when i was a child (10-16) years old i was prescribed but when i left school the doctors changed my medication. why was this when mysoline was controlling my epilepsy. whilst on mysoline i was having 1 maybe 2 fits aweek but since they change my medication my fits have increased and i am unable to work

Do you view that you had a good life prior to Epilepsy starting later in life? And do you feel that you are cursed, challenged or simply frustrated by life with all of the seizures and/or all of the side effects of medications, surgeries, implants, etc.? Do you feel that others have ceased judging you as an individual but rather only see you as an Epileptic -- thus in some way abnormal? And for those of you who have had Epilepsy since you were a child and have never had any form of reduction… read more

Hi
- I feel like I should be working and doing things that I did prior to my epilepsy
- I regularly feel like I shouldn't be on disability and that I can do everything.
- My family and my Dr have been telling me that I can't work or do most things on my own especially with my myoclonic seizures as they have caused me to burn and cut myself when cooking, dropping things etc...
- I used to be a nurse and don't see myself as being disabled. Even on here I see and think that there are people… read more

My seizures last about 5 minutes (or less), although the seizure stops I still remain unconscious for long (anything between 10-40 minutes), should someone seek medical assistance or is it best to just to just wait it out. My neurologist says there is nothing they can do so best just to wait. It’s a terrible feeling and it’s a struggle to regain consciousness, move my limbs and open my eyes. I just want a second opinion to set my husband at ease when it happens.

I have anxiety and sometimes have panic attacks that seem to get worse when I am in a public place ( find it difficult in crowded places ) which always causes me to have seizure how do you handle them

Does anyone else feel guilty about having a seizure? I know I shouldn't but I feel like I get in trouble when I do.

I had a conversation with a few people here. We all have had difficulties speaking. Getting confused, slurring words, dyslexia getting worse, not being able to put sentences together properly, etc.
If that’s a seizure, what type of seizure is it?
Or is it more likely just side-effects of medications?
Thanks.

I at one time was told I had grand mal, then went to petite mal now I'm told I have generalized primary seizures. I tend to not understand how this is possible and wonder could doctors misinformed me or is it actually possible for the diagnosis to continuously changed and why/how does this happen. what causes this?

Do any of you feel that travel makes your seizures worse? I once had a seizure while on a cruise ship - that was barrels of fun, but I did have the sick bay all to myself. And/or how do you carry your pharmacy of medications with you?

I am in consant fear of when i will have a seizure. I dont know when it could happen. Its affecting my everyday life always trying not to think about it too. Always playing on my mind.