Beginner's Mind - Not Knowing It All When Living with Epilepsy

Posted on July 27, 2018

"The moment I received my official diagnosis, I dropped all my assumptions about epilepsy. It was so freeing." -Member of MyEpilepsyTeam

Living with epilepsy can be difficult and even a burden, but also an opportunity to rid yourself of what you think you know. Have you heard the saying, "People don't get it until they get it"?
That is so true about seizures.

"The more I learn about epilepsy, the more I realize that it's not my fault." -Member of MyEpilepsyTeam

An epilepsy diagnosis forces us to drop our negative assumptions about life with a chronic condition. Members on MyEpilepsyTeam gain perspective from other members' experiences to become better informed about what it's really like to live with epilepsy.

Here are recent conversations from members of MyEpilepsyTeam:

What negative assumptions have you let go of about epilepsy? Tell us about it in the comments below or directly on

A MyEpilepsyTeam Member said:

I agree. In the"80's, it seeemed like even the doctors thought that they didn't have to listento me. Then my current doctor retired, and i told him I… read more

posted 24 days ago


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