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As a child, I took Phenobarbital at night, and Tridione in the daytime. Anyone else heard of this? My new Dr.'s give me funny looks, but I know what I was taking. I was 17 when I stopped taking it.
I take 145 mg of phenobarbital.
116 at night
On it 29 years
I had a intracranial EEG April 15th. Within 2 days they noticed 2 times the number of seizures, often in my sleep, than I was noting. April 20th I had a brain ressection in my right frontal lobe. I was doing great until I came off the hydromorphone and steroids. As well they changed me from Dilantin to Vimpat. I also take 2mg of clonazepam a day and am allowed 1mg of Ativan per week, the remainder of the time I go to the ER. An average of 2 times a week.
I am trying to find any suggestions for… read more
Been on phenobarbital for 8 years or so. Was also on it from 3 to 12 years old. Works better than any other seizure med has for me.
After my head injury. I was taking just Dilantin. Then after the many times I woke up in hospital, they increased my dosage. Then after more times waking up in more hospitals they started giving me different meds. Right now I am taking Dilantin & Primidone.
How do you feel mentally?
Looking forward to your response.
Thanks, in advance.
Have a blessed day.
when i was a child (10-16) years old i was prescribed but when i left school the doctors changed my medication. why was this when mysoline was controlling my epilepsy. whilst on mysoline i was having 1 maybe 2 fits aweek but since they change my medication my fits have increased and i am unable to work
@A MyEpilepsyTeam Member , I was I the same boat. I lived near a city bus Route when I need to get to far destination. Also walked or rode my bike to area where I didn’t need the bus
I also had… read more
Does anyone else take lamictal get feitiegue but you have to take it multiple times a day and at night. Do you guys have suggestions obviously other than taking a nap to deal with it at work?
I've learned to take it REALLY early in the morning so I can go back to sleep and have enough before I get up for the day.
How is Xcopri? What are side effects?
I don't want to come off of phenobarbital
I'm happy to hear she is getting better
@A MyEpilepsyTeam Member ,I don’t feel different when being taken off the meds, of present day. Other than the time of being weaned of Phenobarbital, I have never gotten any major withdrawals from… read more
The symptoms of going back up ended yesterday. forget the post above. I'm emotionally stable yay
Also look into B-12
Does Keppra make your mood worse?
Do you have drastic mood swings if you take Keppra?
What other meds have you tried?