My husband suddenly started having grand mal seizures about 6 years ago completely out of the blue and was diagnosed with epilepsy about 6 months after his first cluster of seizures. He was young (27) fit and healthy and strong as he is a farmer, since the epilepsy began he has changed in almost every way... can anyone else relate?

Hi 👋 I'm Eve , I'm 52 and I've just been diagnosed with an x-ray with Osteoarthritis. I was always careful with bone density scans on Tegretol . I've developed toxicity in around 2016. I changed my meds to Keppra and didn't get on well with the Anxiety so changed again to Epilim and Lamotrigine. It was roughly 6 months into that that I developed joint pain. I was told it was normal wear and tear and my blood test for inflammation had come back clear. I insisted on further investigation on my… read more

Has anyone suffered pain in their elbow as a result of epilepsy medication or a seizure? Do you have regular scans on your bones?

Has anyone else experienced 'heavy feeling' limbs and joint pain when prescribed Epilim? I was aware of the gastro and weight gain problems - but not if these are symptoms too.

I am fully switched over to Vimpat now with success so far except that I am experiencing severe joint pain.
Did anyone else experience this and does it go away?

I have sharp pains that hit me in my temples. Does anyone else have this pain and what do you do for it. I am 65 and had seizures since 13 years of age. This pain just started about 2 years ago. My neurologist gave me a antiflmatory but it does not help. Some times it wakes me up. The pain in my head is horrible.

Does it affect your hair and teeth?

When the weather is dull and cold I have had more seizures, but if its nice and sunny I find it gives me a boost to do more than I usually do.