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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Would Youmake The World Undestand How It Feels To Live With Epilepsy

How Would Youmake The World Undestand How It Feels To Live With Epilepsy

You see people who make fun of people with grandmal seizures or use them in their pranks.
So how would you go about making them understand what its like to live with epilepsy and what its like in those moments? When i think about how i would go about i can honestly say I dont know and I dont know if i could ever make them understand because they dont walk in my shoes or anyone elses shoes with epilepsy

A MyEpilepsyTeam Member said:

They wouldn't even when you explain. People still see epilepsy and treat it sometime as a mental health issue.

posted about 4 years ago
A MyEpilepsyTeam Member said:

Like I said before...They see it. But they don’t feel it like we do.

edited, originally posted about 4 years ago
A MyEpilepsyTeam Member said:

We need to get Epilepsy Advertised like they do Cancer , Asthma, Autism and ect, on all the different media formats.

posted about 4 years ago
A MyEpilepsyTeam Member said:

I really don't worry about how people feel about my sizures but if that question should come up I only tell them it's like having a dream and leave it like that the rest they have to research on their own, but I've been bless to be around people who understands either they have it (my family and my husband son)or I do all I can not to look as though I'm in pain. I also stay to myself when I'm going through my seizures people ask me where have I been I just tell them I needed to empty my head and I leave it like that. I don't like pity from people (Oh I'm so sorry for you) that really gets on my nerves. I've gotten to where I told people that meditation is the best healing and so many people have came back to tell me thanks for the info they tells me now that they are doing the same. I've learned that the more we know about ourselves the more people will focus on our knowledge and not our sizures. Knowledge has been helping people to have respect for my seizures.I would say knowledge is the key to have a wonderful peaceful life 😊☺️💕

posted over 1 year ago
A MyEpilepsyTeam Member said:

Tiffany you r 100% right

posted over 2 years ago
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