How does anyone who is a full time parent get by with epilepsy and the fear of having one by yourself with just your child. I have grand mal and partial seizures. I'm to scared to have another child because I'm scared I shouldn't be a mother because of my epilepsy. I've recently also had brain surgery. So I have had a lot of help since my son was born. It's hard to feel like a… read more
I so understand. I'm a mom to twin girls. It's never ending. I trained them 911 calling. I began that at 3. They understood telephone numbers by then. I took some time but how I knew it paid off is they dialed 911 one evening it was only us three at home. They were able to get me the help I need during my grand mals by 5 years old. I also have an emergency contact number list hanging in my home... It contains the number of my closest relatives the girls are comfortable talking to. They are 7 now and are learning more about my seizures every day
It is very scary and stressful i have a 1 year-old daughter and my husband is gone alot with work. There's been many days of fear worried that you might hurt baby from having seizure. It's super hard to deal with but I've never let epilepsy run my life more than it already does. Just take a deep breath and keep moving forward. When u feel upset just look at your baby and the love you have will help to keep moving. Feeling like a bad parent does happen because of the guilt of this disease. If you ever want to talk about this stuff im here
It is scary. I also have a two year old. I am lucky enough to have an aura before a seizure and parents that live only four miles away. I have also called 911 before when I've felt a seizure coming on and I was by myself with my children (I also have a 5 year old). My advice is, educate the little one. They understand more than you think. Tell them sometimes Mommy might fall asleep and you won't be able to wake her up, but Mommy will wake up soon and everything will be okay, I promise. Just things like that. You can explain it in your own way, but I'm sure you get the gist of it. :)
I just saw the coolest thing today. It is called the embrace watch. It monitors you in all kinds of ways and can tell if you are in distress. It can be set up to call people immediately if something does happen! They were 200.00 but if that gives you piece of mind it might help. If meds aren't helping have you considered cannibus oil? I have heard a lot of good about it. I am a mom of a 7 year old boy. When he was a year and a half I had a seizure with him by myself. After that, I didn't make any effort to teach or encourage him to learn how to open doors and always kept them locked. I get how you're feeling. If my husband wasn't home we were usually at my parents house. You have to have confidence in yourself that you can do it. If your seizures get too disabling think about child care for the time that you would alone with your little one until you get better. You might be able to get state assistance too. I chose not to have another baby be cause my epilepsy became much worse after having my son. Something to do with the change in my hormones. I didn't want to risk it getting worse again. You can do this mom! I bet you are an awesome mommy too!
I am a mother of two beautiful children! The best way I found of dealing with the fear of having a fit(I also have grandmal) in front of them was to explain to them what it is and what they should do if it happened!
When my daughter was three I woke up afterwards and she was sitting on my stomach and stroking my face! They still scream when it happens, which is good in a way because it attracts adults attention!
I hate having a fit in front of them but that's something we can't control! They are very resilient as well as protective!
You don't need to worry, you are his mother and always will be! He is part of you and loves you very much, no matter what! You can look after him!
I wish you all the strength and positivity that you will need to raise your child/children!
Hang in there!