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is a low sodium level a problem in those of you who take aptiom/zebinix? how often do you have blood test to check sodium levels?
how often do people take blood tests to check depletion levels that most of the medications cause? especially after increase and change of medications?
I don't really do Blood tests that often and only after decreasing my medication.
I have made a routine of taking my medications, however, when something disrupts that routine, I sometimes tend to forget to take my medication. How you found anything useful to help you remember take your medications?
I get up and get a cup of coffee and then after bout ten minutes I get into my daily routine of prayer and bible study I do, and after that I take my meds, my opinion and how I go about it,
Those of you that have had epilepsy for a long time, how often do you need to change medication? Does one work for quite a few years and then your seizures come back, and you have to try a new med? Is it common for people’s bodies get used to the meds?
I'm sorry to tell you this but be prepared to be taken off a med put on new one, possibly sometimes more than one med. Reason doing so is in search which one or combo will work best for you. I came… read more
My neuro told me that carrying extra 50# didn’t directly affect my seizures (focal impaired), but losing weight still good idea to help with sleep, blood pressure, etc.
Just read this… looks like more direct correlation…. AEDs cause weight gain. In turn, weight gain increases inflammation, changes hormones/chemicals, can increase seizures.
https://www.defeatingepilepsy.org/living-with-e...
I’d like to know what you’ve been told, what your experience has been.
Thanks!!
RK
I lost alot of taste for food, I eat terrible. I drink alot of coffee. I can lose 8# in one week, only to get it back the next. Over and over again.
It's a new medication I put on and I dint think it was at first but it only got worse very itchy first looks chicken pots where it goes all over but then it's blisters your skin peels off ,dry and even splits but it also leave marks after healed ?
@A MyEpilepsyTeam Member hope your clears ups mines called perampanel
It appears every 3-6 months my seizures become out of control again and I need to increase my medication. Things will go well for a bit and then get out of control again and a dose increase will temporarily help. Is this normal? Does this happen to you guys? Im on tegretol, vimpat, and clobazam.
Hello… I used to have a similar problem, until my doctor found the right combination of medicines to get control of the abnormal brain waves (which is what epilepsy is). Now, I have had basic control… read more
Especially for my UK friends but all contributions welcome.How often found you have bloods taken & what do the GPs ask for?. Liver function ? ,Levels of AEDs, ? I've never had mine taken regularly The GP thinks the Epilepsy Unit takes bloods( it doesn't , purely a consultation) & the Unit thinks the GP does .I think I may have to ask for them myself
Everytime I go to the neurologist I get checked & now more often because she's trying to figure out if I should go on with lowering my medicine. Also my medical doctor does all these blood tests to
When you vomit shortly after taking your medication, how do you handle the situation medication wise if you can physically see the meds in your vomit? What about if it is within a half hour and you cannot see your medication?
@A MyEpilepsyTeam Member it definitely isn't a gag reflex. I've been taking my medicine by the handful for years. It seems to be a stomach issue that I'm having issues with recently.
@A MyEpilepsyTeam Member it's an app that has medication reminders, helps you log your seizures, auras, side effects of you experience from your medications, when you log a seizure you can choose up… read more
