I am in consant fear of when i will have a seizure. I dont know when it could happen. Its affecting my everyday life always trying not to think about it too. Always playing on my mind.
@A MyEpilepsyTeam Member this is the deafferents between you and i and everyone on this group. i have auras (it's absedence tee but only 1/2 of my brain is affected), 2 types of partials, and grand mals (tonic clonic). the 2nd thing is you have 2-3 a week/month. i have it a seizure every hour to everyday (without the cbd oil). idk if that helps you or not. i am saying that you will get through this. on top of all that... we are here to support you. remember it maybe worst.
It's always in the back of my head Lucy as is epilepsy of you know what I mean at the end of the day I look at life day by day don't live in fear ok think of what you can do to make a difference best wishes stay safe and seizure free 😊
Lucy- When one of my semi-daily seizures happens I'm just
glad cause it's over and don't have to worry bout it all day.
Like yesterday about to go shopping, had one just before so
I knew I wouldn't have one in a store. Of course I was upset
at first but this fades. I can imagine with your other problem
how the rush of hormones from a seizure can be twice as bad.
The intensity of emotions can be overwhelming. Try to keep
in mind that like all the other crazy things that happen it was
from a seizure not from the real you -your mind..
@A MyEpilepsyTeam Member Dufresne i am the same as you. After a seizure i am afriad fkr the rest of the day and all night. I cant sleep that night either, i tend to cry myself at night too. My dogs seem to help me, they comfort me all the time.
I hardly ever go out on my own, im too afriad and i always think about it thinking i will go into a seizure.
I often have seizures a least 2 or 3 times a week, a month. I have two types of seizures, they are tonic clonic seizures and absedence seizures. I do have some in my sleep too sometimes.
@A MyEpilepsyTeam Member i am not living it fear... i used to when i was a kid. but when i was a teen, i said 'no more' and living my life 1 day at a time. i think about it in the back of my mind (i think all of us having that fear) but i overcame the fear everyday. i listen to music and my do-to list is bob marly '3 little birds (don't worry about a thing)', bob mcfarlen 'don't worry, be happy', and monty python 'always look for the bright side of life'. those 3 songs will make me feel happy.
remember... (bob mcfarlen) 'in life we have some troubles... if you worry it makes it double.'. meaning if you worry, it would expand that worry and all your reaction is worry. same for fear and happiness. i'm trying to say is do not live in fear... overcome that fear.
i say 'you can laugh or you can cry about something... i choice to laugh'. you have the choice to take charge (the laugh part) or to live in fear (crying part). the choice is up to you.
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