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Top 10 Search Results for "bnf dose or patient information leaflet dose"

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How Do You Know If You Have A Night Seizure
A MyEpilepsyTeam Member asked a question 💭

I have never had a night seizure before. I also haven't regularly had seizures, mine seem to happen in big sessions, last one was 7 Grand Mal / tonic clonic seizures. After a normal seizure I am disorientated, confused and tired. Recently I have been waking up after a really really long sleep and I am confused and disorientated. It only lasts 2 days and then I am OK, well still a bit tired but can at least answer simple questions.

This is obviously not a huge Grand Mal / Tonic Clonic seizure… read more

A MyEpilepsyTeam Member

I started having night seizures after 15+years. I woke up after 15-20 minutes, & was disoriented, headache, but also soiled myself. Not much I could do, so I revisited a neurologist, MRI, diagnosed… read more

I Have To Stay About A Week At The End Of The Month For A EEG And EKG . Are U Allowed To Use The Bathroom Or Is It Bedpan Time?
A MyEpilepsyTeam Member asked a question 💭

I hate bedpans. I was so nervous about not being able to use the bathroom. My bowels are just becoming normal again. I have to stay in the hospital a 5 day week. Can someone let me know?

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A MyEpilepsyTeam Member

This one was a full range EEG study ordered by my neuro. He was trying to see if they could trigger seizures, spot a focal point, and establish whether I was a candidate for DBS
I'm already on a… read more

Does Anyone Use A Patient Advocate?
A MyEpilepsyTeam Member asked a question 💭

If so what was your experience with one like, I'm thinking of going that route.

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A MyEpilepsyTeam Member

nope not yet.... but my wife is there for me... something i have been trying to do is set up an advanced directive

Anyone Work With A Doctor, And This Feels Weird To Say, Who Makes You Feel Like They Like Medicine Too Much?
A MyEpilepsyTeam Member asked a question 💭

The first time I worked with my current doctor was due to having to switch because of insurance. He was aware I had just had a seizure and the doctor had already raised the dosage, but he still wanted to raise it even more to above the max amount that I kept seeing all over the internet so I refused to do it. That was last summer. I recently had two seizures, the only ones so far this year and since last summer, after working overtime for 2 months and getting stressed and asked if they could… read more

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A MyEpilepsyTeam Member

well, I just put in a request to switch doctors. I just had to contact the office to ask why they included a diagnosis on my transportation application I have to fill out every year when I don't have… read more

I Have Been Seizure Free 6 Years. My Neurologist Increased Lamictal Because After Bloodwork, Said It Was Not At Therapeutic Level. Why?
A MyEpilepsyTeam Member asked a question 💭

I don't understand why I would need more medication if I am seizure free. It makes me sleepy and depressed. I have been on seizure medication for 50 years and seems to me it causes clinical depression which I have dealt with for many years.

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A MyEpilepsyTeam Member

I appreciate the question and the responses. I would add that my neurologist's nurse is a good resource as well. She may be able to help you with why and what you can do.

VEEG And No Seizures?
A MyEpilepsyTeam Member asked a question 💭

Has anyone ever done an in-hospital VEEG(mine is going to be 5 days) and NOT had a seizure?

I’m absolutely terrified of this happening. I usually have 3-4 seizures a month. The NP told me if I don’t have a seizure during the VEEG they’re going to say I have PNES(my epileptologist didn’t say this, the NP did). I’m not sure how they can just jump to that if I don’t have a seizure. I don’t understand this!

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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , there will be a camera in your room , watching you 24/7. If you’re going to be inpatient at a hospital, then they’ll reduce your meds everyday, by so much after the first… read more

Does Anybody Get Angry Or Upset With Their Drs
A MyEpilepsyTeam Member asked a question 💭

I get tired of the drs asking me to tell them how my seizures and epilepsy are when I am awake and I am going through them and all. I finally told the last dr look if I knew what and how to treat my own self I surely would not be paying you 10 thousand dollars for you to do thre job for me now go do your job. The dr was like I don't know what you want from me I told him go look up on computer for meds I am not allergic to and start there. Ty. For listening to me complain

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A MyEpilepsyTeam Member

I'm ok with my doc, I have a few in the past, but the doc I have now is a good one and upfront and caring about my condition and does ask anything out of nowhere sometimes I didn't expect, I find that… read more

Keppra And Frisium During Pregnancy
A MyEpilepsyTeam Member asked a question 💭

Hi Everyone,

I've had JME epilepsy for 20 years. I was always on Epilim which kept me pretty well seizure free. A while back, my fiancé and I decided that we would change meds as recommended by my neurologist so that we can have a baby.

It wasn't as easy as first expected and I had a couple of seizures, trying to transfer over to Keppra. My neuro added Frisium which seems to have worked and I'm now over a year seizure free.

I am also now 19 weeks pregnant. Reaching the half way mark, I am… read more

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A MyEpilepsyTeam Member

so happy for you on your blessing!!! it gives me hope for me that one day i can have a family too!!! keppra didnt work for my type of seizure i hope that it continues to work for you!! please keep us… read more

Has Anyone Show Good (large ) Seizure Results During Meditation Reduction For Inpatient EEG?
A MyEpilepsyTeam Member asked a question 💭

I’ve been in a few inpatient EEGs . The Dr. Wants me to show large seizures. But my medication could be near nothing and not showing any Large seizures, that they are looking for . My mild and moderate seizures aren’t enough. I was even offered food or beverages that could trigger my seizures.

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A MyEpilepsyTeam Member

I have been monitored during status attacks! The tech. Said what a mess ! I have been in monitoring and nothing happened!I have had 2 surgeries one they stopped do to reaction to anesthesia. I have… read more

Use Of Gabapentin
A MyEpilepsyTeam Member asked a question 💭

I was given Gabapentin for pain after surgery and I found that it did nothing but make me fall asleep which is why I may have been given the medication - who knows. Anyone out there has experience with Gabapentin as a pain killer??

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A MyEpilepsyTeam Member

Supposed to be for pain but I don’t like it!!

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