Just The Fact That I Have Epilepsy Am I At Risk Of Memory Loss? | MyEpilepsyTeam

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Just The Fact That I Have Epilepsy Am I At Risk Of Memory Loss?
A MyEpilepsyTeam Member asked a question 💭

I am a controlled epileptic, and was wondering if my memory would still be at risk for memory loss.

posted October 30, 2023
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A MyEpilepsyTeam Member

My memory used to be real bad for a lot of years. Thankfully it is no longer ... not that I don't forget things still, just not as bad. Seems like since was put on the new med, being taken of 2 other meds was on. I've been remembering better, forgot what that was like.

posted November 27, 2023
A MyEpilepsyTeam Member

Everyone (except possibly the few who have rare perfect memory recall) has the memory recall get worse with age. An epileptic (even seizure free for so long that they are not on any medications) has hampering of memory recall from the epileptic neurological disorder itself. And memory recall gets worse with age for everyone (not sure about those with perfect memory recall) with age.

However, as I said in my previous answer, the actual losing of memories (no chance of access ever again) are only for those lost because of dementia (Alzheimer's being the most common form of dementia) and/or permanent brain damage that happened at some point later in life that might have destroyed a path to those memories Otherwise, if you once had access to the memories (thus they were actually made), it is about finding away to improve memory recall or at least a "focused memory recall" to get to the specific memories. There is the proven fact that Cognitive Behavioral Training (CBT) (link below) can help there. However, that is because I had major blockage (Wall is the CBT term) made up of depression and anxiety reinforced by guilt. Thus, I have gained access by a lot of memories by taking it down. The gains when your Wall is not as thick, thus your major obstacle is memory recall is not as significant. No one can regain a lot of memory recall, but it is possible to regain access to specific memories, but those ways are typically from something other than Cognitive Behavioral Therapy.

What is Cognitive Behavioral Therapy (CBT)?
https://www.apa.org/ptsd-guideline/patients-and...

How can Cognitive Behavioral Therapy help me get control of depression (and anxiety -- and other specific issues detailed in other places)?
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC70...

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I think the answers for how to possibly get access to specific memories is for a psychiatrist or psychologist, but I would have to look for a link to the site that explains which one and by how. Thus, I will have to get back to you on that one.

posted November 1, 2023
A MyEpilepsyTeam Member

Between your seizures and medications, You will experience memory struggles like,
1. For getting what you were going to do
2. Forgetting an upcoming event.
3. Forget what you were going to say to somebody.

These are a few examples.

posted October 31, 2023
A MyEpilepsyTeam Member

Yes. Anyone can develop Alzheimer's (most common form of dementia) and there many ways to experience brain damage. Memory recall is worse for an epileptic (even one who is on no medications and has been seizure free for decades) than someone their same age. As for which memories are lost for good and which are simply difficult to access, the answer to that one is depending upon how the memories were lost. I can tell you a fact that my neurologist told me (and you can ask the greatest brain doctor of the modern age and would get the same answer) that there is no way of telling the amount of specific brain damage that a person has received until after the person is dead -- because there has not yet been a scan or anything else that can see inside the inner brain (where memory is located). Thus, I was told that I have sustained 17 years worth of brain damage in my inner brain to memory because it was 17 years after my epilepsy returned that I was diagnosed as having epilepsy and began receiving treatment. This was proven using the donated brains of epileptics (who it was know that there had been years of delay after epilepsy began (or returned from hibernation) and they were diagnosed and treated. This is published research. However, the specifics of the damage of any individual is only determined (at least until someone develops a scan that can see into the inner brain and can do so with 100% accuracy) after the donated brain of that individual (as will be the case with mine) is examined by researchers. However, I would recommend that you ask your neurologist if there is some means to find out if any memory that is lost to you is in fact lost for good rather than blocked. The only memories that I am sure that I lost were regarding study habits. I have constantly been having to change my study habits between 1980 - 1997, but I had no clue why until I had a neurologist at Brigham and Women's Hospital (who introduced everything about my epilepsy that was known on paper, recorded from EEGs, obtained by brain MRIs that I have had in August 2021, December 2021, information obtained from the week that I was in EEG Long Term Monitoring in October 2021, the MEG I had in January 2022, memory tests that I was given in 2022 and 2023 and any other tests or scans that I had but cannot remember, along with anything new that is revealed in my annual brain MRI at Dana Farber Institute in late August for my oncologist to watch my little non-cancerous lesion.

posted October 30, 2023
A MyEpilepsyTeam Member

Other than what I said above, I have played memory games, keep repeating what I want to say and also write or type reminders . Those all help me

posted November 29, 2023

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