Has Anyone Show Good (large ) Seizure Results During Meditation Reduction For Inpatient EEG? | MyEpilepsyTeam

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Has Anyone Show Good (large ) Seizure Results During Meditation Reduction For Inpatient EEG?
A MyEpilepsyTeam Member asked a question 💭

I’ve been in a few inpatient EEGs . The Dr. Wants me to show large seizures. But my medication could be near nothing and not showing any Large seizures, that they are looking for . My mild and moderate seizures aren’t enough. I was even offered food or beverages that could trigger my seizures.

posted December 5, 2023 (edited)
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A MyEpilepsyTeam Member

Sorry to hear that! However, it is unfortunately too common because sometimes even when someone is actually having an epileptic seizure, the EEG (which is not perfect -- just like every other device a human has made), thus at least there was another test that gave the neurologists the information that they needed. I have read the story of too many friends on this site where a former neurologist had diagnosed each of them as being epileptic because the EEG did show the proof when each was hooked up to it and had an epileptic seizure, but later on when the neurologist had retired or they had moved and thus had a new neurologist, the epileptic seizure happened, but the EEG did not show it. And too many of them were then told that they were not epileptic but rather was having pseudo seizures, delusions, panic attacks, etc. At least in my case, back in 1992, the neurologist had a real reason to tell me that I was having panic attacks because at the time all I was having were epileptic partial seizures -- however research didn't prove that epileptic partial seizures existed until 1995.

posted December 7, 2023
A MyEpilepsyTeam Member

The only way I know of having an EEG for epilepsy testing Is in moderate steps of First see regular brain waves doing no change, Then, done in steps and amount taken away to know how much to reduce to prevent causing brain damage, and other reasons When I had mine done for surgery and other epileptic reasons of testing, they gave meals of food that may cause seizure, reduce sleep, and reduce medication as you would do when taken off a medication done , until having that or those seizures needed, for reason of test. Also, the test will only be done for a certain amount of time, depending on amount patients' brain can take without causing more damage. to the brain. More damage than it had before starting of EEG.. WISH YOU BEST, ALSO HOPE YOU HAVE BAD SEIZURE, FOR GOOD REASONS THAT IS, LOL. GOOD LUCK AND TAKE CARE🍀💪
.

posted December 8, 2023
A MyEpilepsyTeam Member

I was in for 5 days. They observed 9 focal seizures. My history includes tonic clonic seizures as well. This was not long ago at all. My epileptologist and the team that she works with ( another epileptologist, neurosurgeon, neuropsychologist ) felt that finding a locus for the seizures and being able to address that location surgically. Being a difficult patient ( not my intention, just "luck" I guess ), they were unable to localize the breakout points well enough to plan out a specific surgical solution. I _think_ without knowing that there have been steady improvements in understanding how to address seizure "starting points" surgically, and am under the impression that a tonic clonic versus focal is not as critical in mapping. As always, I could definitely be wrong on this.

posted December 6, 2023
A MyEpilepsyTeam Member

I have been monitored during status attacks! The tech. Said what a mess ! I have been in monitoring and nothing happened!I have had 2 surgeries one they stopped do to reaction to anesthesia. I have been monitored at least 20 times. Some were fantastic and others nil.

posted December 8, 2023
A MyEpilepsyTeam Member

I just had it once before my surgery. The first five days I only had one mild seizure. Then the night before they were sending me home I had one of the strongest seizures I ever had. The next morning when my wife and sons came to take me home, I had another one just as strong. They told me I had a third one in my sleep.

I was glad this happened for three reasons: I didn't have to come back and do it again later. It was enough activity to show I was a candidate for surgery. I got the feeling after seeing me have that last seizure, my family understood why I needed that surgery...to help myself and give them one less thing to worry about.

The methods they used with me were only sleeping from 10 pm to midnight and riding a stationary bike for 15 minutes then hyperventilating for five minutes.

posted December 8, 2023 (edited)

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