I'm 21 years old and live in NC. I've been on a list of seizure meds all of which cause my seizures to increase in frequency, length and intensity. I have no health coverage whatsoever, I can't get referred to an epilepsy center due to this because no neurologist wants to see someone with no income or coverage. I know once I get on the right dosage I'll be able to work again because I've had the concentrates for epilepsy a few times and felt like an entirely new person for like 2 weeks. No… read more
Can you live by yourself & have a response dog? What other options are there?? I need answers not hugs.
Hugs are nice but answers are what I am looking for.
What doc didn't she like? Just outofcuriosity @A MyEpilepsyTeam Member
note:I take lamotrigine and vimpat for complex partial seizures. I have had flare-ups every 4 months since Jan 2023. After 5 years being Seizure ???
May not be the medicine. May be something that irritates you. Me I realized that computer screen lights . Which cant adjust. Bright headlights and lights. People screaming. Children yelling and… read more
I have had the pleasure of driving 4 times in my life in the 80’s. Shortly after the last time I drove a car I did some research and found out what the laws are in my home state. The law was a… read more
I have been having a hard time going to work the last few days. It's hard to get my boss to understand that sometimes I can have one seizure and sometimes I can have multiple that will keep me down for days. I dont know what to do anymore. Drs haven't said I can't work but I dont know how many times my job can deal with me being out.
After my first seizure My doctor said I wasn't to sleep alone for the first three months.My wife had to go to her family home almost every weekend so I couldn't work all day Saturday. It wasn't until… read more
My insurance denied the request and appeal for IVIG so my doctors office is now going to try to get approval for Rituxan. Thoughts?
I usually stare. I don't have any sense of how long, but my husband tells me.
I've answered this question back in September from George. After 7 months of seeing the opinion of others so the following is to try and help those who are hesitant to share or not, with a different… read more
My wife is having a really hard time adjusting to our new life, she doesn't drive and I can't now, she asks all the time, what do we want to do, where do we want to go etc. I need to hook her up with some support of some kind.
Thanks.
Yeah the Day to day gets us all I think 😒 I have to say this hamas Israel conflict shuts down any complaints I have. Everytime I hear something new I just cannot imagine the inhumanity...Anyway it… read more
I worry about others. I am told by them don’t worry!