Since beginning this journey and identifying triggers, my main trigger has been heat. Now that we are fully into summer, I have been a bit of a mess. Does anyone have any good tips on dealing with heat sensitivity for seizures?
When it comes to the heat I experience seizures, that is one thing that will trigger for me plus other things but still heat. So what I do is when I want to take walks around my neighborhood I always have a bottle of water. When I’m on vacation and I am at the beach I always rent an umbrella and when it gets too hot I jump in the water, or if I’m by the pool or in the hot tub for to long I have to jump in the pool to cold my body down. When I take showers they have to be fast showers I can’t stay in long it will trigger. When I told my Neurologist all of this, man did I get yelled at. I even had to tell her I took a bath and she chewed me out never take a bath unless somebody is there. 😬
There are so many things you just can’t do..seizures are a pain in the ass 🤦🏻♀️ 😡
I loved the summer and the sun, in my 20's and 30's, the hotter, the better. I was a sun godess and loved vacationing in warm sunny places. I was more sensitive to cold weather. I worked in offices where the air was set so low, and I would get so cold, that I would have to wear a jacked or sweater. Neither heat nor cold, ever made my seizures occur more frequently. I had my seizures, before and after my menstrual cycle.
You should avoid the sun and stay very hydrated.
@A MyEpilepsyTeam Member when I was diagnosed I got them around my periods too so I got prepared to have seizures for the days I had them before them and after them and of course the unexpected ones now they come when they bloody want to and drive us nuts x x
@A MyEpilepsyTeam Member your neurologist chewed you out no neurologist should yell at you ever and I mean ever they’re supposed to guide and appreciate you I had a bath once I kept the temperature low I had them by myself I stay myself keep temperatures low I’m shower if heat is giving you seizures have fans in your house the heat from outside can come inside oh I forgot to mention don’t fill your bath up too high there is always a danger of a seizure coming on stress and worry if having showers is easier for you have a shower seizures are pain in the arse even smells can trigger them we don’t always know I wish sometimes there was no epilepsy but there is and we deal with it take care x x
I have seizures and asthma. So its tricky to deal with the heat. But since one of the side effects of the seizure medicine i am taking is dry mouth and dry throat, drinking lots of fluids during the day helps me in dealing with hydration and heat.
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