Am I Likely To Have Seizures From Suddenly Stopping 3mg Of Clonazepam A Day To None? | MyEpilepsyTeam

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Am I Likely To Have Seizures From Suddenly Stopping 3mg Of Clonazepam A Day To None?
A MyEpilepsyTeam Member asked a question 💭

I've been on Clonazepam for 7 years now, 3mg daily for the last 3 years. Except last year my Dr cut me down to 2mg a day in March, I ended up having 6 seizures in March and a total of 17 from March - October. I, without telling my Dr put myself back on 3mg a day and my seizures have slowed down. She lowered my dose cuz I told her wanted off of them, but not at the risk of having that many seizures again. If I suddenly stop taking it when will the withdrawal begin and how dangerous is it? Status… read more

posted May 18, 2019 (edited)
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A MyEpilepsyTeam Member

I think that you should keep track of all your seizures. Mark down the when, time and tell your Dr. if you fell when you do have a seizure. I know you may not know but ask others what went wrong. If I were you I would let your Dr. change your meds. He/she should know. I always show all of this when I go to my Dr.
I hope you the best in the future.
By the way you are not an Epileptic, you are a person with Epilepsy.

posted May 20, 2019
A MyEpilepsyTeam Member

Clonazepam is from the same family of meds that Ativan, and Diazepam are. They are sister medications. The Clonazepam is the much milder version. I took it for Partial Complex
It is one of the multi functional meds. Some take it for Epilepsy, others take it for anxiety. As a result some people have withdrawl from it. You may find yourself a bit more agitated than average. I had those symptoms but had been taking it for 20 years. Not all people experience the same thing. We are all different.
The other person to talk to would be you're pharmacist. They know meds better than the drs. Wendy

posted May 23, 2019
A MyEpilepsyTeam Member

Back to the Vimpat. It has a mild amount of sedative in it. It can replace a lot of other medications. Inquiry about it..

posted October 24, 2023
A MyEpilepsyTeam Member

Somewhat recently I did not have my Epidiolex for about 4 days. They ship it by FedEx from Texas. I had a Doctors Appointment the next day, but did not go. Stopping any medication quickly without tapering is dangerous. Speak to your Neurologist or Epileptologist.

posted June 21, 2023
A MyEpilepsyTeam Member

Every one is different. Plus it depends on how strong the meds are. You may last 1 to maybe 3 days and that’s stretching it. Then again I’m not a Dr. If your seizures increased when the Dr. reduced your meds, how would it help you to stop taking them ? Your seizures would worsen. Best thing is to stay on your meds until your next appt. you can talk about what to do next. Whether that be changing to a different med or some other treatment.

posted May 23, 2019

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