Why Don’t Doctors (Neurologists) Like To Give Patients Phenobarbital To Control Their Seizures Anymore? | MyEpilepsyTeam

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Why Don’t Doctors (Neurologists) Like To Give Patients Phenobarbital To Control Their Seizures Anymore?
A MyEpilepsyTeam Member asked a question 💭
posted July 24, 2022
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A MyEpilepsyTeam Member

When I tried phenobarbital it really knocked me out , so I stopped it. There are a lot of newer ones, phenobarbital is an old drug, many newer ones. But the patient knows what works and hopefully your physician will listen to you

posted July 25, 2022
A MyEpilepsyTeam Member

Look up above 3rd question up from your’s.. another person was also asking about something related to phenobarbital.

I have a message along with others may that will help you some.

posted July 26, 2022
A MyEpilepsyTeam Member

The reason I asked the question is because a neurologist I saw quite a few years years ago put me on phenobarbital because I insisted that he do so. Nothing else was working and Pheno worked well for me when I was a child. Since then, I’ve seen two more neurologists and neither of them like or want me on Phenobarbital. But it works the best for me in addition to my DBS. So I want to stay on it. I have an appt with a new neuro in August who is to wean me off of Phenobarbital. I’m going to tell her I want to stay on it and go off the Vimpat and/or Zonisamide instead. They don’t work as well for me; I know, I was on them before I started taking Phenobarbital.

posted July 24, 2022
A MyEpilepsyTeam Member

Phenobarbital is an old medication and there are newer ones that supposed to be better and more effective.

posted July 24, 2022

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