find more ways to help you with more food to eat & easier to cook.
Yes, I have rheumatoid arthritis and see if you can find my first post on 4/10/23.
what is autoimmune epilepsy? How would you test for it? Are they actual seizures and do they show up on EEGs?
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