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Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I hope you have a blessed Christmas holiday also @A MyEpilepsyTeam Member
I suffer with catamenial seizures and my menstral cycle starts again on 3rd January and I'm not looking forward to it as I know I'll have more seizures
My last one was when I collapsed into my glass shower door and fitted and I nearly lost my life, I thought I'd had a tonic-clonic seizure but it turns out that it was a catamenial seizure. I really don't want to have fit's again they're awful and makes me feel so weak and confused for day's
I have to take clobazam 10mg one twice a day when I'm… read more
Thanku so much Carla I really appreciate ur support in this and I hope u also get to take the clobazam too
I'm hoping that all women who are going through this and are at the age of not wanting… read more
I looked at seizure dogs they are quite pricey. I lucked into my labrastaff does very good at alerting me to a seizure coming.
Can hormones irritate seizures or cause seizures? Menopause effect:
When I was pregnant, I had less seizures? During pregnancy the 3 hormones vary. Estrogene excites seizures, progesterone prohibits seizures and testosterone has no reaction on seizures. Therefore, could natural progesterone be used to control seizures.
I've never had a reaction during my cycles, probably because mine were caused from tumors, so I can't speak on that. However, after my last 2 surgeries, which included having almost a whole lobectomy… read more
I am peri-menapusal. I get more frequent migraines, and more seizures when I should be menstruating.
Ironically it's a she. I'm grateful that she is moving to Alaska and I have to get a new neurologist
I had read so many posts/blogs about the link between hormones and migraines, as well as… read more
Try and keep positive to reduce stress , to not trigger any seizures. Keep in mind that you control your life , Not Epilepsy. Epilepsy just throw obstacles in our path. They may not always be easy, we… read more
I have never specifically been diagnosed with catamenial epilepsy (or seizures) however when i was younger it was suggested that my cycle was causing escalation of my seizures, and when I had my child… read more
Hey ladies! I have a serious question. Have any of you noticed an increase in your seizure occurance or severity at specific times during your menstrual cycle? When? I tried talking to my neurologist about this, but HE just shrugged me off. I'm just curious if anyone else has noticed that link.
Yes, big time! I thought it would stop the moment post menstrual began.... No because my seizures began when my period's started... Uggh! One of my old Neurologist thought so.....
I’d like to hear from other women with Catamenial Epilepsy and what their symptoms and experiences are like , are they monthly? How do you handle your monthly hormonal cycle?
Monthly hormonal cycles are now a distant memory. It was TOUGH! I felt like every aspect of my epilepsy was aggravated geometrically times 10 each month. What an ordeal
Great info here! Nice people… read more
When it comes to menstrual cycle do you have a seizure or more seizures than usual? Or am I alone on that?
Ok so do your alls emotions bounce all over the place.
