Quick Links
Resources
About MyEpilepsyTeam
Powered By
Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I Was on Topomax and it had some side effects that were tolerable … Stay strong in time you might be thankful 🙏 🙏
Ok I know this sounds more like something for dear Abby but...I have 2 children ages 12 and 9. My husband has been threatening to leave since we got married. (11 years ago) He says he could do better. He should've left a long time ago. I'm the reason he has no friends. Umm... the only thing my children are going to remember of me is how much I sleep (Combo of working full time and tons of meds). Etc. He has said if we get divorced he'd take full custody of the kids because I have epilepsy so I'm… read more
How are you doing Sara
My heart is still breaking for you and your children
Have you had resolution of some of your difficult challenges?
I find some of the responses you received to your… read more
I just started having that. My left eye started to get dark for a few minutes a couple of days ago, so I have decided that my driving license should be “hung up” for the foreseeable future until… read more
I did try the keto diet and it didn't make a difference in mine. I have read it is most successful in children but everyone is different. I also found o
I wasn't married but I did have a wonderful girl friend who unfortunately had a fatal stroke and I haven't looked for another because I don't believe I will ever find anybody who could be as caring… read more
You see people who make fun of people with grandmal seizures or use them in their pranks.
So how would you go about making them understand what its like to live with epilepsy and what its like in those moments? When i think about how i would go about i can honestly say I dont know and I dont know if i could ever make them understand because they dont walk in my shoes or anyone elses shoes with epilepsy
https://mail.google.com/mail/u/0/?ui=2&ik=c... 53024&ser=1
I just found this from the Epilepsy Foundation. It first includes First Aid for Epilepsy, then a booklet for Teachers about Epilepsy. I… read more
Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?
All of my meds are in generic my insurance will not paid for brand name
I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!
I feel you
How does anyone who is a full time parent get by with epilepsy and the fear of having one by yourself with just your child. I have grand mal and partial seizures. I'm to scared to have another child because I'm scared I shouldn't be a mother because of my epilepsy. I've recently also had brain surgery. So I have had a lot of help since my son was born. It's hard to feel like a mother
Is anyone else in this position or know how it feels? My parents help us but they are now in their 70's. They… read more
@A MyEpilepsyTeam Member I wasn't worried about my Pregnancy or my Son having the same Condition that I have b/c at the time my Doctor was in the Houston Medical Center which has some of the best… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
What is your question about it. I might be able to answer it for you. My name is Manny Gomez nice to meet you. I have one in me right now. I just had my 3rd one two years ago. I am supposed to get a… read more
