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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My pancreas stopped working. I take Vimpat Phenobarbital Felbamate and Diamox.

June 12, 2021
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A MyEpilepsyTeam Member

Lucky for me I only have seizures every few years. There are times I feel embarrassed being on this forum. I am so glad to hear that the DBS has helped. It sounds like it has made a big difference in your life. I had to look up refractory too. Idiopathic I all ready knew. I worked in veterinary medicine and the terminology is the same. I know just enough to be dangerous. 😜😂.
Thanks for the information. I am constantly learning. Hoping I won’t stop either.
Thanks for sharing your story.

September 30, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member it is sad when you break the internet just trying to find out what you consider basic facts

September 29, 2023
A MyEpilepsyTeam Member

Im on 5 AED medications and one recovery medication ( use when needed ).

I’m on Keppra, Lamotrigine, Carbatrol, Fycompa and Clonazepam. I take them 3x a day. Then there’s Lorazepam, my recovery med.

June 13, 2021
A MyEpilepsyTeam Member

I am now taking 100 mgs. Briviact 9 AM and 9 PM, 2 25 mgs. Lamotragine, and 2.5 ML (250 MG) Epidiolex at 9 PM. I also take 15 mgs. Onfi at 9 at night. As a child, I took my meds 3 times a day. Eventually they let me take meds not a lunch but after school. Kids can be cruel to other children who are somehow different.

December 14, 2023
A MyEpilepsyTeam Member

I’m on five medications, take them three times a day and equaling 20+ meds a day

October 4, 2023

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