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Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I hope you have a blessed Christmas holiday also @A MyEpilepsyTeam Member
I love reading and singing with my 10 preschoolers on Wednesday’s! GREAT staff there too. Fun fun!
I will forever remember. The mouse and the motorcycle . Was so amazing. After that I always wanted to read.
My little girl 6 years she was diagnosed with epilepsy October 2022 her testament she managed very well and her EEG was not seizures!But for October 2023 she started to refuse to take her medicine. She’s is keeping saying she doesn’t want it anymore to take.I not want to do ?Her next appointment on the Dr is in April 2024 ! Any advice?Thank you!
I think that having you explain what you are doing and what you are trying to do to help her with the condition she has, and if you can come to a medium with her, It's not to hurt her but help her… read more
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You are at risk at pace of 6-1 to develop Dementia faster than a non-epileptic. Keep that in mind. 💜
Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?
All of my meds are in generic my insurance will not paid for brand name
It seems as I get older the harder the seizures are getting for me the rest of that day,night and the next day and it's hard for me to call off when I have a seizure even if I feel terrible because I'm the only person who knows how to do my job, working in medical I thought they'd be more flexible with me but there not so now I'm thinking about looking for one that can be more flexible with me. What does everyone else do that is flexible with their epilepsy and willing to work with them?
The Focal Onset Impaired Awareness Seizures (complex partial seizures) can be so complex and have so many more forms than the common ones listed on any medical site, Epilepsy Foundation, Epilepsy… read more
I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!
I feel you
Me 2 Dave. Remember the u2 song "what u don't have. U don't need it now"
