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Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I hope you have a blessed Christmas holiday also @A MyEpilepsyTeam Member
What does everyone mean by what " triggers" you this may be a dumb question but can Episodes/ fits be triggered by things other then like getting scared or stuff like that ?
I feel like when people are talking to me about random things I sometimes get this feeling like a random word almost sets something off?
A trigger is something that will start a seizure. A simple example is not taking medication-that is a trigger. People take medication to stop seizures, so if a person does not take their medication… read more
I realize my anger is possibly a trigger but does anyone else experince it?
Just do your best
My triggers are, the heat, strobe lights, stress, lack of water, lack of food, and really cold weather.
My trigger is propylene glycol. If I touch it I'll have tonic clonic seizures within 4 days it's in everything so impossible to avoid
Since beginning this journey and identifying triggers, my main trigger has been heat. Now that we are fully into summer, I have been a bit of a mess. Does anyone have any good tips on dealing with heat sensitivity for seizures?
The heat is my biggest trigger along with lack of sleep and stress/ or someone upsetting me…these are my main triggers!! Plus: not enough water
It's different for everyone. I was diagnosed with epilepsy when I was a baby and sugar was and still can be what triggers my seizures. I used to not be able to not drink a pop without having a… read more
Try and keep positive to reduce stress , to not trigger any seizures. Keep in mind that you control your life , Not Epilepsy. Epilepsy just throw obstacles in our path. They may not always be easy, we… read more
It’s 1 degree. Feels like -16! Lots of car accidents. Glad I stocked up on groceries last week! Warm and cozy here.
Check out my first flower I am going to dry and frame!
Me2 and rain as well.
Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?
All of my meds are in generic my insurance will not paid for brand name
I am constantly being told by my wife and family to spend less time on my computer because it increases my seizure rate. Yes it's addictive so I am trying to cut down. Is anybody's family telling them similar things? (it's difficult for me because I used to be a computer programmer)
@A MyEpilepsyTeam Member my treatment for that is the lighting. i have that flashing lights thing and i am a gamer so i turn down the brightness level and when i have flashing lights, the brightness… read more
