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Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I Was on Topomax and it had some side effects that were tolerable … Stay strong in time you might be thankful 🙏 🙏
Want to talk to someone who has had this done or if they have any information about it! Any response is appreciated!
I'm unable to contribute to the conversation as I haven't had this done..or ever even heard of it before. I just wanted to let you know we are all here for you. ((Hugs)) good luck and keep us… read more
Hey everyone,
So I have been researching how the ESNs work over here in Australia compared to overseas and it turns out that the majority of them work in what's called an Epilepsy care team made up of the ESNs, GP, neurologists and other NPs and specialists. Particularly if you see one in the public system.
Does anyone else see an ESN that operates in a similar way? Also what are the other specialists and NPs that are most likely to be in the Epilepsy care team?
Thank you
Jimi, I think you're making a few assumptions about folks because of the culture they live in. Opinions not facts.
An interesting gentleman's conversation to be sure.🙂
I'm new to Denver, can anyone recommend a neurologist in the Denver area? I'm on the north east side of Denver but I'm willing to drive to a good doctor. Thank you.
Your very welcome Mary. I understand what your going thru. I remember struggling when I was younger, until I started going to Epilepsy support groups. That's when I started learning more about… read more
Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?
All of my meds are in generic my insurance will not paid for brand name
I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!
I feel you
How does anyone who is a full time parent get by with epilepsy and the fear of having one by yourself with just your child. I have grand mal and partial seizures. I'm to scared to have another child because I'm scared I shouldn't be a mother because of my epilepsy. I've recently also had brain surgery. So I have had a lot of help since my son was born. It's hard to feel like a mother
Is anyone else in this position or know how it feels? My parents help us but they are now in their 70's. They… read more
@A MyEpilepsyTeam Member I wasn't worried about my Pregnancy or my Son having the same Condition that I have b/c at the time my Doctor was in the Houston Medical Center which has some of the best… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
What is your question about it. I might be able to answer it for you. My name is Manny Gomez nice to meet you. I have one in me right now. I just had my 3rd one two years ago. I am supposed to get a… read more
Can anyone suggest a good seizure diary app compatible for iphone? Thanks
What I do is I put notes on my phone. This way I can find my notes and write them down when I see my doctor. My doctor can keep my notes in my file and have a record of what is going on in my head.
Hi Everyone,
I've had JME epilepsy for 20 years. I was always on Epilim which kept me pretty well seizure free. A while back, my fiancé and I decided that we would change meds as recommended by my neurologist so that we can have a baby.
It wasn't as easy as first expected and I had a couple of seizures, trying to transfer over to Keppra. My neuro added Frisium which seems to have worked and I'm now over a year seizure free.
I am also now 19 weeks pregnant. Reaching the half way mark, I am… read more
