Have You Ever Wounded Why Their Are No Commercials For The Cure Of Epilepsy ? | MyEpilepsyTeam

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Have You Ever Wounded Why Their Are No Commercials For The Cure Of Epilepsy ?
A MyEpilepsyTeam Member asked a question 💭

there are commercials for cancer, Heart Disease, and a half a dozen more yet no one has even hardly heard of Epilepsy just think of
what good could be done if we had a few commercials ask for help
and talking about it maybe people would know what to do if they saw one

posted March 13, 2017
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A MyEpilepsyTeam Member

Well, there is no actual cure for epilepsy...only control.
Most people who have cancer do not lose consciousness when they drive. Depending on what type of seizures you have, it's for everyone's safety...yours and others on the road. I've been without my license now for a year. I miss it terribly, but wouldn't be able to live with myself if I had a seizure behind the wheel and hurt or killed someone.
I know everyone I've known or run into know exactly what epilepsy is. Do they know the specifics? Probably not. They almost all know of convulsive, grand mal seizures. In my case, I lose the ability to speak among a lot of other symptoms. It's up to U S to educate people!
If you are so upset, you could always hold a fund raiser, bake sale, bingo game, etc...doesn't have to cost a lot. Print out information on epilepsy hand out the pamphlets in exchange for dollar store Popsicles and start there! At least you will feel like you've done YOUR part in your community.
You could even donate any money you make to the epilepsy foundation. I'm not sure, but they may even be able to help you learn how to do a fundraiser.
It all begins somewhere, my friends. The Heart association, Cancer Society, all began somewhere!
I see your complaint was that there is no tv awareness for epilepsy...so, starting in your area, when you have a fundraiser, call your local tv station and invite them! Tell them you want to put awareness out to the public!
It's easier to complain then to actually jump into action, folks!
Hope everyone has a seizure free day and feels well.

posted March 13, 2017
A MyEpilepsyTeam Member

For the same reason there are really no more cute new for epilepsy even though the pharmaceutical companies want to charge us an arm and a leg for a medications most of them are over 10 to 15 to 40 years old believe it or not maybe only a few of them are like five years old that's been packed that's it the latest medications Arnie him in the way of getting approved here too many side effects. Putting a face to a name would make a big difference and that's the biggest part there is no safe to put it to a name to help promote the Cure or improve the research for epilepsy

posted March 20, 2017
A MyEpilepsyTeam Member

Ive wondered why there were no commercials for a cure for years till I learned there is no cure. Yet I still question why theres no commercials or information given in the media or newspapers. I have found there are people who have no idea what epilepsy is or how to help someone should they see a person having a seizure or how to identify a seizure from someone being under the influence. I myself was informed at one point the reason I received no help was person thought I was detoxing from a drug which a doctor informed me when a person is going through a seizure it has much of the same symptoms as a person will have when detoxing from a drug. So more awareness in the media and informing people what they could do to help would definitely be a great help.

posted March 13, 2017
A MyEpilepsyTeam Member

I think about this cure thing constantly. When I started taking lamictal it cost me $350/mn.Last nite I picked up lamotrigine (same drug)for$13.20.One pill for 1 person for 1mn.On me alone with 1 med more than$4044/yr.I think of how many years it was known by medical and tobacco industry before it was leaked to persons who were giving them their money and life.Doctors,hospital,cigaretts,drugs,endless medical supplies for the weak due insulted brain,lung,heart .What a loss of dollars in their pocket should the truth be known.Similarly,is the pain,nausea,diarrhea,despina,consciousness as well as doctors and hospitals in the name of treating the symptoms of cancer instead of allowing the cure for it. What a loss of dollars that would be if a cure be known. It would be even more than dollars on an epileptic taking cocktails and 3 meds/day for life.Yet I'm asked to believe a weekend trip to Moon has been found and cures for these havent and cant be found!
There's a dollar to be made in "treat the symptom not the cure'.
I think of it every day. Retired epileptic RN

posted March 28, 2017
A MyEpilepsyTeam Member

I've notice the absence of epilepsy cure and treatment in the face of like cardiac,cancer,MS too.
There isnt a known cure for epilepsy true but not impossible to get it. There arnt cures for the others. tho getting the recognition finding their cure isnt seen as impossible. Getting recognition and education
are a keys to getting funding for research for a cure for epilepsy..A father whose daughter has epilepsy started a
lemonade sale in his neighborhood to raise money., A good amt money was made but even more important many
people learned about epilepsy and the next year even the stores like shopko and Kmart opened their doors for sales . In a few years it has become a city event with alot of persons selling
more lemonade and getting good donations.This year it has lead to a movement called CAN,Community
Awareness Network.Different epileptics are grouping together to make fresh markets this spring,
Talent Show,camp and Creative Art.The point is not so much to raise money(right now)but to make
Epilepsy something known about. Some of the persons joining the effort just happen to be connected
with theaters,radio and pop bands offering further expansion with advertisement of knowledge,education and funds tfor
epilepsy.There is growing community involvement,education and interest in research for the cure for epilepsy.It started with a father's idea(little neighborhood lemonade sale)that has now become city
wide interactions,,education, interest.and donations Ongoing and one step closer to the cure for epilepsy.

.

posted March 13, 2017

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