Connect with others who understand.

sign up log in
About MyEpilepsyTeam

Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Heat And Seizures

Heat And Seizures

Since beginning this journey and identifying triggers, my main trigger has been heat. Now that we are fully into summer, I have been a bit of a mess. Does anyone have any good tips on dealing with heat sensitivity for seizures?

A MyEpilepsyTeam Member said:

When it comes to the heat I experience seizures, that is one thing that will trigger for me plus other things but still heat. So what I do is when I want to take walks around my neighborhood I always have a bottle of water. When I’m on vacation and I am at the beach I always rent an umbrella and when it gets too hot I jump in the water, or if I’m by the pool or in the hot tub for to long I have to jump in the pool to cold my body down. When I take showers they have to be fast showers I can’t stay in long it will trigger. When I told my Neurologist all of this, man did I get yelled at. I even had to tell her I took a bath and she chewed me out never take a bath unless somebody is there. 😬
There are so many things you just can’t do..seizures are a pain in the ass 🤦🏻‍♀️ 😡

posted about 2 years ago
A MyEpilepsyTeam Member said:

I loved the summer and the sun, in my 20's and 30's, the hotter, the better. I was a sun godess and loved vacationing in warm sunny places. I was more sensitive to cold weather. I worked in offices where the air was set so low, and I would get so cold, that I would have to wear a jacked or sweater. Neither heat nor cold, ever made my seizures occur more frequently. I had my seizures, before and after my menstrual cycle.
You should avoid the sun and stay very hydrated.

posted about 2 years ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member when I was diagnosed I got them around my periods too so I got prepared to have seizures for the days I had them before them and after them and of course the unexpected ones now they come when they bloody want to and drive us nuts x x

posted about 2 years ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member your neurologist chewed you out no neurologist should yell at you ever and I mean ever they’re supposed to guide and appreciate you I had a bath once I kept the temperature low I had them by myself I stay myself keep temperatures low I’m shower if heat is giving you seizures have fans in your house the heat from outside can come inside oh I forgot to mention don’t fill your bath up too high there is always a danger of a seizure coming on stress and worry if having showers is easier for you have a shower seizures are pain in the arse even smells can trigger them we don’t always know I wish sometimes there was no epilepsy but there is and we deal with it take care x x

posted about 2 years ago
A MyEpilepsyTeam Member said:

I have seizures and asthma. So its tricky to deal with the heat. But since one of the side effects of the seizure medicine i am taking is dry mouth and dry throat, drinking lots of fluids during the day helps me in dealing with hydration and heat.

posted about 2 years ago
Already a Member? Log in