Yes. Funny thing is though family seem to be less worried these days which is fine but if it's a friend or someone that I've only just met that I have told I have epilepsy then they tend to worry alot more.
Yes, my husband and a few of my friends. It can be a bit annoying.
I worry about others. I am told by them don’t worry!
I agree with you and I’ve darted seeing a therapist to deal my PTSD, which has led to me having another disorder that mimics epilepsy. She says the same thing. We talk about the fact that I’m doing all I can to set myself up so that I don’t have to lean on my mom and she’s doing all she can to get in my way.
Mind you that doesn’t stop me from doing what I need to do to maintain as much of my independence as possible, but it does make it harder.
I still think the effort is worth it because if we don’t take some kind of control over this disorder and living with it then the disorder wins and when that happens it royally sucks. Epilepsy isn’t going away. The best we can do is manage it as much as possible and hope to get ourselves into a safe, happy, seizure free (as much as possible) state of life. Parents may always hover, but we just have to show them day by day that we can manage to live happy, healthy and normal lives.
Yep I have this issue too. My mom no longer wants me riding the city bus because of my epilepsy and she wants the gate code to my apartment as well as a key to the house. I have balked at that. I told her I deserve some space and privacy.
I’ve more than proven that I’m aware of what’s going on around me and I have set up things like emergency notifications with my Apple Watch if something happens and I have to go to the hospital. I think the key to getting our family members to relax is showing them that we are capable of managing our epilepsy issues. We let them know we can call for help if needed, but we don’t need to be hovered over.