Connect with others who understand.

sign up log in
About MyEpilepsyTeam

Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Long Term Stay

Long Term Stay

Hi-

I was wondering if anyone has had more than one long term stay to have a seizure to map them out? My husband had one a year ago but no seizure while in the hospital. He wants to go back in but I was looking for some feedback.

Thanks!

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member,
The only error was they thought they were just removing the scar tissue. After they opened me up they realized part of the Hippocampus was damaged.
I thank God every day they removed the whole lobe. I signed concent forms prior to the surgery in the event something like that happened. I was having 30-40 Partisl Complex seizures a day. Plus over 5600mg of meds a day.
It saved my life and I would do it all over again. Yes I face challenges but I can talk about it. Testing has come sooo far since that time.
I have had no Partial complex since December 13 1994. On the left side genetics. Primidone controls left side. Hugs and if you want more info do let me know. Wendy

posted over 2 years ago
A MyEpilepsyTeam Member said:

When I had my EEG and brain mapping done , it took 8 days. Most of the reason was that they couldn’t get any big seizures for the mapping test and they had me down to no meds . My doctor came to visit me and having me choose something, like a beverage or food that I know , will trigger me to have a big seizure. After picking my poison ☠️ , I finally went into a very big convulsing seizure . When I came out of my seizure, I was surrounded by 6 or 7 hospital staffs. My Dr. came later to tell me , that I finally gave them what they needed.

posted over 2 years ago
A MyEpilepsyTeam Member said:

Best way to have a testing to map/trace seizure is a hospital. I also had a
brief stay to do this. The whole idea is to have a seizure happen in order to trace/map it. To do so all my meds were stopped to let one happen.While in
a hospital your surrounded by doctors and all kinds of safety precautions
so there's no danger. Since hubby didn't have one last time he should go
back for more comprehensive testing to see what happens in his case. The
results will show him as well as his doctors what his seizures do.and the best way to treat them.

posted over 2 years ago
A MyEpilepsyTeam Member said:

I had my testing done in 2003. After 2 weeks and no results being off meds, and insurance not covering any further testing. Doctors sent me home. (of course after getting back on my meds and going home, I had a seizure right away) The second time I went back it took 33 days and they finally saw me seize. They still needed to surgically place electrodes on my brain to pin point exactly where the seizures were starting to remove that area to prevent seizures. Seemed like one obstacle they wanted didn't give them enough information, and another was added on. And all of the testing to see where my speech and memory would be effected.

posted over 2 years ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member,
They had to see what my memory would be without the Right Temporal Lobe. First time they froze too much. Grrr Finally got it the second try.
They knew there was scar tissue on the right side from Enchphilitis. They also had to freeze my jaws once a week and they placed this tiny tiny wire on both sides. That really left no doubt as to Focal Point.
By the memory testing they knew my left Temporal Lobe was dominate. They kept me up all night to deprive me of sleep. Then another Spec Scan. Back in 1994 you had limited testing.

posted over 2 years ago
Already a Member? Log in