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If you doc has a diagnosis of Genralozed convulsion epilepsy without mention of intractable epilepsy (345.10) does that mean she thinks the meds are working?
With interactable Epilepsy meds won't control your seizures ... They may tone your seizures down from a generalized seizure to many absent seizures a day (as I have and prefer lol because my full… read more
Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I Was on Topomax and it had some side effects that were tolerable … Stay strong in time you might be thankful 🙏 🙏
Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?
All of my meds are in generic my insurance will not paid for brand name
I want to know
Some doc. may call them seizures & some may call them episodes I don't know why to me they are a problem that I deal with everyday of my life...... but I'm seizure free knock on wood .......but I… read more
I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!
I feel you
How does anyone who is a full time parent get by with epilepsy and the fear of having one by yourself with just your child. I have grand mal and partial seizures. I'm to scared to have another child because I'm scared I shouldn't be a mother because of my epilepsy. I've recently also had brain surgery. So I have had a lot of help since my son was born. It's hard to feel like a mother
Is anyone else in this position or know how it feels? My parents help us but they are now in their 70's. They… read more
@A MyEpilepsyTeam Member I wasn't worried about my Pregnancy or my Son having the same Condition that I have b/c at the time my Doctor was in the Houston Medical Center which has some of the best… read more
It just makes me go to sleep / tired
i want to know as much as possiable about it they r talking about doin this on my daughter
What is your question about it. I might be able to answer it for you. My name is Manny Gomez nice to meet you. I have one in me right now. I just had my 3rd one two years ago. I am supposed to get a… read more
Can anyone suggest a good seizure diary app compatible for iphone? Thanks
What I do is I put notes on my phone. This way I can find my notes and write them down when I see my doctor. My doctor can keep my notes in my file and have a record of what is going on in my head.
