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I have had a EEG after a bout of headaches and dizziness. The diagnosis is Generalised Epileptogenic Dysfunction. I live and work abroad and am currently unable to get a second opinion.. because I cant quite believe I have Epilepsy..
If anyone can share their information with me, I would be appreciative.
Who ever told you that have Generalized Epileptgenic Dysfunction , dose not know a lot about Epilepsy.
It would make more sense that they said that you have Generalized Epilepsy or Generalized… read more
I know it's a noninvasive way of measuring brain activity to potentially find the epileptogenic zone. Just wondering if anyone has actually done it and was it helpful for your treatment? Thanks!
@A MyEpilepsyTeam Member, I did it last month and I might be the outlier but I liked the MRI better haha.
The reason being my head is on the larger end of the spectrum so there wasn’t room for my… read more
Best sides of any AEDs is to control the nasty seizures the best way. Glad we live in first century thru history to explain epilepsy with meds to help.Ease mind bout med sides any bad ones Dr will… read more
I had a neuropsych eval and was very disappointed (read: angry) that there was no treatment suggested other than - maybe speech and language therapy. I've been looking up some stuff and found someone on another group who mentioned executive functioning training - which is exactly what I need. I'm excited to have found a "program" that may be helpful. Has anyone done this? It's probable that it's done through speech and language therapists. I just sent a note to my PCP asking for a point in the… read more
I'm sorry... Maybe I have heard about some relaxing method. But I don't remember. 🌺
As epileptic people must have to use AEDs possibly whole life, I am wondering that what kind of side effects one can expect and precautions to avoid these.
Actually as a 55 year old, i know better. They dont usually tell us everything. Long term; they affect absorption of vitamins and minerals. Add yourself. Digestive system gets whacky…You need to… read more
A full moon makes my puppy kind of crazy which = a lack of sleep = which does tend to increase absent seizures (is that still the term? this stuff has changed so much over the last 2 decades. )
Are there a couple of men out there that are struggling with it
Yep, me too
I’m ready for discussion
Anyone that feels uneasy about their medicine, talk
to your Doctor & have him explain what the "side effects" would be. Usually
you can find a "different medicine," if the one your
using has… read more
I'm a bit embarrassed about this question but maybe someone can help or has similar issues. Do any males have a reduced sex drive because of the medication they take? (and have they identified the tablets).
No problem at all I have 6 children 3 girls and 3 boys
I know that a poor eating habit can cause havoc to someone who has diabetes - because they need to regularly check their blood sugar levels, but I am not aware of that being the case for someone who has epilepsy - especially when they are on one AED that suppresses the appetite, and another one that counteracts the side-effect of the said AED. Just curious.
When I was a child my doctor put me on an all fat diet, and no sugar. I didn't have any seizures then.