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A MyEpilepsyTeam Member asked a question 💭

Hey everyone,
So I have been researching how the ESNs work over here in Australia compared to overseas and it turns out that the majority of them work in what's called an Epilepsy care team made up of the ESNs, GP, neurologists and other NPs and specialists. Particularly if you see one in the public system.
Does anyone else see an ESN that operates in a similar way? Also what are the other specialists and NPs that are most likely to be in the Epilepsy care team?
Thank you

posted June 25, 2023
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
The doctors that do the the surgeries are called neurosurgeons. There are also epileptologists

posted June 25, 2023 (edited)
A MyEpilepsyTeam Member

Worth mentioning some favour certain drugs & treatments,

Americans I know from here favour surgery vns.

The US, Taiwan, Uk have laser surgery Aussie Japan doesn’t,
But the English tell me new doesn’t mean better, you can fry the surrounding areas.

The Uk is very strict on benzodiazepines, pregablin etc, you have to pre order it every month via an app.

Germans don’t even use benzodiazepines in emergencies, they pump you full of keppra.
(Which is dumb, I had 5 seizures in an ambulance, IV midozalam that would not have happened)

Aussie like Japan dishes benzo & gaba drugs all out no worries in large doses & favours them.
This is a bit behind the bleeding edge/

I think it’s also cultural traits Aussies like Japanese are heavy drinkers less prone to abusing drugs & medicines.
The British & Germans are more druggy cultures popping pills & hard drugs etc.

Best of all I’ve used is the Taiwanese, they aren’t the worlds smartest people for nothing. Practical, efficient, bleeding edge science & cheapest for the taxpayer too.

posted June 26, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I probably should of added neurosurgeon and epileptologists. Most of them over here do also have general doctors but they also have other specialists that focus on conditions that aren't necessarily epilepsy but conditions that have happened as a result of having it.

posted June 25, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member How would you compare the Aus system to the UK? I could be wrong because I've never actually used it but from everything I've read the Uk seems to be the best system when comes to Epilepsy and seems to have a lot of ESNs.

posted June 26, 2023
A MyEpilepsyTeam Member

I’ve used Australias Japan Taiwans Germanys & Britains systems.
There’s differences in the structures, also the style of treatment.
National values are reflected in the healthcare system.

Aussie is very good!
Right up there maybe a bit like Japan a few years behind the bleeding edge. I can’t get my meds from the UK there yet.
I actually found the public system superior to the private in Aussie, which one great neuro aside really let me down.

Why? The doctors are more experienced, more practical & more realistic. For me anyways it translated to better outcomes.

Eh public system ensures this the private one didn’t.

For a start make sure you’ve not a neurologist but an “epileptologist “

When I was there in NSW I had an “epilepsy registrar” (who I think are trainee neuros) basically taking care of admin, bookings, titrations.

Im making a joke about being put on keppra and needing a “neuropsychiatrist “ but that’s what happened to me.

You may also see a “neuropsychologist “ Basically to test brain functioning, personality changes not a therapist.

But there’s those 10 free psychologist visits in Aussie . You may need that. That is part that is missing from most other systems and you will see positive results in seizure rate from talking therapy.
That’s a really great thing they have.

posted June 26, 2023

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