Does Any Other Women On Here Suffer With Catamenial Seizures Like Me? | MyEpilepsyTeam

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Does Any Other Women On Here Suffer With Catamenial Seizures Like Me?
A MyEpilepsyTeam Member asked a question 💭

I suffer with catamenial seizures and my menstral cycle starts again on 3rd January and I'm not looking forward to it as I know I'll have more seizures
My last one was when I collapsed into my glass shower door and fitted and I nearly lost my life, I thought I'd had a tonic-clonic seizure but it turns out that it was a catamenial seizure. I really don't want to have fit's again they're awful and makes me feel so weak and confused for day's
I have to take clobazam 10mg one twice a day when I'm… read more

posted December 27, 2023 (edited)
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A MyEpilepsyTeam Member

Hang in there and try and stay pos,

posted December 28, 2023
A MyEpilepsyTeam Member

You not the unlucky one....rather the luck one 😉. This is what makes you special 🤗
As a side note, my seizures improved substantially after my hysterectomy. I had it when I was 37 years old not because of epilepsy but due to bleeding heavily for 25 days a month 🙈
Keep dancing and listing to your music, it's the best therapy ever 😘
Look after yourself and take it easy, loads of rest and YOU time 🤗

posted December 28, 2023
A MyEpilepsyTeam Member

Aww bless you thanks so much Irene that's so sweet of you, I will definitely keep you updated on how thing's go.
I'm so glad you're doing well it always makes me smile knowing that my team members are doing well.
Take care of yourself.😊💜xx

posted December 28, 2023
A MyEpilepsyTeam Member

Rachel, thank you for this question and for explaining what happens when you seize. I'm not familiar I hope someone sees this and responds. It's understandable that you would be anxious about your upcoming menstrual cycle. I'm hoping someone has some suggestions for you. Since these questions disappear after a time be sure and ask again, you never know when the person with suggestions may respond.

posted December 28, 2023
A MyEpilepsyTeam Member

I admire and respect that in you.

posted January 2

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