I have never had a night seizure before. I also haven't regularly had seizures, mine seem to happen in big sessions, last one was 7 Grand Mal / tonic clonic seizures. After a normal seizure I am disorientated, confused and tired. Recently I have been waking up after a really really long sleep and I am confused and disorientated. It only lasts 2 days and then I am OK, well still a bit tired but can at least answer simple questions.
This is obviously not a huge Grand Mal / Tonic Clonic seizure… read more
I started having night seizures after 15+years. I woke up after 15-20 minutes, & was disoriented, headache, but also soiled myself. Not much I could do, so I revisited a neurologist, MRI, diagnosed… read more
I hate bedpans. I was so nervous about not being able to use the bathroom. My bowels are just becoming normal again. I have to stay in the hospital a 5 day week. Can someone let me know?
This one was a full range EEG study ordered by my neuro. He was trying to see if they could trigger seizures, spot a focal point, and establish whether I was a candidate for DBS
I'm already on a… read more
If so what was your experience with one like, I'm thinking of going that route.
nope not yet.... but my wife is there for me... something i have been trying to do is set up an advanced directive
The first time I worked with my current doctor was due to having to switch because of insurance. He was aware I had just had a seizure and the doctor had already raised the dosage, but he still wanted to raise it even more to above the max amount that I kept seeing all over the internet so I refused to do it. That was last summer. I recently had two seizures, the only ones so far this year and since last summer, after working overtime for 2 months and getting stressed and asked if they could… read more
well, I just put in a request to switch doctors. I just had to contact the office to ask why they included a diagnosis on my transportation application I have to fill out every year when I don't have… read more
I don't understand why I would need more medication if I am seizure free. It makes me sleepy and depressed. I have been on seizure medication for 50 years and seems to me it causes clinical depression which I have dealt with for many years.
I appreciate the question and the responses. I would add that my neurologist's nurse is a good resource as well. She may be able to help you with why and what you can do.
Has anyone ever done an in-hospital VEEG(mine is going to be 5 days) and NOT had a seizure?
I’m absolutely terrified of this happening. I usually have 3-4 seizures a month. The NP told me if I don’t have a seizure during the VEEG they’re going to say I have PNES(my epileptologist didn’t say this, the NP did). I’m not sure how they can just jump to that if I don’t have a seizure. I don’t understand this!
@A MyEpilepsyTeam Member , there will be a camera in your room , watching you 24/7. If you’re going to be inpatient at a hospital, then they’ll reduce your meds everyday, by so much after the first… read more
I get tired of the drs asking me to tell them how my seizures and epilepsy are when I am awake and I am going through them and all. I finally told the last dr look if I knew what and how to treat my own self I surely would not be paying you 10 thousand dollars for you to do thre job for me now go do your job. The dr was like I don't know what you want from me I told him go look up on computer for meds I am not allergic to and start there. Ty. For listening to me complain
I'm ok with my doc, I have a few in the past, but the doc I have now is a good one and upfront and caring about my condition and does ask anything out of nowhere sometimes I didn't expect, I find that… read more
Hi Everyone,
I've had JME epilepsy for 20 years. I was always on Epilim which kept me pretty well seizure free. A while back, my fiancé and I decided that we would change meds as recommended by my neurologist so that we can have a baby.
It wasn't as easy as first expected and I had a couple of seizures, trying to transfer over to Keppra. My neuro added Frisium which seems to have worked and I'm now over a year seizure free.
I am also now 19 weeks pregnant. Reaching the half way mark, I am… read more
I’ve been in a few inpatient EEGs . The Dr. Wants me to show large seizures. But my medication could be near nothing and not showing any Large seizures, that they are looking for . My mild and moderate seizures aren’t enough. I was even offered food or beverages that could trigger my seizures.
I have been monitored during status attacks! The tech. Said what a mess ! I have been in monitoring and nothing happened!I have had 2 surgeries one they stopped do to reaction to anesthesia. I have… read more
I was given Gabapentin for pain after surgery and I found that it did nothing but make me fall asleep which is why I may have been given the medication - who knows. Anyone out there has experience with Gabapentin as a pain killer??
Supposed to be for pain but I don’t like it!!