@A MyEpilepsyTeam Member I had a quick 30min in-office eeg and the results stated “This is an abnormal EEG due to presence of left temporal sharply contoured focal slowing.” Does that mean seizure-like activity???

After that EEG I was referred to an epileptologist. I’d assume a busy epileptologist with a big case load wouldn’t take on a patient and work with them for a year and a half if they didn’t have seizures or epilepsy, correct?

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A MyEpile...

@A MyEpilepsyTeam Member I’m not sure how long I’ve had epilepsy. I started noticing the weird feelings in 2017/2018. I knew something wasn’t right, but I didn’t know what it was. I tried to get numerous doctors to help me but they all told me I was fat, needed to lose weight, and it was just anxiety. I was diagnosed with generalized epilepsy in 2022 when I had 3 tonic clonic seizures in one morning and was rushed to the ER(had one in the ER too). I had an eeg that I *thought* showed seizure like activity (it stated “ This is an abnormal EEG due to presence of left temporal sharply contoured focal slowing”) and because of that they referred me to an epileptologist. I’d assume a busy epileptologist wouldn’t take someone on if they weren’t having seizure and didn’t have epilepsy, but idk I’m still newer to this.

I’ve never had a VEEG before so I’m so nervous. I don’t want to be misdiagnosed. I had that quick 30min eeg like I said, but that’s it.

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A MyEpile...

@A MyEpilepsyTeam Member , there will be a camera in your room , watching you 24/7. If you’re going to be inpatient at a hospital, then they’ll reduce your meds everyday, by so much after the first day. They want you to have a big seizure. If they aren’t big enough they’ll keep reducing the medication.

During the visit at the hospital, they may want you to get up and walk around .some. Maybe they have and leisure room where , you can watch time play game and puzzles. Maybe even eat

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A MyEpile...

Hey there, how did your VEEG go? Were you able to have a seizure? I have an upcoming VEEG and I am trying to find out as much info as I can. Thank you, I hope it went well.

What doctor/ hospital have you been seeing. It is not the nurse practitioners job to give a diagnosis. If this eeg does not capture anything I would either ask to have another for a longer stay(which I know will absolutely suck) or if you’re currently seeing just a neurologist to try and find an epileptologist to help get the correct diagnosis. It took me about a year and a half to actually get my diagnosis of epilepsy, my first few doctors were “certain” it was just syncope. I really hope you find your correct diagnosis soon.