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Below the surface, living with epilepsy can mean days spent in bed, missed appointments, and alternate days when we seem "fine." There's so much more to epilepsy than meets the eye. We know that epilepsy comes with hundreds of possible combinations of symptoms, many of which appear invisible to outsiders. Most people don't see the many symptoms we experience.
On MyEpilepsyTeam.com, the social network and online support group for people living with epilepsy, members discuss the chronic nature of the disease and its hidden symptoms. MyEpilepsyTeam has grown to reach 52,000 members and members have shared over 1 million conversations about life with epilepsy! Throughout the year we will share themes we see come up time and time again on MyEpilepsyTeam. We chose the image of an iceberg to represent epilepsy symptoms because the life-impacting implications of an epilepsy diagnosis aren't obvious on the surface. Please share to spread epilepsy awareness!
This list is by no means exhaustive. What symptoms would you add?
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For me its the sudden slap of feeling completely lost and confused. I have the temporal lobe epilepsy and it definetly messes with memory and focus. The lack of concentration i have scares me, ill… read more
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