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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
I'm Afraid Of The Side Effects Of Epilepsy Meds. Am I Making A Mountain Out Of A Mole Hill?
A MyEpilepsyTeam Member asked a question πŸ’­
posted September 10, 2015
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A MyEpilepsyTeam Member

I was diagnosed over 20 years ago but been having seizures for over 30 years. I have been on topamax, Dillton, keppra, tegratal, many more for over 15 years but nothing worked the seizures still happening so about 4 years ago I said I was done, no more MRI every 6mos and no more pills so I quit and my eyes opened up. My seizures never stopped but I saw the world in a different light. All the time I was on those pills I was a different person, I was angry bitter person who was hard to be around. Even if I just meet you I would find something to not like or be mad at u. I hated the world. Then one day I did a lot of reading after years at just doing what doc. Say and said I was going to stop all pills and see they were not stopping my seizures anyway. After I got all out of sytem I saw the light and happiness. I would rather be happy with seizures than a miserable lonely lady on a bunch of pills that didn't work on me anyway

posted January 10, 2019
A MyEpilepsyTeam Member

No matter 'what medicine(s) U take; ea.
of us may have side effects!
What helps 1 doesn't
help the other person.
Some people like me
can take several meds
with little or no side affects.
Someone else in my family gets very sleepy
just taking "a baby aspirin!"

posted November 18, 2018
A MyEpilepsyTeam Member

I've had seizures for 37 years and been on a lot of medicines, and they all have some type of side effect. They just don't effect every person that take them the same way, and for some people they have no side effects they actually help them, and that's because every person's body structure is not the same structure.

posted October 15, 2018
A MyEpilepsyTeam Member

No, but its a matter of finding meds that suits you, and finding that safe spot. I say people need to live there lifes to the fullest. Just don’t do stupid things that can endanger others, like not taking your meds.

posted February 26
A MyEpilepsyTeam Member

The best way to understand how long your medication lasts is through searching simply "how long does (apply medication) last in my system"
Look for the site that has this in it..

It helps with actually knowing how long and what is going on with you.

posted February 2, 2022

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