I've had JME epilepsy for 20 years. I was always on Epilim which kept me pretty well seizure free. A while back, my fiancé and I decided that we would change meds as recommended by my neurologist so that we can have a baby.
I am also now 19 weeks pregnant. Reaching the half… read more
congratulations :-) I was on tegretol for my 1st child which apparently had a higher 'risk' of birth defects so took high doses of folic acid to try and counter that risk, thankfully my daughter came out fine, my neuro subsequently moved me across to lamictal as it was deemed 'safer' again high levels of folic acid was advised.
unfortunately I hadn't tried keppra at that stage and wasn't on frisium, so can't give you any specific feedback :-(
so happy for you that you are pregnant and 1 year seizure free! that is awesome news, best wishes for the remainder of your pregnancy xxx
I was on both when I had my son and he is a healthy, happy 18 year-old now. No problems but I didn’t breastfeed either of my children b/c of my meds. Congrats!
I was on phenobarbitone when I had my Daughter many moons ago, but I could only have the one as I was then put on Epanutin and then there was a scare that they could cause malformed babies. Also I could not breast feed. Good luck xxxx
Thanks Vennessa! Yeah I've been taking a high dose of folic acid since before I got pregnant so I'm hoping that does the trick! Keppra is considered safe but Frisium not so much although I'm on a low dose of that. Keeping my fingers crossed!