Perhaps look in your local council area for support groups that you can attend . We have a MP who comes to our monthly support group meetings and I find all the information I need from him in regards to employment, society etc . And learning other people’s epilepsy and how different it is to mine is also great knowledge

@A MyEpilepsyTeam Member why didn't you say that. australia is the different animal then the usa. the outcome is the same... getting help with disability things... but the way to do it is slightly different.

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A MyEpile...

Patient Advocates Australia are trained health professionals who advocate when things are going wrong or who act as case managers when healthcare is uncoordinated, hard to understand, stalled or poorly communicated. We join with patients (in person or by Telehealth) either in hospital or at medical appointments in order to ask questions, explain disease concepts and treatment options and provide patients and family members with confidence that they are getting good care. An advocate/case manager will ensure a client's preferences in treatment options are discussed.

Practical support:
Asking relevant medical questions on behalf of the patient or other supporting persons
Ensuring the patient and their support network understand the advice and information provided by healthcare providers
Letting the provider know that the patient has an expert supporter onboard
Facilitating an ongoing relationship with a medical practitioner/hospital staff
Educating the patient and family members on the available medical resources
Alleviating confusion or conflict between the patient and the physician, or between practitioners
Arranging a second opinion when the patient is concerned about the information provided by the treating professional
Arranging specialist appointments
Liaising with private health insurers to settle disputes or clarify misunderstandings
Negotiating or intervening when care standards are sub optimal
Exploring access for relevant clinical trials
Compiling and submitting a complaint about care.

Emotional support:
Accompanying the patient and other supporting persons to medical appointments which can be invaluable when complex or distressing information is likely
Providing regular contact with carers, practitioners, nurses, as well as the patients, to ensure satisfactory medical support is being provided consistently over a period of time
Monitoring the patient’s sense of wellbeing, including while travelling or during changed circumstances
Tailoring care to individual needs: whether in person, by telephone, text message or email

@A MyEpilepsyTeam Member it sounds like a pretty good service, I'm still not sure how exactly it would work. Whether these are qualified medical Nurses or wether they are just mentors? But either way, it sounds like it is designed to help you understand your treatment alot better.

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A MyEpile...

this is a quick search for 'Patient Advocate' and it is a fuzzy. there is 4 catagories in Patient Advocate... (Self-advocacy, Patient advocacy processes, Nurse advocacy, and Private advocacy). and the 4 catagories have different rules.
haveing said that, i think i am a Patient advocacy processes (without knowing it).
ssi covers most (if not all) Patient advocacy.