Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.

when i was a child (10-16) years old i was prescribed but when i left school the doctors changed my medication. why was this when mysoline was controlling my epilepsy. whilst on mysoline i was having 1 maybe 2 fits aweek but since they change my medication my fits have increased and i am unable to work

there are commercials for cancer, Heart Disease, and a half a dozen more yet no one has even hardly heard of Epilepsy just think of
what good could be done if we had a few commercials ask for help
and talking about it maybe people would know what to do if they saw one

My pancreas stopped working. I take Vimpat Phenobarbital Felbamate and Diamox.

Please tell me that I am not the only one urging them to tell everyone with Epilepsy/Seizure Disorder about this amazing site.

It has changed my life to come here and make friends who know exactly what it is like to have a seizure. Don't you want everyone to also receive this gift?

I didn’t know that 70% of all seizures can be controlled by medication.

Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?

A relative of mine came up to me, wanting understand more about epilepsy and applying for Social Security. She new I about my Epilepsy, and the basics of it. She has got to know and become friends with Epilepsy. She needed deeper info so she can help her friend
out better. This lady has no work experience, know minimal life skills and has a husband in worse shape than her. He has spinal Bifida , been in and out of the hospital . She is living off his SSDI and doesn’t know or realize that if she… read more

What was your experience? Was it worth it?

I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!