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I am turning 65 and about to lose my retirement insurance. Vimpat 150mg - 2 daily, has been $50/month with a combination of manufacturers coupons and insurance. Now I am looking to get some kind of coverage that I can afford. Everything I have seen will now cost me $650 on up to $1000 per month. That I can't afford
I've changed my home loan from 15 to 30 year. Eliminated /reduced both TV and Internet usage. Now use the lowest cellphone plan( I have no home phone). All of my other seizure… read more
Thanks a million for your advice. I live in a small formerly mining town ,Junction City,Ohio. There is no health clinic around here. But, I can spread out to the neighboring… read more
Hey Guys,
I haven't been on for a while and I'm sure it's already been asked but....
How many of you have had the Covid-19 shots (and which one and why).
Also, my doctor wants me to get Pfizer along with my partner,
but by the time he gets it his work would have started and he won't because he hasn't had the shot.
Again, we can have the Astra in a few days and everything would be alright.
I'm very confused,
I am alright I had the Oxford Astra zenica an I am perfectly alright they are saying for the booster we might get the one the doctors are asking you to have they have studied having them mixed first… read more
I really feel bad because i mentioned that i was not going to take the vaccine under any circumstances. Now i plan to visit family in NYC soon. Following the travel advisory news they are trying to secure themselves in having anyone and all passengers traveling domestically will need to have proof that you have taken the vaccine. How do you feel about this forceful decision now that J and J have put a stop on the vaccine because of blood clot issues?
@A MyEpilepsyTeam Member I’ve had the AstraZeneca vaccine and I’ve been ok I had a sore arm and a rash two weeks later with itchiness and I was tired I’m waiting to second shot I’m glad you got your… read more
Has anyone heard of the results of testing with people with epilepsy? Is there any difference in performance compared to Merck? Or is this a generic version of the Moderna or Pfizer? I need answers to make a decision.
I had the phizer vaccine 2 weeks ago and have been fine. Which vaccine was it and do you know what caused his death. Ex. Blood clot.
I went in for my 1st vaccines and did just fine. But when I went for the booster, it knocked me into seizures for at least 3 days/nights.
Unfortunately, too much information about vaccines and potential effects from any of them (way back to when the first vaccines were created for polio, small pox and others) is not known but most of… read more
My neuro told me that Epilepsy is not a qualifying condition, but NY State released the list of who would qualify next. It says:
Beginning February 15, 2021:
Adult New Yorkers of any age with the following conditions qualify for the vaccine:
"Neurologic conditions including but not limited to Alzheimer's Disease or dementia"
We have a neurological condition, but of course it's different than dementia. I can't find any further definition. Would you go ahead and try to get an appointment… read more
@A MyEpilepsyTeam Member My sister, who got her shots along with me, was wiped out the day after, but I was lucky that all I got from the second shot was just like the first -- the "mosquito bite"… read more
Has anyone gotten the vaccine? Do you feel it has made seizures worse? Have any of y'all heard of shedding? I know it's a touchy subject for a lot of people. Personally I am NOT vaxxed, nor will I be getting it. I am surrounded by people that are.
I've had all the shots including the updated covid shots. Also all flu shots are up to date.
68 yrs old feeling good.
No problems
My rash has overwhelmed my body and it is super itchy. I feel like I have chicken pox. My doctor told me to just deal with it the first time when it was small. But now its my entire body. I am confused on what to do. Anyone have any advice?
@A MyEpilepsyTeam Member:. Thanks for the definition. I learned something new.
I’ve thought about getting the vaccine but I’m scared it might do something to my health because I have seizures if anyones got it please give me answers and your personal opinion
Ive had all 3 now. The second pfizer left me really sick w/ flu like symptoms for two days. I did have a GM after that. The third was only about half as bad for flu like symptoms. No seizure.
Now that a vaccine for covid is in further trials is anyone worried it will interfere with their current epilepsy medication?
I had the first of the two Astra Zenica injections and it’s had no bad effects on my epilepsy at all. Due the second one in roughly 8 weeks now.
