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BNF Dose Or Patient Information Leaflet Dose.

BNF Dose Or Patient Information Leaflet Dose.

Hi All, I'm new on here. My 13 year old son has been taking Epilim Chrono since February and not tolerating the side effects very well, nausea, dizziness, exhaustion and unable to sleep. My question is this:- the patient information leaflet states he should be on between 20 and 30mg per kilo of body weight but the Consultant, GP and Pharmacist have all been prescribing based on the BNF guidelines (British National Formulary), which states 12 to 17 year olds should be… read more

A MyEpilepsyTeam Member said:

This may or may
not help. I had trouble falling asleep, so I starting to listen to
music at night.
This helps me.
NOTE: They have
music that plays
"raindrops!"
Maybe this will help you sleep.

posted about 1 year ago
A MyEpilepsyTeam Member said:

My neurologist has me on clobazam to help me sleep at night. it has happened that I forgot to take a pill at bedtime. I then discovered by not taking the pill I was awake at 2 or 3 in the morning in a state of sleep and waking up about every 15 to 20 minutes. after taking clobazam I went right back to sleep with no problems.

posted about 1 year ago
A MyEpilepsyTeam Member said:

I'm from Farmington, Mo. of
the U.S..
Ask your son's Dr.
if your son can try
a different medicine. I've had
to try several meds
until I found 'what
would work 4 me.'
Even if the Doc. refuses to do that,
he can explain to U
"Why!!"

posted about 1 year ago
A MyEpilepsyTeam Member said:

I has been taking a particular anti seizure med which I literally ran into walls upon getting up to go somewhere in the house. It was very embarrassing so I stayed home most of the time.
My neurologist discontinued that particular med and I stopped running in to walls etc

posted about 1 year ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member every med has side effects. and everyone is different. i was a kid when i have seizures and my mom did everything for the longest time. i think your kid is fine with those med. if you trust your kid, and vise versa, you will be fine. as a health nut, i do vitamins to counteract the meds. i dont take epilim but i googled it and vitamin e is ones of um. another one is vitamin turmeric. turmeric boost weaken and/or hidden stuff in your body.

posted about 1 year ago
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