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Trouble Working
A MyEpilepsyTeam Member asked a question 💭

I have been having a hard time going to work the last few days. It's hard to get my boss to understand that sometimes I can have one seizure and sometimes I can have multiple that will keep me down for days. I dont know what to do anymore. Drs haven't said I can't work but I dont know how many times my job can deal with me being out.

posted June 27, 2017
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A MyEpilepsyTeam Member

I covered this quite extensively (i.e. my experiences on the issue) in my book. My final intention was to show and let everyone know that even though I have this negative & unpleasant issue, I am still beneficial for the company. Even though I may be away a lot more than others, that I am still beneficial to my coworkers and to the company.

The way I see it; You can't really expect people to fully or even partially understand epilepsy [if they don't know it]. That's why it's up to me to show them; Am I unpredictable and unreliable etc. OR am I reliable and capable

posted March 2, 2019 (edited)
A MyEpilepsyTeam Member

I work for my state. When I was hired they knew i was disabled, but they weren't told what my disability was and weren't allowed to ask. So i arranged a meeting with my bosses and told them that I have epilepsy, that I had brain surgery which helped reduce seizures but didn't completely stop them, and there were side effects of the surgery related to language and memory...basically laid it all out for them. Because I'm employed by the government I'm not worried about obvious discrimination but I thought it was only fair that they know my situation. I also had my state epilepsy foundation give a presentation to my office. So my coworkers understand how to react to seizures and why I learn slowly.

It's always good to be up front with your employer. If they refuse to hire you because of your disability, or won't accommodate you at your job, they're breaking the law. Go to https://www.epilepsy.com/living-epilepsy/indepe... for info on the Americans With Disabilities Act.

posted September 28, 2018
A MyEpilepsyTeam Member

Most of my employment issues were about the time I was not able to be there. It was a nightmare.
My recent employer is great. We make a claim to FMLA that protects every absense related to seizures. I have been on Short Term disability 2X this year because of several break through seizures. I was very transparent with all the managers and we have onsite nurses. We all sat down came up with a plan. So I could have a seizure without creating a scene. It has worked well.

posted August 28, 2018
A MyEpilepsyTeam Member

Maybe having your
Doctor writing a note to "your boss,"
to explain your
situation. Sometimes others,
(R more likely to accept the info. from 'your Doctor!')
explaining to your
Boss!
Anyone's Boss is more likely to accept your info.
if it comes from your Doctor, (he's
a professional)

posted April 27, 2019
A MyEpilepsyTeam Member

Try to Find or look for different Meds/Drs/Jobs who will Understand Your Predicament!

posted April 28, 2019

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