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Has Anyone Taken Frisium (Clobazam /Onfi) During Prengancy?

Has Anyone Taken Frisium (Clobazam /Onfi) During Prengancy?

I have absence seizures and I am on 250mg Lamotrogine twice daily and have now added Frisium/Clobazam. Lamotrogine in pregnancy seems safe but Frisium/Clobazam not so much. Interested to hear from anyone who has been pregnant on Frisium/Clobazam and their experience.

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member I’m on clobazam (5mg per night - a half tablet) and lamictal 250mg morning and again at night.

I haven’t had any side effects on clobazam. I don’t notice it at all. I was put on a full tablet at first and when I noticed I needed lots of sleep ins and a few afternoon naps on the regular I cut it down from 10 to 5. I don’t know if I’m addicted.... certainly hope not. I forget to take it sometimes and I don’t have a craving or something.

My doctor is close friends with one of the people who sits on the board of the medicine rating and risk evaluation for Australia. She said statistically it’s rated higher risk but it a small study and to remember that even a normal person has a percentage risk of having a baby with a disability. It is not black and white. She said I don’t have to take it in first trimester but if I like I can pop it in in second trimester. The baby can get an injection at birth (dissolves it or something) and be on breastmilk a short period for the benefit. The benefits of breast milk outweigh the risks for the baby. I don’t have any source to verify this but she is one of the highest recommended doctors in Sydney. You would need to do your own research.

This doesn’t mean I’ll make that choice, I probably won’t risk it, but it’s always good to hear from multiple sources and make ones own comfortable choice.

posted over 1 year ago
A MyEpilepsyTeam Member said:

I dont think Onfi is a safe drug to be on for pregnancy. I'm not pregnant but they are always worried that if I get pregnant they would have to change my meds.. I'm on Lamotrigine 2 lol. Maybe ask about Vimpat?

posted over 2 years ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member
They won't let you stay on Onfi... any controlled substance pill if you are pregnant you will have to "switch" off of. It's been a year since I wrote that above. Vimpat and Onfi both wouldn't be safe being Pregnant for a baby. The manufacturer website I would think would have a list. You have to "ween" off these medications as they have addictive qualities. Pharmacies are very particular to how often you can pick them up.

posted over 1 year ago
A MyEpilepsyTeam Member said:

Can I ask if there were any side affects that you noticed if you stayed on it? I'm on it so lots of questions!

posted over 1 year ago
A MyEpilepsyTeam Member said:

I is your Birthday. Happy Birthday and many more to come.
I am sorry to hear about your seizures. I think you should ask your Dr. that question

posted over 2 years ago
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