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Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I Was on Topomax and it had some side effects that were tolerable … Stay strong in time you might be thankful 🙏 🙏
Rest helps me. I feel refreshed! Like my iPhone when I restart it 🤩
stay silly and stress free as much as possible
Yes there are people out there that doesn’t think we can do anything. And then there are people that know that we can do things. We just have to be careful.
Sometimes I cry my eyes out if I am having a lousy day. And turn on the music! Lately I’ve really enjoyed The Three Tenors 1990 concert in Rome. Wow!
I listen to classical music it helps me relax.
I’ve had epilepsy pretty much all my life. I’m curious for those who have had epilepsy for all their lives if it gets easier mentally or do you still feel frustrated with your disability.
I ask this because as someone who has lived this more than 25 years, I’ve gotten past the acceptance phase eons ago but I do get frustrated with the reality of what I can and can’t do in life. I’m just wondering if it’s just a phase or does this kind of stuff go on even as you get older.
I have had tonic-clonic seizures since 1981. I considered my seizures mostly controlled - 1 seizure every 3-4 years. I feel they have made me a stronger person and able to handle the bumps in the… read more
I learned that good can come of a diagnosis that initially devastated me. I know, I know….I can’t believe it either. 🤩 But it’s true! Earning the label “tenacious” feels like a badge of honor.
If we could just make it known to everyone that there’s currently no way to make this go away, kinda like they did with cancer, and let people know that even though they currently don’t have a cure… read more
I am in consant fear of when i will have a seizure. I dont know when it could happen. Its affecting my everyday life always trying not to think about it too. Always playing on my mind.
I read stories like this and my heart just breaks! FOR ME! when I stopped living in fear of episodes is when I stopped having them! I don't allow my husband or my coworkers to be "overly cautious"… read more
I have tried to get along with my mother-in-law. She always calls last minute and my husband falls in place like military call. I asked myself was I wrong? This is his mother. But she always checks with him and assumes I am not coming because I have been sick. I just think she doesn't care. We have already been having problems and then he tells me she called to go to Columbia to see his twin sister. I am having stomach problems again, wanted to go to church, and come back home to home to relax… read more
I understand it may be frustrating but use it as you time 😊
Someone with narcolepsy said that she tells others about her condition by saying "sometimes I, without warning, fall asleep" rather than naming her syndrome. This got me thinking. Is it easier for many of us to tell others by saying "I have epilepsy" or something like "I have seizures?" What's easiest for you, or do you feel the words don't matter?
I tell others that I'm Epileptic and tell them what to look for if I'm acting different. And what to do and not to do.
70% of all people with epilepsy can be seizure free with medication. .
Ketogenic diet has helped me tremendously, also exercise, reading, walking my dog 🐶 and blocking out stress factors. I’ve been told no more working so I’ve ceased working yet I find it extremely… read more
