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If so, Im not gonna be addicted to anything, am I?
I have been on Onfi (clobazam is the generic name, and much cheaper!) for years. It has made all the difference for me, with no seizures since my Dr first prescribed it! It IS a benzodiazepine, and… read more
I’m at 200mg along with 900mg of Triliptal and its taking me out.
I cut back on meds because I couldn't even function I was so exhausted and depressed and used to being very active. Now I'm supposed to go on Lamictal and dread more side effects. The neurology team I'm on will be discussing me this week and because nothing has worked so far on my seizures, they're leaning more on surgery but I'm not. The only thing is I found out in the hospital that I'm having them at night which I had no idea about and scares me as I have no idea how I'll know if I'm ever… read more
As you know by now we who suffer are made lab rats for the drug industry
Don't get me wrong there are both good and bad medications that work in different ways for each person
Myself over the… read more
https://www.fda.gov/drugs/drug-safety-and-avail...
Thankyou for your welcome message Toni. 🥰
I have put up with the rashes for many years, and have learned to tolerate them, and accept that I need to have a supply of loratadine handy for whenever the… read more
I have absence seizures and I am on 250mg Lamotrogine twice daily and have now added Frisium/Clobazam. Lamotrogine in pregnancy seems safe but Frisium/Clobazam not so much. Interested to hear from anyone who has been pregnant on Frisium/Clobazam and their experience.
Yes. I have epilepsy and I am pregnant with my third. My 2 oldest are very healthy.
I have been on Lamictal (800mg) since diagnosed 20 years ago which controlled seizures well until 3 years ago (have several Gran Mal per year). Dr added Keppra (3,000 mg) but hasn't seemed to be effective and causes rage issues. She is now suggesting Clobazam or Zonisamide. Anyone with a combo of either with Lamictal?
I haven't been myself I've been really down for a few weeks now an it's not good for my son to see this as he had been acting up as I think e can tell I'm not myself an it's not good for me either I seem to be isolating myself from others apart from who I live with has anyone had any side effects from this tablet? I'm on 40mg a day
Medication doesn't work or effect me in any way
I take xcopri, lamotrigine, clobazam, clonazapam, and zonisamide. They recently changed some dosages, and yesterday i woke up with a rash all up my arm. Its happened before but a small one on my leg. I’m 92% sure its from my medication so any comments would be appreciated🙏🏼💜
You should consult your Dr promptly concerning any rashes with medication.
I suffer with catamenial seizures and my menstral cycle starts again on 3rd January and I'm not looking forward to it as I know I'll have more seizures
My last one was when I collapsed into my glass shower door and fitted and I nearly lost my life, I thought I'd had a tonic-clonic seizure but it turns out that it was a catamenial seizure. I really don't want to have fit's again they're awful and makes me feel so weak and confused for day's
I have to take clobazam 10mg one twice a day when I'm… read more
Thanku so much Carla I really appreciate ur support in this and I hope u also get to take the clobazam too
I'm hoping that all women who are going through this and are at the age of not wanting… read more
I am depressed and I weather it's the seizures or the pills I need help getting over it. I can't get out of the house other than Mondays and Tuesdays. How to I get over this?
I had and still do have very bad depression and have had it for 15 years and tried therapy which didn't work for me but I would work to find a therapist for you so you can both work to find out what… read more